Understanding your blood test results

Blood test results can be baffling - our guide helps to explain what each test is about. Read more

Cardiomyopathy & Genetic Haemochromatosis

Cardiomyopathy is a heart condition where the walls of the heart muscle are thicker than usual. Poeple with GH can develop cardiomyopathy. Read more

A Guide to Preparing for Venesection

Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards. Read more

Stephen McGann - why I support Haemochromatosis UK

Stephen McGann - why I support Haemochromatosis UK Read more

Haemochromatosis Advanced Nurse Practitioner

We provide specialist support for members from our haemochromatosis advanced nurse practitioner on all aspects of your diagnosis, care, treatment and genetics. Read more

Latest Coronavirus Advice (November 2020)

We've collated the latest advice on staying well during the Covid-19 pandemic here. Read more

Breathing Techniques

Some people can get nervous about medical procedures, especially before a venesection or blood test. We share a simple breathing technique, which can help. Read more

Transcript : Haemochromatosis & blood-injection-injury phobia

This is a transcript of the video "Haemochromatosis & blood-injection-injury phobia", a guide for clinicians, presented by Dr Haris Yennadiou. Read more

Transcript : What is genetic counselling?

This is a transcript of the video "What is genetic counselling?" presented by Helen Bethell. Read more

What to do when things go wrong : Transcript

This is a transcript of the video "What to do when things go wrong...", presented by Tim Spring (partner, Moore Barlow). Read more

Scotland Blood Donation

In Scotland, people with genetic haemochromatosis who are in the maintenance phase, can become blood donors through the Scottish National Blood Transfusion Service (SNBTS). Read more

Northern Ireland Blood Donation

People with genetic haemochromatosis may become donors with the Northern Ireland Blood Transfusion Service (NIBTS). Read on for further details. Read more

What is genetic counselling?

Ever wondered what a genetic counsellor does? Learn more here. Read more

Genetic Counselling - What's Involved?

What is genetic counselling all about, what does it involve? Read more

Welsh Blood Service Support Genetic Haemochromatosis Donations

In response to the Covid-19 outbreak, the Welsh Blood Service now accept blood donations from people with genetic haemochromatosis, subject to their eligibility criteria. Read more

Venesections cancelled or delayed?

Our charity has negotiated special arrangements for people with genetic haemochromatosis to donate blood during the Covid-19 outbreak. Read more

What will be your legacy?

By leaving a gift in your will to Haemochromatosis UK, you’ll help us continue to fight for public awareness and timely, effective care and support for people affected by genetic haemochromatosis. Read more

Transcript of Ask the Doctor (part 2)

We've generated a transcript of the conversation between Neil McClements (HUK CEO) and Dr Susan Hancock (FRCGP), suitable for screen readers and other assistive technologies, Read more

Ask the doctor (part 2)

On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel. Read more

GH for Clincians

Our charity runs an education programme to train and equip clinicians to accurately diagnose genetic haemochromatosis in the community. Read more