The last meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held on Tuesday 15th March at 3pm. Read more
Our latest report reveals the true costs to the NHS of the burden of ill-health arising from genetic haemochromatosis. Read more
Help us raise much-need funds for medical research with our Magic Numbers scratch card game. Scratch to win up to £100 per card. Read more
Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks. Read more
We'd love all our supporters to invite friends & family round for a nice cuppa in the Great Iron Brew. Find out how to get involved! Read more
A rough guide to the Iron content in cereals Read more
We maintain this list of private venesection providers for members who may be struggling to secure appropriate NHS care. Read more
Ferroportin disease (type 4 haemochromatosis) is an autosomal dominant genetic condition caused by changes to the SLC40A1 gene. Read more
Type 3 genetic haemochromatosis affects middle aged adults but also adolescents and young adults (<30 years old). Read more
Type 2 haemochromatosis is known as a juvenile-onset disorder because symptoms often begin in childhood. Read more
DRAFT Genetic Haemochromatosis Primary Care eLearning Module (peer review edition v3.0) Read more
DRAFT Genetic Haemochromatosis Primary Care eLearning Module (peer review edition v2.2) Read more
If you are a “H63d carrier” it means that you have inherited a single copy of the H63d variant from one of your parents. Read more
If you are a “C282y carrier” it means that you have inherited a single copy of the C282y variant from one of your parents. Read more
If you are “H63d homozygous” it means that you have inherited 2 copies of the milder H63D variant, one from each of your biological parents. Read more
People who have one gene C282y and one gene H63d are known as “compound heterozygotes”. Read more
This is the most common variant of the genetic haemochromatosis in the UK, affecting 9 in every 10 people diagnosed. Read more
A guide for prospective parents who have genetic haemochromatosis and intend to become, or are currently, pregnant. Read more
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We’ve all said those dreaded words as you open your presents on Christmas Day… “Oh, erm, thank you?” Instead of that board game turning into a bored game, those socks languishing in the back of the drawer unworn or saving those smellies for next year’s regifting you could raise money for Haemochromatosis UK! Read more
We are seeking enthusiastic and skilled volunteers with an interest in Haemochromatosis to help organise and deliver awareness events around the UK (Northern Ireland, Scotland, Wales, South England, and Northern England) Read more
Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 4 weeks. Read more
It's Free Wills Month for members and Friends Against Iron Overload. Start your will and save over £90! Read more
Leaflets discussing the issues of brain fog, mood swings, depression and anxiety that people diagnosed with genetic haemochromatosis frequently report and where to get help. Read more
A transcript of the seminar on assessing the degree of iron overload in suspected haemochromatosis (Dr Bill Griffiths) Read more