We work closely with healthcare practitioners and clinicians to optimise the care delivered to people with genetic haemochromatosis (GH). We endorse the British Society of Haematology guidelines, published in April 2018, as the basis for care of people with GH.

We provide a range of additional clinical resources, including :

Clinician events

We regularly present at UK clinical conferences and exhibitions.

• Meet our team at one of these events 

Clinical research

Our community is actively involved in helping researchers better understand genetic haemochromatosis. Recent projects have included :

• Improving genetic testing reports (with University of Cambridge)
• Developing non-Invasive imaging techniques to improve diagnosis of haemochromatosis (with University of Oxford & the NCIMI consortium)

We will also fund our own medical research bursaries for clinicians and nurses.

Primary Care

• Diagnosis & care
• GP eLearning (in partnership with the Royal College of GPs)
• GP training
• Resources for pharmacists

Secondary Care

• Venesection best practice
• Nursing guidance
• Arthropathy guidance