Privacy Policy

Our Data Protection & Privacy Policy

Important information

We are Haemochromatosis UK (HUK), a charity registered in England and Wales with charity no. 1001307 and SCO41701. We are a Company Limited by Guarantee No. 2541361. We are a controller and we are responsible for your personal information.

Haemochromatosis UK respects your privacy and is committed to protecting your personal data. In this privacy policy, we provide you with information on how we collect, store and use your personal information and tell you about your privacy rights and how the law protects you.

This policy is effective from April 2024.

Latest

An Introduction to Genetic Haemochromatosis for GPs October 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms, diagnosis, treatment and ongoing care for primary care practitioners.
An Introduction to Genetic Haemochromatosis for GPs July 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms, diagnosis, treatment and ongoing care for primary care practitioners.
An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners December 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms and treatment for nurses and healthcare practitioners.
An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners November 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms and treatment for nurses and healthcare practitioners.

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Breakfast Cereals and their Iron Content

A rough guide to the Iron content in cereals
Treatment & care
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.