Passion led us here. What about you?

Haemochromatosis UK is currently recruiting the following roles :

  • Trustees (pro-bono, voluntary, 5-6 days per year)

We particularly welcome applications from people with the following skills : 

  • Major donor and/or grants & trusts/foundations fundraising expertise
  • Professional accounting and financial controls / management experience
  • Professional legal and employment law experience
  • Clinical experience of caring for people with genetic haemochromatosis in a primary or secondary care setting

Haemochromatosis UK is a registered charity and company limited by guarantee and so prospective trustees must be eligible to act as trustee and as a company director. Further details on these responsibilities can be found here :

Our trustees must also comply with the charity's policies, including the trustee conflict of interest policy.

To apply, download the trustee role description and the application form. Please complete and return the application form with a copy of your CV/resume (maximum 2 sides of A4). Completed applications should be sent to [email protected] or by post marked for the attention of our CEO.

Closing date : Noon on Thursday 9th April 2020.

For further details, please refer to the trustee role description. No agencies, please.


Senior Grants & Trusts Fundraiser (part-time/full-time)

In this exciting and high-profile role, you will lead on writing bid applications, managing our existing portfolio of donors, impact reporting to funders and contributing to the development of our charitable programmes.

You will be a proactive and enthusiastic team player, someone who relishes a challenge and craves fundraising success. You will have exceeded objectives in a previous role and be highly results oriented. You will enjoy all aspects of the fundraising lifecycle from prospecting and bid writing through to impact analysis and reporting.

With a close attention to detail, you will have a flair for packaging up our existing programmes to excite and attract new funding bodies to support our work.

This is a key role, reporting directly to our Chief Executive, working within a small, close-knit fundraising team. This is a varied role with significant responsibility and a fantastic opportunity to join our growing team at an exciting time in our development.

Closing date : 1st February 2020. This role is now closed.

No agencies, please.


Genetic Counsellor (part-time/full-time)

In this exciting role, you will be the charity’s lead on the genetics of haemochromatosis and a key contributor to the development of our charitable programmes.

We provide telephone helpline support to people affected by genetic haemochromatosis (HFE genetic mutation). We also run a vibrant education programme to train healthcare professionals across primary and secondary care in haemochromatosis diagnosis, care pathways and management.

Our charity is a key member of National Consortium of Intelligent medical Imaging (NCIMI), a £12 million programme funded by InnovateUK and run in partnership with the University of Oxford, several leading NHS foundations trusts and industry. As part of this programme we are collaborating in the delivery of clinical trials for advanced MRI imaging to improve the detection and timeliness of genetic haemochromatosis diagnosis. A key part of this role is to provide genetic counselling support (remotely) to participants involved in this trial across the UK.

This is a diverse and varied role, combining :

  • Developing and delivering training materials (online seminars, face-to-face training, printed materials etc) on the genetics of haemochromatosis
  • Providing helpline support (by telephone, email and video conference) to families affected by genetic haemochromatosis to help them understand and manage their condition
  • Providing support to clinical trial participants, to help them understand the implications of a diagnosis of genetic haemochromatosis
  • Representing our charity at NHS PPV events, clinician conferences and the All-Party Parliamentary Group on GH, to advance healthcare professionals and policy makers’ understanding of the condition

This role may be full-time of part-time :

  • 22.5 hours (part-time) to 37.5 hours (full-time) per week
  • Salary £28-38k pa (full-time, pro-rata for part-time) including pension contributions
  • This is a 2 year fixed term contract, with the possibility of extension.

Closing date : 14th February 2020. This role is now closed.

No agencies, please.