We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference. Read more
Fourth APPG for Genetic Haemochromatosis. The first held in 2020 with new chair Rt Hon Sir John Hayes MP. Read more
The All-Party Parliamentary Group on Genetic Haemochromatosis was re-constituted following the December 2019 elections under the chairmanship of Rt Hon Sir John Hayes CBE MP and the Vice-Chairmanship of Ben Lake MP. The 2020 meeting dates are available here. Read more
Minutes of the third meeting of the APPG for Genetic Haemochromatosis on 30th October 2019. Read more
We've generated a transcript of the conversation between Neil McClements (HUK CEO) and Dr Susan Hancock (FRCGP), suitable for screen readers and other assistive technologies, Read more
On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel. Read more
We've gathered together a range of resources for parents and guardians who are home-schooling children due to the coronavirus outbreak. Read more
We've been keeping everyone updated regularly; here's a summary of the changes in advice for this rapidly changing situation. Read more
It is important to self-isolate or practise social distancing to reduce the spread of coronavirus. Read more
COVID-19 is a new illness that can affect your lungs and airways. It's caused by a virus called coronavirus. Read more
Our mental health is just as important as physical health. We've gathered some useful resources here. Read more
The Royal College of Obstetricians & Gynaecologists say that the evidence we have so far is that pregnant women are still no more likely to contract the infection than the general population. Read more
Get involved as we develop new resources, specifically for families, to help explain genetic haemochromatosis to children and young people. Read more
Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Read more
Safeguarding is a responsibility for all of us. Read more
Read more
Use of our website is subject to our charity's policies. Learn more here. Read more
For HUK helpline volunteers. Read more
Did you know that there are over 9,000 GP practices in the UK? We want to reach them all with training and resources to help general practitioners promptly diagnose people with genetic haemochromatosis. Read more
Many people are unaware they have GH. So we have produced this guide to help pharmacists understand genetic haemochromatosis and identify its symptoms in a pharmacy setting. Read more
Many older people with genetic haemochromatosis experience arthropathy and associated acute joint pain. This guide by the Haemochromatosis Arthropathy Research Initiative (HARI) was part-funded by our charity. Read more
Our State of the Nation report illustrates current clinical practice regarding the care of people with genetic haemochromatosis (GH), across the United Kingdom. Read more
People with genetic haemochromatosis, who have reached maintenance can be accepted as blood donors. Find out more here. Read more
We are a founding member of the NCIMI consortium, developing medical imaging diagnostic tools to help identify conditions, including genetic haemochromatosis. Read more
The Haemochromatosis Handbook is an essential resource for people affected by genetic haemochromatosis, their families and healthcare professionals. Read more