Projects

Latest

New members' Iron Brew Social - December

One of the benefits of HUK membership are our free members' events. Do you know anyone with GH? We didn't when first diagnosed.....Join us for our new members' Iron Brew social, via Zoom.
What is Genetic Counselling? Find out here

Our Genetic Counsellor, Helen Bethell, has been on board the team since April 2020. In this blog she explains exactly what genetic counselling is and what you can expect if you book in a session with her….
Great North Run 2021

The Great North Run is the World’s biggest Half Marathon! With the best local support, famed for its party atmosphere, this is a truly classic and fantastic challenge to take on! From Newcastle city centre, over the iconic Tyne Bridge, with the swooping Red Arrows overhead and onwards to the sea views at South Shields.
Great South Run 2021

The 10-mile route takes you through the iconic sights of Southsea and Portsmouth, including the Portsmouth Historic Dockyard, home of HMS Victory, past Spinnaker Tower, and finishes on the seafront with stunning views of the Isle of Wight.

In memory of Lindsay Forsyth

Lindsay was officially diagnosed with Haemochromatosis about 3 years ago, which for people unfamiliar with the genetic condition, is excessively high blood iron levels. Lindsay would attend hospital every two weeks to have some blood removed and this helped to bring down her iron levels over time (though by the time she passed away they were still really high).

Unfortunately high blood iron levels are a big risk factor for other complications, most notably liver disease.
Great North Run half marathon for Dad

In memory of Dad who sadly passed away aged 58 just before Christmas 2019 with liver cancer caused by Haemochromatosis.
Travelers outreach

Our project, in collaboration with Breaking Down Barriers and the Sylvia Adams Charitable Trust, is working with the Irish travelling community to raise awareness of genetic haemochromatosis.
Professional
Helplines

Our helpline is available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
Raising awareness with Endocrinologists

HUK is represented for the first time at the Annual General Conference for Endocrinologists. It will allow strengthening collaborations with other charity organisations and across a global community of Endocrinologists.
HUK Strengthens Role Within Genetic Alliance UK

The members of Genetic Alliance UK voted to appoint Haemochromatosis UK’s Chief Executive, Neil McClements to its board of trustees, earlier this month.
Your Patient Will See You Now

Haemochromatosis UK announce they have received a grant from the National Lottery Community Fund to further develop our “people-powered” clinical awareness raising.
Cutting Edge MRI Technology Used in New Study to Identify Genetic Causes of High Liver Iron

Perspectum Diagnostics have just released study findings that use MRI technology to identify genetic causes of high liver iron.
Finalists for the Better Health Awards

Haemochromatosis UK finalists for the AbbVie Big Ideas for Better Health Awards.