Projects

Latest

Going to Hell & Beyond for Haemochromatosis UK

In July 2020, Mike Fletcher (61) is riding his motorbike “To Hell and Beyond” to raise awareness and money for Haemochromatosis UK.
Big Give Christmas Challenge

This year, we're taking part in the Big Give Christmas Challenge, the UK’s biggest online match funding campaign. We’re hoping to raise vital funds for our 2021 awareness-raising campaign.
Virgin London Marathon - 2020

We have places at the Virgin London Marathon 2020. We’re delighted that Mark Handley will be running the Virgin Money London Marathon, in aid of Haemochromatosis UK. Support our runners here!
Awareness Raising at Balmoral Show

We're raising awareness of GH in the farming community in Northern Ireland.

Going to Hell & Beyond for Haemochromatosis UK

In July 2020, Mike Fletcher (61) is riding his motorbike “To Hell and Beyond” to raise awareness and money for Haemochromatosis UK.
In memory of Lindsay Forsyth

Lindsay was officially diagnosed with Haemochromatosis about 3 years ago, which for people unfamiliar with the genetic condition, is excessively high blood iron levels. Lindsay would attend hospital every two weeks to have some blood removed and this helped to bring down her iron levels over time (though by the time she passed away they were still really high).

Unfortunately high blood iron levels are a big risk factor for other complications, most notably liver disease.
Great North Run half marathon for Dad

In memory of Dad who sadly passed away aged 58 just before Christmas 2019 with liver cancer caused by Haemochromatosis.
Travelers outreach

Our project, in collaboration with Breaking Down Barriers and the Sylvia Adams Charitable Trust, is working with the Irish travelling community to raise awareness of genetic haemochromatosis.
Professional
Helplines

Our helpline is available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
Raising awareness with Endocrinologists

HUK is represented for the first time at the Annual General Conference for Endocrinologists. It will allow strengthening collaborations with other charity organisations and across a global community of Endocrinologists.
HUK Strengthens Role Within Genetic Alliance UK

The members of Genetic Alliance UK voted to appoint Haemochromatosis UK’s Chief Executive, Neil McClements to its board of trustees, earlier this month.
Your Patient Will See You Now

Haemochromatosis UK announce they have received a grant from the National Lottery Community Fund to further develop our “people-powered” clinical awareness raising.
Cutting Edge MRI Technology Used in New Study to Identify Genetic Causes of High Liver Iron

Perspectum Diagnostics have just released study findings that use MRI technology to identify genetic causes of high liver iron.

Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here.
Ask the doctor

On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
Ask the doctor (part 2)

On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
Frequently Asked Questions About Genetic Haemochromatosis

We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.
2020 Conference Postponement and AGM Update

Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak.
Accessibility
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
New Genetic Haemochromatosis Resources

We're pleased to announce the publication of three new resources, to help people affected by genetic haemochromatosis.
Venesections cancelled or delayed?

Our charity has negotiated special arrangements for people with genetic haemochromatosis to donate blood during the Covid-19 outbreak.