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London Marathon 2021 - Haemochromatosis UK

I am excited to be running the London Marathon in October 2021 to raise money for Haemochromatosis UK. I will raise funds to help improve awareness, education and diagnosis of this debilitating genetic condition.
Seminar : Assessing the degree of iron overload in suspected haemochromatosis

Dr WJH Griffiths PhD FRCP, Consultant Hepatologist at Addenbrookes Hospital, Cambridge will present the latest clinical research into assessing iron overload using MRI techniques.
Merseyside Members' Iron Brew Social - May

Join us for our Merseyside members' Iron Brew social, via Zoom. Do you know anyone with GH? We didn't when first diagnosed.....come along!
Training : How to offer emotional support to others

This interactive, online training course is for anyone supporting others through troubled times. By the end of the course, delegates will become familiar with common listening techniques and specific guidance in supporting others in face-to-face and helpline settings.

Most read

Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 18th January 2021.
Ask the doctor

On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
What is Transferrin Saturation ?

Gerri our Advanced Nurse Practitioner explains what Transferrin Saturation is and why it is important to keep it at the correct levels.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 6th January 2021.
Ask the doctor (part 2)

On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
Liver cancer ten times more likely in men with GH

Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study.
UK National Screening Committee Consultation

This month, UK National Screening Committee has commenced a consultation on screening for genetic haemochromatosis in adults.
What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Frequently Asked Questions About Genetic Haemochromatosis

We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.
What's it like becoming a GH blood donor?

Our Social Media Community and Volunteer Manager, Elizabeth reflects on her experiences of the new blood donation scheme and shares some details from behind-the-scenes.