Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks. Read more
Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics. Read more
Read more
Would you like to buddy-up for iron overload advice? Chat with a Buddy every couple of weeks for up to 3 months, by phone at a time that suits you. Read more
Will you organise a casual Walk & Talk during Haemochromatosis Awareness Week (1st-7th July 2024) with friends & family? Read more
Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding. Read more
Our charity supports a range of informal social meetings across the United Kingdom. We call these "Iron Brews". Here we have some hints on tips on how to make your "Iron Brew" a success! Read more
Jo volunteers as a GH Buddy, supporting those who reach out to the Haemochromatosis UK. Read more
Volunteering with HUK “fits in well with my life”, says Facebook Moderator volunteer Rob. Read more
Pippa is a GH Buddy, offering support to those affected by Haemochromatosis - “I am there to listen, and to support where I can.” Read more
Alice can answer questions about haemochromatosis, thoughtfully & privately 24x7. Read more
With treatment, many people live full and active lives with genetic haemochromatosis. Here's what to expect. Read more
Type 2 haemochromatosis is known as a juvenile-onset disorder because symptoms often begin in childhood. Read more
Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards. Read more
Everyone deserves great NHS care. But if something goes wrong or isn’t working for you, what can you do? Read more
This guide explains the rarer form of non-HFE genetic haemochromatosis, also known as type 3 or TFR2-related GH. Read more
These Terms are important so please read them carefully. Read more
As a patient-led charity, we value peoples' experiences and stories of how genetic haemochromatosis has affected them and their families. Read more
Together we're stronger! Read more
This guide explains the rarer form of non-HFE genetic haemochromatosis, called Ferroportin Disease. Read more
We are seeking volunteers to join a steering group for our "Pass It On" programme in England. Read more
People who have one gene H63d and one gene S65C are known as “compound heterozygotes”. Read more
People who have one gene C282y and one gene S65C are known as “compound heterozygotes”. Read more
If you are a “S65C carrier” it means that you have inherited a single copy of the S65C variant from one of your parents. Read more