Supporting people affected by genetic haemochromatosis
– together, we’re stronger. Join us!

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.

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Fundraising ideas

Our charity relies upon the selfless support of donors and fundraisers to provide much-needed help to people affected by genetic haemochromatosis. Can you help us fundraise?

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Information for healthcare professionals

We work closely with healthcare practitioners and clinicians to optimise the care delivered to people with genetic haemochromatosis. Check out our clinical resources.

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Author: Phil Treble

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Our Impact

1750

members - join us!

40

volunteers - get involved!

1800

helpline calls last year - call us!

Latest news

  • Liver cancer ten times more likely in men with GH

    Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study. Read more

  • Improvements to GH Donor Arrangements

    We work closely with NHS blood donation services across the UK, to improve the opportunities for people with genetic haemochromatosis (GH) to become blood donors. Learn about some forthcoming changes to these schemes in England and Scotland. Read more

  • Charity Running Places Available for 2021!

    We have running places available to apply for via ballot. We have places in: Great North Run 2021, Virgin London Marathon 2021 and in the Great South Run 2021. Read more

Latest events

  • The Big Give 2020

    The Christmas Challenge. One donation, twice the impact. The Big Give runs the UK’s biggest match funding campaign, The Christmas Challenge. For seven days, it offers supporters of Haemochromatosis UK the opportunity to have their donation doubled. Read more

  • Training : Genetic Haemochromatosis & Primary Care

    We provide free professional development webinars, specifically tailored to GPs to identify and diagnose patients with genetic haemochromatosis. Register now. Read more

  • New members' Iron Brew Social - December

    One of the benefits of HUK membership are our free members' events. Do you know anyone with GH? We didn't when first diagnosed.....Join us for our new members' Iron Brew social, via Zoom. Read more