Transcript of Ask the Doctor (part 1)

We've generated a transcript of the conversation between Neil McClements (HUK CEO) and Dr Susan Hancock (FRCGP), suitable for screen readers and other assistive technologies, Read more

Ask the doctor

On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel. Read more

Resources for home-schooling kids

We've gathered together a range of resources for parents and guardians who are home-schooling children due to the coronavirus outbreak. Read more

Coronavirus updates

We've been keeping everyone updated regularly; here's a summary of the changes in advice for this rapidly changing situation. Read more

What is social distancing?

It is important to self-isolate or practise social distancing to reduce the spread of coronavirus. Read more

What is coronavirus?

COVID-19 is a new illness that can affect your lungs and airways. It's caused by a virus called coronavirus. Read more

Coronavirus & Mental Health

Our mental health is just as important as physical health. We've gathered some useful resources here. Read more

Coronavirus & Pregnancy

The Royal College of Obstetricians & Gynaecologists say that the evidence we have so far is that pregnant women are still no more likely to contract the infection than the general population. Read more

Volunteer with our Families Focus Group

Get involved as we develop new resources, specifically for families, to help explain genetic haemochromatosis to children and young people. Read more

Coronavirus Update - 30th March 2020

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Read more


Safeguarding is a responsibility for all of us. Read more

Frequently Asked Questions About Genetic Haemochromatosis

We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference. Read more


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Thank You!

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Terms & Conditions

Use of our website is subject to our charity's policies. Learn more here. Read more

Helpline Report

For HUK helpline volunteers. Read more

Expert patient

Did you know that there are over 9,000 GP practices in the UK? We want to reach them all with training and resources to help general practitioners promptly diagnose people with genetic haemochromatosis. Read more


Many people are unaware they have GH. So we have produced this guide to help pharmacists understand genetic haemochromatosis and identify its symptoms in a pharmacy setting. Read more


Many older people with genetic haemochromatosis experience arthropathy and associated acute joint pain. This guide by the Haemochromatosis Arthropathy Research Initiative (HARI) was part-funded by our charity. Read more

State of The Nation 2020

Our State of the Nation report illustrates current clinical practice regarding the care of people with genetic haemochromatosis (GH), across the United Kingdom. Read more

Can I donate blood?

People with genetic haemochromatosis, who have reached maintenance can be accepted as blood donors. Find out more here. Read more


We are a founding member of the NCIMI consortium, developing medical imaging diagnostic tools to help identify conditions, including genetic haemochromatosis. Read more

Haemochromatosis Handbook (6th edition, 2020)

The Haemochromatosis Handbook is an essential resource for people affected by genetic haemochromatosis, their families and healthcare professionals. Read more