Skip over main navigation
  • Log in
  • Basket: (0 items)
Haemochromatosis UK
☏ Help LineTest Kit MembershipDonate 
  • Twitter
Menu
  • Get help
    • Newly Disagnosed Essentials
    • Be a Member
    • Our Advice Services
    • Our Genetic Testing
    • Our Vita Vibes
  • Info
    • What is GH
    • All our guides
    • Videos
    • Type 1 GH
    • All Types of GH
    • Treatment & care
    • Talking about GH
    • Blood Donation in the UK
    • Private venesections
    • FAQs
  • Get involved
    • Be a Member
      • Be a Member
      • Members Only
    • Be a Friend
    • Be a Champion
    • Give money
      • Donate to HUK
      • Our appeals
      • A gift in your will
      • Online shopping partners
      • Pay In money you've raised
    • Give time, volunteer
      • Change the world
      • Current opportunities
    • Fundraise for us
      • Fundraising for us
      • Fundraising Events
      • Set up a fundraising page
      • Pay in money you've raised
    • Campaign with us
  • For health workers
    • Intro for Clinicians
    • Clinical guidelines
    • Clinician events
    • Primary care
      • Diagnosis & care
      • GP training
      • Pharmacy
    • Secondary care
      • Nursing
      • Arthropathy
      • Venesection Best Practice
    • Medical research grants
    • Clinic Packs
  • News/Events
    • News
    • All Events
    • Iron Brews / Socials
    • Fundraising Events
    • Our blog
  • Shop
  • About us
    • Our charity
      • Our trustees
      • Our team
      • Our clinical advisors
      • All Party Parliamentary Group
    • Our projects
      • Pass it On England
      • Research
      • Venesection best practice
    • Careers
    • Contact us
  • Admin
    • Log in
  • Basket: (0 items)

Become a Haemochromatosis UK Champion

As a Haemochromatosis Champion you can help us by shaping and funding our future work. Champions will be people prepared to commit a larger donation, or open doors for us to overcome many of the barriers we face and to achieve much greater impact.

You can be actively involved in transforming our cause or fund us to make your ambitions happen. You can be a named Haemochromatosis UK Champion or support from anonymous position according to your preference. 

We need people who want to help us lead in a campaign to make iron overload a thing of the past, so people do not die nor develop serious illness because of genetic haemochromatosis.  

You share with us the knowledge that iron overload is preventable, that diagnosis is simple and inexpensive – and that treatment through blood donation is beneficial to wider society.  

While we help hundreds of people each year, others are needlessly suffering because our reach is limited by our current resources. We feel the urgency that the impact we have has to be greater.   

You can be the catalyst to change the lives of hundreds of thousands of people by for example.. 

  • putting genetic haemochromatosis in the minds of every GP in the UK,  
  • enabling diagnosis at a young age - meaning iron overload can virtually be eliminated,  
  • funding research into the impact of the condition and  
  • enabling our Iron Nurses to support thousands of families at their time of crisis 
  • transforming venesection treatment across the UK 
  • Getting GH prioritised on the agenda at the top of Government and in the NHS 

Do get in touch

If you would like to be a Haemchromatosis UK Champion and are considering support of £5,000 or more, please get in touch with us at [email protected] to arrange an appointment with our Chief Executive about the change you would like to see – or to ask us about the most important work we want to do – but can’t, because funding just isn’t there to get started. Without your help, more people are condemned to life-affecting illness caused by iron overload.  

Become a Haemochromatosis UK Champion and make a lasting impact - help us, to help others. 

Be a Member / Be a Friend / Be a Champion

    Published: 28th January, 2020

    Updated: 9th December, 2025

    Author: Neil McClements

    Share this page
    • Email
    • Facebook
    • Twitter

    Latest

    • Haemochromatosis UK Appoints CEO

      Haemochromatosis UK Appoints CEO

      Join us in congratulating Jonathan Jelley MBE JP on his appointment as Chief Executive Officer of Haemochromatosis UK.

    • Helpline Closure - 17th July

      Helpline Closure - 17th July

      Our Helpline will be closed for the day on Friday 17th July.

    • Member-led Iron Brew in Draperstown

      Member-led Iron Brew in Draperstown

      Join Charity Member and We Are Overloaded participant, Sarah, and Haemochromatosis UK Philanthropy Manager Neil Irwin at this very special, in person Iron Brew social gathering in Draperstown.

    • What are we up to during International Awareness Week?

      What are we up to during International Awareness Week?

      The 1st - 7th June 2026 is Word Haemochromatosis Awareness Week! Find out how we will be raising awareness across the UK!

    Most read

    • Order a Test Kit Today!

      Order a Test Kit Today!

      A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now.

    • What is genetic haemochromatosis?

      What is genetic haemochromatosis?

      Genetic haemochromatosis (GH) is a genetic disorder that increases the risk of the body absorbing an excessive amount of iron from the diet.

    • Breakfast Cereals and their Iron Content

      A rough guide to the Iron content in cereals

    • Treatment & Care

      Treatment & Care

      With treatment, many people live full and active lives with genetic haemochromatosis. Here's what to expect.

    • Clinical Guidelines for Genetic Haemochromatosis

      Clinical Guidelines for Genetic Haemochromatosis

      Published in 2025, this patient-centred guideline sets out a framework for high-quality, evidence-based care in primary and secondary care settings for people with genetic haemochromatosis.

    • HFE (Type 1) Genetic Haemochromatosis

      HFE (Type 1) Genetic Haemochromatosis

      Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.

    • Employers' guide to haemochromatosis

      Employers' guide to haemochromatosis

      People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.

    • Haemochromatosis Carriers

      Carrier is the term used when someone has been shown to have inherited a single copy of the HFE gene mutation from one of the parents. This is sometimes called a heterozygous carrier. Carriers might be at risk of iron loading.

    • H63D carrier (also known as “H63D heterozygous”)

      If you are a “H63d carrier” it means that you have inherited a single copy of the H63d variant from one of your parents.

    • Help lines

      Help lines

      Our help lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.

    Tag cloud

    In Memory

    Sign up for our monthly newsletter

    Please enter your first name
    Please enter your last name
    Please enter your email address Please enter a valid email address (e.g. [email protected])
    • Contact us
    • Our Policies
    • Privacy Policy
    • Accessibility
    • Sitemap
    • Twitter
    • Facebook
    • YouTube
    • Linkedin

    Registered office: The Flaxmill, Flaxmill Lane, Pinchbeck, Spalding PE11 3YP.
    Phone: 03030 401 101 / Email: [email protected] / Open: Mon–Fri 9am–3pm

    Registered as Charity number 1001307 and SCO41701. Company Limited by Guarantee No. 2541361.
    Copyright © 2026 Haemochromatosis UK. All Rights Reserved.

    © 2026 Haemochromatosis UK

    Manage Cookie Preferences