Projects

Latest

London Marathon 2021 - Haemochromatosis UK

I am excited to be running the London Marathon in October 2021 to raise money for Haemochromatosis UK. I will raise funds to help improve awareness, education and diagnosis of this debilitating genetic condition.
Seminar : Assessing the degree of iron overload in suspected haemochromatosis

Dr WJH Griffiths PhD FRCP, Consultant Hepatologist at Addenbrookes Hospital, Cambridge will present the latest clinical research into assessing iron overload using MRI techniques.
Merseyside Members' Iron Brew Social - May

Join us for our Merseyside members' Iron Brew social, via Zoom. Do you know anyone with GH? We didn't when first diagnosed.....come along!
Training : How to offer emotional support to others

This interactive, online training course is for anyone supporting others through troubled times. By the end of the course, delegates will become familiar with common listening techniques and specific guidance in supporting others in face-to-face and helpline settings.

In memory of Lindsay Forsyth

Lindsay was officially diagnosed with Haemochromatosis about 3 years ago, which for people unfamiliar with the genetic condition, is excessively high blood iron levels. Lindsay would attend hospital every two weeks to have some blood removed and this helped to bring down her iron levels over time (though by the time she passed away they were still really high).

Unfortunately high blood iron levels are a big risk factor for other complications, most notably liver disease.
Great North Run half marathon for Dad

In memory of Dad who sadly passed away aged 58 just before Christmas 2019 with liver cancer caused by Haemochromatosis.
Travelers outreach

Our project, in collaboration with Breaking Down Barriers and the Sylvia Adams Charitable Trust, is working with the Irish travelling community to raise awareness of genetic haemochromatosis.
Professional
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
Raising awareness with Endocrinologists

HUK is represented for the first time at the Annual General Conference for Endocrinologists. It will allow strengthening collaborations with other charity organisations and across a global community of Endocrinologists.
HUK Strengthens Role Within Genetic Alliance UK

The members of Genetic Alliance UK voted to appoint Haemochromatosis UK’s Chief Executive, Neil McClements to its board of trustees, earlier this month.
Your Patient Will See You Now

Haemochromatosis UK announce they have received a grant from the National Lottery Community Fund to further develop our “people-powered” clinical awareness raising.
Cutting Edge MRI Technology Used in New Study to Identify Genetic Causes of High Liver Iron

Perspectum Diagnostics have just released study findings that use MRI technology to identify genetic causes of high liver iron.
Finalists for the Better Health Awards

Haemochromatosis UK finalists for the AbbVie Big Ideas for Better Health Awards.