Testing should be commonsense....

Journalist David Mackay at the Aberdeen Press & Journal, shared his GH story to readers earlier this month, to coincide with our Aberdeenshire screening initiative. Read more

Delayed diagnosis leads to tragic loss of much-loved Mum

Last month, we launched a preventative health initiative across rural Aberdeenshire in memory of local resident Miranda McHardy, who died suddenly from genetic haemochromatosis aged 59 last year. Read more

Join us in celebrating Rare Disease Day

Rare Disease Day is on Thursday 29th February. Check out the range of events and happenings & get involved! Read more

Discussions with UK Shadow Cabinet On Preventative Health Policy

Last week, amid tight security, HUK’s CEO Neil McClements was invited to meet with members of the UK Shadow Cabinet to discuss our work. Read more

MyIron+ app enhancements rolling out this month

MyIron+ the iron overload app, in use in over 12 countries globally, gets new features this month. Read more

Screening across rural Aberdeenshire

We’re running a community preventative health initiative over the next 3 months across rural Aberdeenshire. Read more

Haemochromatosis UK - New Year's Fundraising Honours

We are pleased to announce our 18 Fundraising Heroes of 2023. People who have raised above and beyond £1,000 for the Haemochromatosis cause! Read more

Great North Run - 2024 - We have places!

We have a very limited number of places available to run the Great North Run in September 2024. Want to set yourself a challenge for the New Year and raise vital funds for our charity? Register with us now! Read more

Jam-packed clinical event season

November was a hectic month for clinician events, with conferences in London, Manchester & Liverpool. Read more

Northern Ireland Awareness Campaign Kicks Off

This month, we're launching a multi-channel TV, press, billboard and radio campaign to raise awareness of genetic haemochromatosis across Northern Ireland. Read more

Get tested for genetic haemochromatosis

Order a home-testing kit by post, get the results within 2 weeks. From just £49. Read more

"The NHS is totally failing us..."

Our recent membership survey shows the stark contrast between the charity's work and NHS provision. Read more

Doing anything interesting 2024?

Imagine if the answer to "Doing anything interesting in 2024?" was, "Yes, I am walking lava fields in Iceland or running the Paris Marathon or trekking Hadrian's Wall". Read more

Life-Changing Experience at the London Landmarks Half-Marathon!

Karen Richardson describes running the London Landmarks Half Marathon for Haemochromatosis UK in 2023 as "life-changing in so many ways." (Update - all current places for LLHM are allocated) Read more

Raising Awareness Locally

We've been raising awareness locally with several volunteers & young helpers. Read more

How do you feel about blood donation services in Wales?

We're working with the Welsh Blood Service (WBS) to better understand how people in Wales feel about donation services when they have genetic haemochromatosis. Read more

National award for the effective involvement of volunteers

Following a rigorous 12 month assessment process, Haemochromatosis UK is proud to be an Investing in Volunteers (IiV) achiever. Read more

Sad news

We are sad to report that the charity’s founder Janet Fernau MBE has passed away. Read more

McLoughlin Decorating Get Their Irons Out for Haemochromatosis UK

How appropriate to get your irons out to fundraise for Haemochromatosis UK! The McLoughlin Group did just that in July this year when their Annual Golf Day raised an impressive £2,595. Read more

Four Peaks, Three Peaks and Peak Fundraising

There will be fundraisers atop the highest mountains in England, Scotland, Wales and Northern Ireland this summer, while others run, cycle and some eat cake - all in the good fight against iron overload! While others fondly remember loved ones gone too soon because of haemochromatosis. Read more

Haemochromatosis UK at the Royal Highland Show

There was a warm Scottish welcome for Haemochromatosis UK at the Royal Highland Show. Read more

HUK Volunteers Recognised

We’re delighted to announce that 3 of our amazing “hidden haemochromatosis heroes” have been awarded a free short break, courtesy of Room to Reward! Read more

Haemochromatosis Awareness Week '23

Awareness week runs from 3rd to 10th July this year. Get involved by helping to raise awareness! Read more

All Party Group at Stormont Hears from Haemochromatosis UK

Haemochromatosis was a spotlight issue at the All Party Group for Rare Diseases at Stormont in Northern Ireland. Read more