Nursing

RCN-accredited eLearning Module

The Royal College of Nursing have accredited our free online eLearning module on genetic haemochromatosis from 6th May 2021. Any nurse or healthcare practitioner who completes the module and the post-course assessment successfully gains a certificate of completion worth 4 CPD hours. We are delighted that the course has been accredited, so that nurses taking the online course can receive valuable continuing professional development points (CPD) for their efforts.

The RCN accreditation team praised the module :

"this is a valuable opportunity to learn/update on the most common genetic condition for Caucasians in the UK....it's easy to access, stable, well-paced learning with the A&P, genetics and pathophysiology embedded into the learning. Patient care, videos, and time out activities made the learning more real and relevant."

This free course for nurses and healthcare practitioners is available here.

An introduction to Genetic Haemochromatosis for nurses & healthcare practitioners

Our nurses' guide has everything a nurse needs to know to be able to support their patients diagnosed/undiagnosed.

Venesection Best Practice

GH has no cure, but with early intervention and regular, appropriate treatment it can be managed as a life-long condition. The primary therapy - venesection - is known to be clinically effective when performed correctly.

Our award-winning Venesection Best Practice Guidance is endorsed by the Royal College of Nursing and used as the basis of our nurse and HCP training programme. The guidance is available for free download, on Amazon (as an eBook) and free from our charity directly.

Phobias - Blood, Injection, Injury

People with genetic haemochromatosis can experience blood, injection or injury phobia during their venesection treatment. Venescetion is the primary therapy for genetic haemochromatosis treatment; this treatment can be a trigger for BII phobia.

In this video, Dr Haris Yennadiou, Highly Specialist Clinical Psychologist at Guy's & St Thomas' NHS Foundation Trust, explains what BII phobia is, the range of therapies available and how to support patients through treatment. This video forms part of Haemochromatosis UK's clinician education programme. We gratefully acknowledge the generous support of our education programme by Shears Foundation and Ground Construction Limited.

Click here for a transcript of this video

We have collated the following resources, for use with patients who may be experiencing blood-injection-injury phobia

Overcoming blood and needle phobias and medical anxiety (Haemochromatosis UK)
Breathing exercises for patients pre-venesection (Haemochromatosis UK)
Overcoming your fear of needles (King's College Hospital NHS Foundation Trust)
Overcoming your needle phobia (Guy's & St Thomas's NHS Foundation Trust)

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#TeamIronOverload have been on the road exhibiting at clinician events to raise awareness of GH amongst medics.
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This month, Maureen Ng'etich (pic above) joins #TeamIronOverload from the University of Swansea on a 3-month internship to undertake research into the impact that genetic screening has on families at risk of GH.
Breakfast Cereals and their Iron Content

A rough guide to the Iron content in cereals

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
Genetic Testing for Haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Treatment & care
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 28th July 2021.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.