The Spring All-Party Parliamentary Group on Genetic Haemochromatosis will be held online via Zoom webinar on Wednesday 17th February at 2.30pm. Read more
The minutes of the meeting held on 2nd of December 2020 have been published and can be downloaded here. Read more
The final APPG for Genetic Haemochromatosis of 2020 will be held online via Zoom webinar on Wednesday 2nd December at 2.30pm. Read more
We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference. Read more
Blood test results can be baffling - our guide helps to explain what each test is about. Read more
Cardiomyopathy is a heart condition where the walls of the heart muscle are thicker than usual. Poeple with GH can develop cardiomyopathy. Read more
Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards. Read more
Stephen McGann - why I support Haemochromatosis UK Read more
We provide specialist support for members from our haemochromatosis advanced nurse practitioner on all aspects of your diagnosis, care, treatment and genetics. Read more
We've collated the latest advice on staying well during the Covid-19 pandemic here. Read more
A phobia is a type of anxiety disorder in which a person develops an overwhelming and devastating fear about a situation, place, object, animal, or insect. This guide provides helpful techniques to reduce anxiety. Read more
Some people can get nervous about medical procedures, especially before a venesection or blood test. We share a simple breathing technique, which can help. Read more
This is a transcript of the video "Haemochromatosis & blood-injection-injury phobia", a guide for clinicians, presented by Dr Haris Yennadiou. Read more
This is a transcript of the video "What is genetic counselling?" presented by Helen Bethell. Read more
This is a transcript of the video "What to do when things go wrong...", presented by Tim Spring (partner, Moore Barlow). Read more
In Scotland, people with genetic haemochromatosis who are in the maintenance phase, can become blood donors through the Scottish National Blood Transfusion Service (SNBTS). Read more
People with genetic haemochromatosis may become donors with the Northern Ireland Blood Transfusion Service (NIBTS). Read on for further details. Read more
Ever wondered what a genetic counsellor does? Learn more here. Read more
What is genetic counselling all about, what does it involve? Read more
In response to the Covid-19 outbreak, the Welsh Blood Service now accept blood donations from people with genetic haemochromatosis, subject to their eligibility criteria. Read more
Our charity has negotiated special arrangements for people with genetic haemochromatosis to donate blood during the Covid-19 outbreak. Read more
By leaving a gift in your will to Haemochromatosis UK, you’ll help us continue to fight for public awareness and timely, effective care and support for people affected by genetic haemochromatosis. Read more
We've generated a transcript of the conversation between Neil McClements (HUK CEO) and Dr Susan Hancock (FRCGP), suitable for screen readers and other assistive technologies, Read more
On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel. Read more
Our charity runs an education programme to train and equip clinicians to accurately diagnose genetic haemochromatosis in the community. Read more