Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks. Read more
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Would you like to buddy-up for iron overload advice? Chat with a Buddy every couple of weeks for up to 3 months, by phone at a time that suits you. Read more
The next meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis will be held at Westminster on Wednesday 19th April. Read more
These Terms are important so please read them carefully. Read more
As a patient-led charity, we value peoples' experiences and stories of how genetic haemochromatosis has affected them and their families. Read more
Together we're stronger! Read more
This guide explains the rarer form of non-HFE genetic haemochromatosis, called Ferroportin Disease. Read more
This guide explains the rarer form of non-HFE genetic haemochromatosis, also known as type 3 or TFR2-related GH. Read more
We are seeking volunteers to join a steering group for our "Pass It On" programme in England. Read more
Alice can answer questions about haemochromatosis, thoughtfully & privately. Read more
People who have one gene H63d and one gene S65C are known as “compound heterozygotes”. Read more
People who have one gene C282y and one gene S65C are known as “compound heterozygotes”. Read more
If you are a “S65C carrier” it means that you have inherited a single copy of the S65C variant from one of your parents. Read more
Our Facebook Support Group has almost doubled in size over the past 4 years. We're keen to hear what people think of the group and how we can improve it. Read more
Professor Kiely, Consultant Rheumatologist at St George's Medical School in London explains the current state of the art treatment for people with GH-induced joint pain, as well as answering questions from the floor. Read more
This webinar was presented in July 2023 by Dr Tim St Pierre of Resonance Health. Tim is Professor in the School of Physics, Maths and Computing at University of Western Australia with a particular research interest in iron overload disorders. Read more
Manage your genetic haemochromatosis with our app. Designed by people with iron overload - for people just like you. Read more
We’re seeking enthusiastic and skilled volunteers with an interest in haemochromatosis to help provide the Hemochromatosis UK Buddy scheme. Read more
This guide, produced by the employment law team at Gowling WLG (UK) LLP, provides advice to employers whose staff have genetic haemochromatosis. Read more
This guide for parents and carers explains the rare type 2 variant of genetic haemochromatosis, which typically affects young people under 25 years old. Read more
We've negotiated improved donor arrangements for people with genetic haemochromatosis living in England. Read more