This month, Haemochromatosis UK has partnered with University of Cambridge to undertake research into genetics test reports.

As part of our remit to support medical research, the charity is collaborating with Dr Gabriel Recchia and his team at the Winton Centre for Risk and Evidence Communication to improve genetic test reports. The aim of their study is to make genetic test results easier to interpret for patients and non-specialist clinicians.

HUK’s Chief Executive Neil McClements welcomed the collaboration with the University of Cambridge – “We know from our helpline and our recent genetic testing survey that many people are confused by the poor-quality genetics reports they receive following diagnosis. We’re delighted to collaborate with the team at University of Cambridge to improve genetics reporting to make genetics reports clear, understandable and accurate for everyone”.

Dr Recchia’s team are seeking members to take part in interviews on how genetic test results are reported. You do not need any expertise in this area, just a willingness to discuss what you think would work or not when receiving test results. Anyone 18+ can take part; they are especially interested in speaking with:

• members of the public who have had experience of haemochromatosis genetic test results
• healthcare professionals (with or without experience of genetic test results)

The interview takes approximately 60 minutes and is conducted by phone, skype or face-to-face. Participants must be 18+.

Click here to apply to participate in this medical research project