Haemochromatosis UK

BBC Radio 4 Charity Appeal in Aid of Haemochromatosis UK

Join Stephen McGann for this BBC Radio 4 Charity Appeal in aid of Haemochromatosis UK. Broadcast on BBC Radio 4 from Sunday 7th February 2021. Read more
Target £15,000 Raised so far £9,297
Please select a donation amount (required)
£12 Help us to support someone through our telephone and email helplines, with practical information and advice.

£25 Provide training materials for a nurse or health care practitioner in the safe, effective treatment for haemochromatosis.

£50 Provide a NHS hospital with advice and information resources for 10 patients, to help people live well with the condition.

£95 Train a General Practitioner in the diagnosis and care of people with genetic haemochromatosis. Each GP supports up to 2,000 patients annually; help our NHS diagnose people promptly with iron overload.

Other

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Donate now Fundraise Read More
Time For Change - Towards Genetic Screening

This 22-page report was commissioned in response to the UK National Screening Committee consultation on genetic screening for GH in adults. Published February 2021. Read more
Liver cancer ten times more likely in men with GH

Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study. Read more
State of the Nation Report reveals inconsistent NHS care

Over the past 12 months, we have been researching NHS care pathways for people with genetic haemochromatsosis. Help us as we press for urgent change to improve NHS care. Read more

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.

Fundraising ideas

Our charity relies upon the selfless support of donors and fundraisers to provide much-needed help to people affected by genetic haemochromatosis. Can you help us fundraise?

Information for healthcare professionals

We work closely with healthcare practitioners and clinicians to optimise the care delivered to people with genetic haemochromatosis. Check out our clinical resources.

Make a donation

All donations, no matter how small, help us to help others

Please select a donation amount (required)

£10

Enables us to provide support to one person via our helpline

£25

Enables us to provide a hospital pack of leaflets, venesection diaries and best practice nurse training materials that help 10 people

£50

Enables us to train one phlebotomist, nurse or allied healthcare practitioner in venesection best practice, ensuring hundreds of people are treated safely.

£100

Enables us to train one General Practitioner in the diagnosis and care of people with genetic haemochromatosis in partnership with the Royal College of GPs.

Other

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Our Impact

1800	members - join us!
40	volunteers - get involved!
1800	helpline calls last year - call us!

Latest news

Kidszone launches this month

Our new Kidszone launches this month with new resources for children and young people affected by genetic haemochromatosis. Read more
Medical Research Award for 2021

We're delighted to announce the winner of the 2021 Fernau Medical Research Award. Read more
We're finalists in the 2021 British Journal of Nursing Awards

We're delighted to have been selected as finalists in the British Journal of Nursing Awards 2021. Read more

Latest events

Rare Disease Day 2021

HUK are exhibiting at this special day, which aims to draw attention to rare diseases and the millions of people who are affected by them. Read more
Start: 26^th February, 2021 at 10:00am

End: 26^th February, 2021 at 3:15pm

Published: 11^th January, 2021

Updated: 13^th February, 2021

Author:

Location: Online
Related topics:
- What's on
- Clinician Education
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Training : Genetic Haemochromatosis & Primary Care

We provide free professional development webinars, specifically tailored to GPs to identify and diagnose patients with genetic haemochromatosis. Register now. Read more
Start: 11^th March, 2021 at 12:30pm

End: 11^th March, 2021 at 1:30pm

Published: 3^rd September, 2020

Updated: 13^th November, 2020

Author:

Location: Online
Related topics:
- Clinician Education
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New members' Iron Brew Social - March

Join us for our new members' Iron Brew social, via Zoom. Do you know anyone with GH? We didn't when first diagnosed.....come along! Read more
Start: 12^th March, 2021 at 12:30pm

End: 12^th March, 2021 at 1:30pm

Published: 16^th October, 2020

Updated: 8^th January, 2021

Author:

Location: Online
Related topics:
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Our Impact

1800

40

1800

Latest news

Latest events