Haemochromatosis UK

We are Family - Haemochromatosis UK event - book now

A major Haemochromatosis UK event is taking place on the 7th October 2026. Leading experts in the field will cover themes of genetics, treatment and latest research for the benefit of the patient community. Book now to secure your place. Read more
Priority Areas Named by Haemochromatosis UK

In response to the latest study funded by Haemochromatosis UK, the charity is naming 10 priority areas for awareness, clinician education and family support while continung to work across all of the UK. Read more
Official Notice to All Users of the MyIron+ App and Ask Alice

Haemochromatosis UK issues this formal notice regarding the MyIron app and Ask Alice platforms. Read more
The Clinical Importance of the Compound Genotype of GH

The established clinical importance of C282Y homozygosity in genetic haemochromatosis is now joined by growing evidence that C282Y/H63D compound heterozygosity can also lead to significant iron overload and reduced quality of life for some patients. Read more

Saving lives and preventing ill-health
join us now in the fight against iron overload

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder that increases the risk of the body absorbing an excessive amount of iron from the diet.

Order a Test Kit Today!

A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now.

For health workers

We work closely with healthcare practitioners and clinicians to optimise the care delivered to people with genetic haemochromatosis. Check out our clinical resources.

Want to say "thank you"?

If we have been any help to you, your family or friends, please consider a quick and easy gift to the charity

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Our Impact

3441	members - join us!
74	volunteers - get involved!
1910	helpline calls last year - call us!

Latest news

What are we up to during International Awareness Week?

The 1st - 7th June 2026 is Word Haemochromatosis Awareness Week! Find out how we will be raising awareness across the UK! Read more
TCS London Marathon 2027 Charity Place

Could you be up to the challenge of running The TCS London Marathon in 2027 for Haemochromatosis UK? UPDATE - BOTH PLACES NOW ALLOCATED. Read more
Blood Red Shamrock - Now Available in the Shop!

The blood red shamrock pin-badge is now available from the Haemochromatosis UK shop. The quality metal enamel badge can be used to increase awareness of the haemochromatosis cause. Read more

Latest events

Member-led Iron Brew in Draperstown

Join Charity Member and We Are Overloaded participant, Sarah, and Haemochromatosis UK Philanthropy Manager Neil Irwin at this very special, in person Iron Brew social gathering in Draperstown. Read more
Start: 24^th September, 2026 at 10:00am

End: 24^th September, 2026 at 12:00pm

Published: 17^th June, 2026

Author:

Location: The Community Hub, Draperstown Library, 50 High Street, Magherafelt , The Community Hub Draperstown Library 50 High Street Magherafelt County Londonderry BT45 7AD
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Haemochromatosis UK Nursing Study Day 2026

Join us for our 2026 Nursing Study Day in Portsmouth! During the day, we will listen to 9 expert speakers and discuss the latest practice in diagnosing and treating genetic haemochromatosis. Come along, and be awarded 6 hours of RCN-accredited CPD hours! Read more
Start: 13^th November, 2026 at 9:00am

End: 13^th November, 2026 at 4:30pm

Published: 22^nd April, 2026

Updated: 20^th May, 2026

Author:

Location: Portsmouth Guildhall , Guildhall Square , Portsmouth, Hampshire , PO1 2AB
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We Are Family - Haemochromatosis UK Event for Patients and Experts - Early Bird

Hold the date of 7th October 2026 for a major Haemochromatosis UK event in Belfast. Read more
Start: 7^th October, 2026 at 8:30am

End: 7^th October, 2026 at 5:00pm

Published: 13^th April, 2026

Updated: 20^th May, 2026

Author:

Location: Titanic Hotel, The Titanic Quarter, 8 Queens Road, Belfast, BT3 9DT
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Latest Appeals

Together against Haemochromatosis

Genetic haemochromatosis is not rare, but is rarely diagnosed. This is a lifelong condition with no cure. If left untreated GH will take lives due to iron overload and organ failure. Read more
Anne’s fundraiser to raise awareness of Iron Overload

My son was diagnosed with Haemochromatosis 5years ago. My husband and I are carriers. Read more
Charlie’s Manchester Half Marathon

Raising money for Haemochromatosis UK - to support those who are close to me. Read more

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Our Impact

3441

74

1910

Latest news

Latest events

Latest Appeals