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  1. The difference we make
  2. Our projects

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Published: 18th December, 2019

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Latest

  • London Marathon 2021 - Haemochromatosis UK

    I am excited to be running the London Marathon in October 2021 to raise money for Haemochromatosis UK. I will raise funds to help improve awareness, education and diagnosis of this debilitating genetic condition.

  • Seminar : Assessing the degree of iron overload in suspected haemochromatosis

    Seminar : Assessing the degree of iron overload in suspected haemochromatosis

    Dr WJH Griffiths PhD FRCP, Consultant Hepatologist at Addenbrookes Hospital, Cambridge will present the latest clinical research into assessing iron overload using MRI techniques.

  • Merseyside Members' Iron Brew Social - May

    Merseyside Members' Iron Brew Social - May

    Join us for our Merseyside members' Iron Brew social, via Zoom. Do you know anyone with GH? We didn't when first diagnosed.....come along!

  • Training : How to offer emotional support to others

    Training : How to offer emotional support to others

    This interactive, online training course is for anyone supporting others through troubled times. By the end of the course, delegates will become familiar with common listening techniques and specific guidance in supporting others in face-to-face and helpline settings.

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  • In memory of Lindsay Forsyth

    Lindsay was officially diagnosed with Haemochromatosis about 3 years ago, which for people unfamiliar with the genetic condition, is excessively high blood iron levels. Lindsay would attend hospital every two weeks to have some blood removed and this helped to bring down her iron levels over time (though by the time she passed away they were still really high).

    Unfortunately high blood iron levels are a big risk factor for other complications, most notably liver disease.

  • Great North Run half marathon for Dad

    Great North Run half marathon for Dad

    In memory of Dad who sadly passed away aged 58 just before Christmas 2019 with liver cancer caused by Haemochromatosis.

  • Travelers outreach

    Travelers outreach

    Our project, in collaboration with Breaking Down Barriers and the Sylvia Adams Charitable Trust, is working with the Irish travelling community to raise awareness of genetic haemochromatosis.

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  • Advice lines

    Advice lines

    Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.

  • Raising awareness with Endocrinologists

    Raising awareness with Endocrinologists

    HUK is represented for the first time at the Annual General Conference for Endocrinologists. It will allow strengthening collaborations with other charity organisations and across a global community of Endocrinologists.

  • HUK Strengthens Role Within Genetic Alliance UK

    HUK Strengthens Role Within Genetic Alliance UK

    The members of Genetic Alliance UK voted to appoint Haemochromatosis UK’s Chief Executive, Neil McClements to its board of trustees, earlier this month.

  • Your Patient Will See You Now

    Your Patient Will See You Now

    Haemochromatosis UK announce they have received a grant from the National Lottery Community Fund to further develop our “people-powered” clinical awareness raising.

  • Cutting Edge MRI Technology Used in New Study to Identify Genetic Causes of High Liver Iron

    Cutting Edge MRI Technology Used in New Study to Identify Genetic Causes of High Liver Iron

    Perspectum Diagnostics have just released study findings that use MRI technology to identify genetic causes of high liver iron.

  • Finalists for the Better Health Awards

    Finalists for the Better Health Awards

    Haemochromatosis UK finalists for the AbbVie Big Ideas for Better Health Awards.

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  • Coronavirus Update

    Coronavirus Update

    Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 18th January 2021.

  • Ask the doctor

    On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.

  • What is Transferrin Saturation ?

    What is Transferrin Saturation ?

    Gerri our Advanced Nurse Practitioner explains what Transferrin Saturation is and why it is important to keep it at the correct levels.

  • CV19 Vaccine & Haemochromatosis

    CV19 Vaccine & Haemochromatosis

    Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 6th January 2021.

  • Ask the doctor (part 2)

    On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.

  • Liver cancer ten times more likely in men with GH

    Liver cancer ten times more likely in men with GH

    Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study.

  • UK National Screening Committee Consultation

    UK National Screening Committee Consultation

    This month, UK National Screening Committee has commenced a consultation on screening for genetic haemochromatosis in adults.

  • What is genetic haemochromatosis?

    What is genetic haemochromatosis?

    Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.

  • Frequently Asked Questions About Genetic Haemochromatosis

    Frequently Asked Questions About Genetic Haemochromatosis

    We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.

  • What's it like becoming a GH blood donor?

    What's it like becoming a GH blood donor?

    Our Social Media Community and Volunteer Manager, Elizabeth reflects on her experiences of the new blood donation scheme and shares some details from behind-the-scenes.

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