Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding. Our helpline is available by phone and email. If you'd like to help support the helpline, there are some fundraising ideas here and here. 

Scroll down for details of :

  • our patient helplines (phone / email)
  • our employers' helpline (phone / email)
  • our genetic counselling service (members only)
  • our legal helpline (members only)

What can we provide help with?

  • Information on living well with genetic haemochromatosis
  • Information on what treatment pathways commonly exist 
  • Sign-posting to information about genetic haemochromatosis
  • Sign-posting to external agencies & support groups
  • Information of accessing services, such as genetic testing & counselling
  • Emotional support and encouragement

Please note that although we can provide information and guidance on managing genetic haemochromatosis, our helpline team are not medically qualified and are therefore unable to comment on individual health issues.  At the request of the NHS, we are unable to provide referrals to specific clinicians or hospitals. Information provided by Haemochromatosis UK is not a substitute for professional care and should not be used for diagnosing or treating a health problem. If you have or suspect you may have a health problem you should consult your doctor. We ourselves cannot provide professional legal advice or legal representation, however we can signpost you to organisations that may be able to help.

Christmas 2020 Opening Hours

Our office and helplines will be closed from 3pm on Wednesday 23rd December, reopening on Monday 4th January at 9am. 

Telephone Helpline : 03030 401 102 (weekdays Noon-3pm)

Our telephone helpline is staff by trained volunteers, with experience of genetic haemochromatosis. The helpline is available on weekdays between 12 Noon and 3pm. Outside these hours, an answering service is available - leave a message and one of our helpline team will call you back.

For our information & advice line call : 03030 401 102

Email Helpline : [email protected] (24x7)

Our email helpline is run by experienced volunteers. We aim to respond to queries within 1-2 working days, although we are usually quicker than this.

Employers' Helpline : 0303 040 1104 (weekdays Noon-3pm)

Our specialist employers' helpline is available on weekdays between Noon and 3pm. We're able to provide advice to employers in how they can best support their staff with genetic haemochromatosis in accordance with the Equality Act 2010.

For our employers' advice line call : 03030 401 104

For our employers' email helpline : [email protected] 

Genetic counselling

Genetic counselling is where health professionals help people to understand the medical, psychological and family implications of a genetic condition. Our genetic counselling service is free for all Haemochromatosis UK members; it is just one of the benefits of membership. If you are not already a member of our charity, you can join here. 

Ask for a genetic counselling appointment (members only)

Members' legal helpline

We provide our members with access to our legal helpline, in association with Moore Barlow solicitors.

If you would like help or to speak in confidence with one of the team at Moore Barlow, simply register online, providing your membership number and one of the team will be in touch to provide help and advice. This service is provided on weekdays 9am-5pm.

Legal Helpline Registration (members only)

* Calls to 03 numbers cost no more than a national rate call to an 01 or 02 number. If calling from a mobile phone, calls to 03 numbers count towards any inclusive minutes in the same way as 01 and 02 calls.