Projects

Latest

Understanding your blood test results

Blood test results can be baffling - our guide helps to explain what each test is about.
Cardiomyopathy & Genetic Haemochromatosis

Cardiomyopathy is a heart condition where the walls of the heart muscle are thicker than usual. Poeple with GH can develop cardiomyopathy.
A Guide to Preparing for Venesection

Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards.
In memory of Steve

To raise awareness & raise money for this charity

In memory of Lindsay Forsyth

Lindsay was officially diagnosed with Haemochromatosis about 3 years ago, which for people unfamiliar with the genetic condition, is excessively high blood iron levels. Lindsay would attend hospital every two weeks to have some blood removed and this helped to bring down her iron levels over time (though by the time she passed away they were still really high).

Unfortunately high blood iron levels are a big risk factor for other complications, most notably liver disease.
Great North Run half marathon for Dad

In memory of Dad who sadly passed away aged 58 just before Christmas 2019 with liver cancer caused by Haemochromatosis.
Travelers outreach

Our project, in collaboration with Breaking Down Barriers and the Sylvia Adams Charitable Trust, is working with the Irish travelling community to raise awareness of genetic haemochromatosis.
Professional
Helplines

Our helpline is available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
Raising awareness with Endocrinologists

HUK is represented for the first time at the Annual General Conference for Endocrinologists. It will allow strengthening collaborations with other charity organisations and across a global community of Endocrinologists.
HUK Strengthens Role Within Genetic Alliance UK

The members of Genetic Alliance UK voted to appoint Haemochromatosis UK’s Chief Executive, Neil McClements to its board of trustees, earlier this month.
Your Patient Will See You Now

Haemochromatosis UK announce they have received a grant from the National Lottery Community Fund to further develop our “people-powered” clinical awareness raising.
Cutting Edge MRI Technology Used in New Study to Identify Genetic Causes of High Liver Iron

Perspectum Diagnostics have just released study findings that use MRI technology to identify genetic causes of high liver iron.
Finalists for the Better Health Awards

Haemochromatosis UK finalists for the AbbVie Big Ideas for Better Health Awards.