Haemochromatosis UK

BBC Radio 4 Charity Appeal in Aid of Haemochromatosis UK

Join Stephen McGann for this BBC Radio 4 Charity Appeal in aid of Haemochromatosis UK. Broadcast on BBC Radio 4 from Sunday 7th February 2021. Read more
Target £15,000 Raised so far £475
Please select a donation amount (required)
£12 Help us to support someone through our telephone and email helplines, with practical information and advice.

£25 Provide training materials for a nurse or health care practitioner in the safe, effective treatment for haemochromatosis.

£50 Provide a NHS hospital with advice and information resources for 10 patients, to help people live well with the condition.

£95 Train a General Practitioner in the diagnosis and care of people with genetic haemochromatosis. Each GP supports up to 2,000 patients annually; help our NHS diagnose people promptly with iron overload.

Other

Set up a regular payment

Donate now Fundraise Read More
Liver cancer ten times more likely in men with GH

Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study. Read more
State of the Nation Report reveals inconsistent NHS care

Over the past 12 months, we have been researching NHS care pathways for people with genetic haemochromatsosis. Help us as we press for urgent change to improve NHS care. Read more
New Genetic Haemochromatosis Resources

We're pleased to announce the publication of three new resources, to help people affected by genetic haemochromatosis. Read more

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.

Fundraising ideas

Our charity relies upon the selfless support of donors and fundraisers to provide much-needed help to people affected by genetic haemochromatosis. Can you help us fundraise?

Information for healthcare professionals

We work closely with healthcare practitioners and clinicians to optimise the care delivered to people with genetic haemochromatosis. Check out our clinical resources.

Make a donation

All donations, no matter how small, help us to help others

Please select a donation amount (required)

£10

Enables us to provide support to one person via our helpline

£25

Enables us to provide a hospital pack of leaflets, venesection diaries and best practice nurse training materials that help 10 people

£50

Enables us to train one phlebotomist, nurse or allied healthcare practitioner in venesection best practice, ensuring hundreds of people are treated safely.

£100

Enables us to train one General Practitioner in the diagnosis and care of people with genetic haemochromatosis in partnership with the Royal College of GPs.

Other

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Our Impact

1750	members - join us!
40	volunteers - get involved!
1800	helpline calls last year - call us!

Latest news

CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 6th January 2021. Read more
LGBT community and Blood Donation

NHS Blood Donation Policy Change come into place in the Summer of 2021 read the press release here. Read more
Liver cancer ten times more likely in men with GH

Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study. Read more

Latest events

New members' Iron Brew Social - January

Join us for our new members' Iron Brew social, via Zoom. Do you know anyone with GH? We didn't when first diagnosed.....come along! Read more
Start: 21^st January, 2021 at 12:30pm

End: 21^st January, 2021 at 1:30pm

Published: 16^th October, 2020

Updated: 8^th January, 2021

Author:

Location: Online
Related topics:
- Socials
- What's on
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- Email
- Facebook
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Training : Genetic Haemochromatosis & Primary Care

We provide free professional development webinars, specifically tailored to GPs to identify and diagnose patients with genetic haemochromatosis. Register now. Read more
Start: 29^th January, 2021 at 12:30pm

End: 29^th January, 2021 at 1:30pm

Published: 3^rd September, 2020

Updated: 13^th November, 2020

Author:

Location: Online
Related topics:
- Clinician Education
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Northern Ireland Iron Brew Social - February

This social is a "Norn Iron" special, co-hosted with Neil Irwin and Hilary Dickson from the Northern Ireland HUK members' team. Join us for informal social, via Zoom. Read more
Start: 11^th February, 2021 at 12:30pm

End: 11^th February, 2021 at 1:30pm

Published: 16^th October, 2020

Updated: 22^nd December, 2020

Author:

Location: Online
Related topics:
- Socials
- What's on
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- Email
- Facebook
- Twitter

Make a donation

Our Impact

1750

40

1800

Latest news

Latest events