2024 Nursing Study Day a Sell-out Success

Our recent nursing study-day brought together nursing professionals from around the world - "such a great event to learn more about haemochromatosis" Read more

Shortlisted Twice in Third Sector Awards 2024

We're delighted to have been shortlisted twice in the prestigious Third Sector Awards 2024. Read more

MyIron+ : a year on

It's a year since MyIron+, the iron overload app was launched. And it's going from strength-to-strength... Read more

2025 research awards announced

We're pleased to announce the 2025 Fernau Medical Research Award and Nursing & Healthcare Practitioner Best Practice Award. Read more

Busy clinician education events in June

We've been on the road in June with clinician education events in Wales and London. Read more

New Healthy Eating Guide Published

Our popular guide to diet and healthy eating with haemochromatosis has just been fully revised & updated. Read more

How does GH affect you? Take the survey!

Over the summer we're undertaking research to better understand how haemochromatosis affects our quality of life. Read more

C282Y Homozygotes At Increased Risk From Sepsis

Newly published research shows significantly increased risk from sepsis in C282Y homozygotes. Read more

English GH Donor Scheme Boost

Improved GH donor services in England have led to a 23% increase in GH donors. Read more

Celebrating 3 Years of HUK Genetic Testing

This month we celebrate the third anniversary of the charity’s genetic testing service. Read more

Celebrating Volunteers Week

This week we're celebrating our amazing volunteers! Read more

our hearts are heavy

a response to the infected blood inquiry report : 20.05.2024 Read more

National BBC One programme reaches millions

BBC One cover our genetic testing service & reach millions nationally Read more

Raising Awareness At Haematology Patient Congress

It was great meeting so many HUK members & new #IronOverload friends earlier this month. Read more

Could it be haemochromatosis?

British Society of Rheumatology Conference report Read more

Five Nursing Bursaries Available Now!

We are offering FREE places to five nurses or student nurses to attend our sold-out Nursing Study Day. Apply before Tuesday 7th May. Read more

Introducing Alice, the newest member of #TeamIronOverload

Meet Alice, the AI iron overload companion. Read more

Who's Doing What? Fundraisers Spring Round-Up

Every year we depend on people taking part in events and challenges to raise funds in the fight against iron overload. This is a round-up of all the wonderful people currently raising funds for us.. Read more

5-year Family Screening Programme Announced

We've secured support for a major new five-year programme across England, to develop and roll-out family screening for the condition. Read more

We Need You! At the 2024 Balmoral Show

Join us as a volunteer for a day at the 2024 Balmoral Show to help save lives and prevent ill-health from iron overload in families across Northern Ireland. Read more

Join us in celebrating Rare Disease Day

Rare Disease Day is on Thursday 29th February. Check out the range of events and happenings & get involved! Read more

Iron Talk, Tea and Coffee Roadshow for Northern Ireland

Join us across Northern Ireland this Spring to share your views, needs and experiences of haemochromatosis. The tea or coffee is on us! Read more

Testing should be commonsense....

Journalist David Mackay at the Aberdeen Press & Journal, shared his GH story to readers earlier this month, to coincide with our Aberdeenshire screening initiative. Read more

Delayed diagnosis leads to tragic loss of much-loved Mum

Last month, we launched a preventative health initiative across rural Aberdeenshire in memory of local resident Miranda McHardy, who died suddenly from genetic haemochromatosis aged 59 last year. Read more