Join the Great Iron Brew in '22!

It's not long until Haemochromatosis Awareness Week, starting 4th July. Read more

Raising awareness at Balmoral Show '22

Last month we travelled across the Irish Sea to the Balmoral Show in Belfast to raise awareness of iron overload in one of the UK's GH hotspots. Read more

New 2022-23 edition of RCN eLearning launched

#TeamIronOverload is headed to Glasgow to launch the new edition of our RCN-accredited GH eLearning module at RCN Congress (6th-8th June). Read more

Celebrating 1st anniversary of our genetics service

We have heard so many stories of people being turned away from genetic testing by their GP, so we launched our own service. Read more

Mental health research project launched

Our latest research project is studying the relationship between genetic haemochromatosis and mental health. Learn how to get involved. Read more

Raising awareness with medics

#TeamIronOverload have been on the road exhibiting at clinician events to raise awareness of GH amongst medics. Read more

HUK launches research into HFE screening effectiveness

This month, Maureen Ng'etich (pic above) joins #TeamIronOverload from the University of Swansea on a 3-month internship to undertake research into the impact that genetic screening has on families at risk of GH. Read more

Haemochromatosis UK wins top national award

Our charity has won a prestigious 2022 GSK IMPACT award, selected from over 350 nominated charities, following a rigorous assessment process. Read more

Our new charity patrons

We're delighted to announce our new patrons. Read more

Primary care research with University of Nottingham Medical School

Our latest medical research project is a collaboration with Primary Care Stratified Medicine (PRISM) research group at Nottingham University Medical School. Read more

Carrickfergus Genetic Screening

This month, our charity is providing free genetic screening to 9,000 families in Carrickfergus, near Belfast Read more

New talks for medical students

We've started a new series of talks about genetic haemochromatosis for medical students and specialist GP trainees. Read more

Successful Littleport community health pilot a “godsend”

Earlier this year, a 5-month pilot project was run at St Georges’ Medical Centre, Littleport to provide life-saving venesection treatment locally to genetic haemochromatosis patients. The pilot has been so successful, it has been extended for a further 3 years. Read more

#TeamIronOverload at the Best Practice Show

#TeamIronOverload attend the tenth annual Best Practice show in Birmingham to share knowledge and raise awareness in the medical community. Read more

40% rise in membership

Look out for the members’ survey before Christmas - help us shape our services. Read more

Raising awareness at the Balmoral Show in Belfast

Our report from the 2021 Balmoral Show in Belfast, Northern Ireland. Read more

Cross-community genetic screening launches in Derry-Londonderry

We're launching a cross-community preventative health initiative in Derry-Londonderry this month. Read more

Act now to decide who gets access to your medical records

A new scheme starts in September which requires all GPs in England to share patient medical records with NHS Digital. The deadline for opting out is 31st August. Read more

Community venesection project launched in Littleport, Cambridgeshire

Haemochromatosis UK has partnered with Addenbrooke’s Hospital and St George’s Medical Centre in Cambridgeshire to offer lifesaving venesection treatment in the local community. Read more

Celebrating the first anniversary of our NHS BT/HUK Collaboration

We're celebrating the first anniversary of our collaboration with NHS Blood & Transplant with an awareness-raising campaign. Read more

Our New Genetic Testing Service for Members' Families

Announcing our new genetic testing service for HUK members and their families. Order a home-testing kit by post, get the results within 2 weeks. Read more

New GH eLearning Module for Nurses

Flushed with success after winning the prestigious Nurse of the Year Award in March, our team have been working on a new eLearning module for nurses and healthcare practitioners. Read more

Get involved in our latest research programme

Help us with our latest research programme by taking a 3-minute survey on your experiences of treatment for iron overload. Read more