HUK Calls for Screening of Haemochromatosis in Adults

Our charity has responded to the UK National Screening Committee consultation on screening for haemochromatosis in adults. Read more

CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 6th January 2021. Read more

LGBT community and Blood Donation

NHS Blood Donation Policy changes come into place in the Summer of 2021 read the press release here. Read more

Liver cancer ten times more likely in men with GH

Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study. Read more

Improvements to GH Donor Arrangements

We work closely with NHS blood donation services across the UK, to improve the opportunities for people with genetic haemochromatosis (GH) to become blood donors. Learn about some forthcoming changes to these schemes in England and Scotland. Read more

Charity Running Places Available for 2021!

We have running places available to apply for via ballot. We have places in: Great North Run 2021, Virgin London Marathon 2021 and in the Great South Run 2021. Read more

UK National Screening Committee Consultation

This month, UK National Screening Committee has commenced a consultation on screening for genetic haemochromatosis in adults. Read more

Life in the Time of Covid

The Covid-19 pandemic has profoundly affected our community. A recent HUK research project explored some of the challenges and looked for solutions. Read more


Mum of two, Sarah Vousden is a member of our charity's families forum. The forum's members are helping HUK to develop resources to explain GH to children and young people. Here, Sarah shares her family’s experience of genetic haemochromatosis… Read more

State of the Nation Report reveals inconsistent NHS care

Over the past 12 months, we have been researching NHS care pathways for people with genetic haemochromatsosis. Help us as we press for urgent change to improve NHS care. Read more

New Genetic Haemochromatosis Resources

We're pleased to announce the publication of three new resources, to help people affected by genetic haemochromatosis. Read more

Genetic counselling service launched

Our free genetic counselling service for members has launched. Read more

Venesections cancelled or delayed?

Our charity has negotiated special arrangements for people with genetic haemochromatosis to donate blood during the Covid-19 outbreak. Read more

Life In The Time of Coronavirus

Over recent weeks, our charity has been helping increased numbers of people, concerned about coronavirus. Read more

Ask The Doctor Webinars Launched

On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel. Read more

2020 AGM Goes Ahead At Internet Speed!

Our AGM is going ahead this weekend. Due to the coronavirus outbreak, the meeting will be held by free video and audio conference. Read more

2020 Conference Postponement and AGM Update

Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak. Read more

Improving Genetic Testing Reports

We’re delighted to collaborate with the University of Cambridge to improve genetics reporting to make genetics reports clear, understandable and accurate for everyone. Read more

Raising Awareness at the RCGP National Conference

HUK attended the RCGP Conference. The first day of the conference saw over 2000 GPs and the HUK stand was pleased to attract many delegates to hear about the prevalence of GH and how GPs can diagnose it. Read more