Frequently Asked Questions About Genetic Haemochromatosis

We have collated many of the frequently asked questions about genetic haemochromatosis with answers here, for ease of reference.

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Frequently Asked Questions

If you have a question that hasn't already been answered, contact one of our helplines.

Latest

In Memory of Martin Hughes

Clare and Amelia Hughes are fundraising in memory of Martin to help raise awareness of this genetic condition. Undiagnosed it can lead to other serious conditions. Tragically, Martin wasn't diagnosed with Haemochromatosis (Iron Overload) until 3 years ago, at the age of 68.
Overcoming blood and needle phobias

A phobia is a type of anxiety disorder in which a person develops an overwhelming and devastating fear about a situation, place, object, animal, or insect. This guide provides helpful techniques to reduce anxiety.
Breathing Techniques

Some people can get nervous about medical procedures, especially before a venesection or blood test. We share a simple breathing technique, which can help.
Half Marathon Completed in Honour of Dad!

Michael Baker has completed his half marathon around Loughborough on Sunday. His appeal in memory of his Dad has raised over £1800 so far.

State of the Nation Report reveals inconsistent NHS care

Over the past 12 months, we have been researching NHS care pathways for people with genetic haemochromatsosis. Help us as we press for urgent change to improve NHS care.
New Genetic Haemochromatosis Resources

We're pleased to announce the publication of three new resources, to help people affected by genetic haemochromatosis.
In memory of Lindsay Forsyth

Lindsay was officially diagnosed with Haemochromatosis about 3 years ago, which for people unfamiliar with the genetic condition, is excessively high blood iron levels. Lindsay would attend hospital every two weeks to have some blood removed and this helped to bring down her iron levels over time (though by the time she passed away they were still really high).

Unfortunately high blood iron levels are a big risk factor for other complications, most notably liver disease.
Genetic counselling service launched

Our free genetic counselling service for members has launched.
Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here.
Great North Run half marathon for Dad

In memory of Dad who sadly passed away aged 58 just before Christmas 2019 with liver cancer caused by Haemochromatosis.
Best practice nursing care for GH

A day-long training workshop for nurses and other healthcare practitioners caring for people with genetic haemochromatosis.
Local social & support groups

Our local socials provide a chance to meet other people affected by genetic haemochromatosis, provide encouragement, share experiences & laughter.
Living well with GH

Changes to your diet cannot prevent iron overload. Check out our guide to healthy eating.