Our charity has responded to the UK National Screening Committee consultation on screening for haemochromatosis in adults. Read more
Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 6th January 2021. Read more
Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study. Read more
We have running places available to apply for via ballot. We have places in: Great North Run 2021, Virgin London Marathon 2021 and in the Great South Run 2021. Read more
NHS Blood Donation Policy changes come into place in the Summer of 2021 read the press release here. Read more
We work closely with NHS blood donation services across the UK, to improve the opportunities for people with genetic haemochromatosis (GH) to become blood donors. Learn about some forthcoming changes to these schemes in England and Scotland. Read more
This month, UK National Screening Committee has commenced a consultation on screening for genetic haemochromatosis in adults. Read more
The Covid-19 pandemic has profoundly affected our community. A recent HUK research project explored some of the challenges and looked for solutions. Read more
Mum of two, Sarah Vousden is a member of our charity's families forum. The forum's members are helping HUK to develop resources to explain GH to children and young people. Here, Sarah shares her family’s experience of genetic haemochromatosis… Read more
Michael Baker has completed his half marathon around Loughborough on Sunday. His appeal in memory of his Dad has raised over £1800 so far. Read more
Over the past 12 months, we have been researching NHS care pathways for people with genetic haemochromatsosis. Help us as we press for urgent change to improve NHS care. Read more
We're pleased to announce the publication of three new resources, to help people affected by genetic haemochromatosis. Read more
Our free genetic counselling service for members has launched. Read more
Our charity has negotiated special arrangements for people with genetic haemochromatosis to donate blood during the Covid-19 outbreak. Read more
Over recent weeks, our charity has been helping increased numbers of people, concerned about coronavirus. Read more
On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel. Read more
Our AGM is going ahead this weekend. Due to the coronavirus outbreak, the meeting will be held by free video and audio conference. Read more
Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak. Read more
HUK Expert Patient Phil Coathup visits Bewdley Medical Practice to raise awareness of Haemochromatosis. Read more
Ground Construction Limited have been awarded our prestigious Corporate Supporter of the Year award for 2019. Read more
We’re delighted to collaborate with the University of Cambridge to improve genetics reporting to make genetics reports clear, understandable and accurate for everyone. Read more
HUK is represented for the first time at the Annual General Conference for Endocrinologists. It will allow strengthening collaborations with other charity organisations and across a global community of Endocrinologists. Read more
HUK moves offices from Rugby to Spalding in Lincolnshire. Read more
HUK attended the RCGP Conference. The first day of the conference saw over 2000 GPs and the HUK stand was pleased to attract many delegates to hear about the prevalence of GH and how GPs can diagnose it. Read more