Newly diagnosed?

Are you or a family member newly diagnosed with genetic haemochromatosis? We are here to help.

Become a member

We provide support & advice to people with genetic haemochromatosis in the UK. We aim to support our members to manage their condition and to promote better medical understanding of the condition, working in co-operation with leading clinicians.

By joining as a member, you get access to a range of additional resources and support for your condition. You'll also be joining a vibrant, supportive, engaged community of people affected by genetic haemochromatosis. Together, we're stronger.

Join Us

Learn about common symptoms

Excess iron is toxic and can affect many parts of the body. Many symptoms do improve with treatment.

Learn more

Learn about treatment

Treatment for genetic haemochromatosis is simple and clinically effective. If you have been diagnosed, it's important that you undergo treatment, to reduce the risk of clinical complications (and even death).

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Learn about the family implications

Genetic haemochromatosis runs in families, as it is inherited. If you are diagnosed with the condition, it's important to tell close family members so they can also be tested.

Learn more

Ask a question

When newly diagnosed, it may feel like you are the only person going through genetic haemochromatosis. We've collated some of the most commonly asked questions, best advice and information in our readily searchable frequently asked questions archive.

Ask a question

Talk to your friends and family about the condition

Genetic haemochromatosis is inherited. So it's important to talk to your family about the condition, so they can be screened for iron overload.

Learn how

Contact our helplines

Our helplines are available on weekdays with friendly, practical advice and support. You can contact us by phone or email.

Helplines

Follow us on social media

We are active on Youtube, Twitter and Facebook - follow us for regular advice & news.

Share experiences with our Facebook Support Group

Our Facebook Support Group provides friendly understanding and support for anyone affected by genetic haemochromatosis. This is a public group and so we advise discretion if you decide to post messages to the group.

Start here

Latest

Liver cancer ten times more likely in men with GH

Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study.
The Big Give 2020

The Christmas Challenge. One donation, twice the impact. The Big Give runs the UK’s biggest match funding campaign, The Christmas Challenge. For seven days, it offers supporters of Haemochromatosis UK the opportunity to have their donation doubled.
Improvements to GH Donor Arrangements

We work closely with NHS blood donation services across the UK, to improve the opportunities for people with genetic haemochromatosis (GH) to become blood donors. Learn about some forthcoming changes to these schemes in England and Scotland.
That'll be The Day Christmas Show

That’ll Be The Day’s Rock & Roll Christmas show has been running for over thirty years. Thanks to the Independent Age Foundation, we are very excited to offer you the chance to see the brand new Christmas show in the comfort of your own home!