How to Host an Iron Brew

Our charity supports a range of informal social meetings across the United Kingdom. We call these "Iron Brews". Here we have some hints on tips on how to make your "Iron Brew" a success! Read more

Jo's story

Jo volunteers as a GH Buddy, supporting those who reach out to the Haemochromatosis UK. Read more

Rob's Story

Volunteering with HUK “fits in well with my life”, says Facebook Moderator volunteer Rob. Read more

Nigel's Story

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Pippa's Story

Pippa is a GH Buddy, offering support to those affected by Haemochromatosis - “I am there to listen, and to support where I can.” Read more

Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks. Read more

MyIron+ App & Alice Chatbot Terms of Service

These Terms are important so please read them carefully. Read more

Together we're stronger!

Together we're stronger! Read more

Volunteer as a steering group member in England

We are seeking volunteers to join a steering group for our "Pass It On" programme in England. Read more

H63D/S65C Compound Heterozygous

People who have one gene H63d and one gene S65C are known as “compound heterozygotes”. Read more

C282y/S65C Compound Heterozygous

People who have one gene C282y and one gene S65C are known as “compound heterozygotes”. Read more

S65C carrier (also known as “S65C heterozygous”)

If you are a “S65C carrier” it means that you have inherited a single copy of the S65C variant from one of your parents. Read more