What is Transferrin Saturation ?

What is Transferrin Saturation - and why is it important to keep it at the correct levels? Read more
Mark diagnosed with haemochromatosis after father died of liver cancer

Mark Williams knows how lucky he is to have been diagnosed with haemochromatosis – all because he pressed for investigation of a sore shoulder. Read more
What's it like becoming a GH blood donor?

Our Social Media Community and Volunteer Manager, Elizabeth reflects on her experiences of the new blood donation scheme and shares some details from behind-the-scenes. Read more

Blog

What's it like becoming a GH blood donor?

Our Social Media Community and Volunteer Manager, Elizabeth reflects on her experiences of the new blood donation scheme and shares some details from behind-the-scenes. Read more

Marilyn suffered from fatigue and arthritis for years until...

...being diagnosed with genetic haemochromatosis, a genetic condition which means the body absorbs too much iron. Read more

Mark diagnosed with haemochromatosis after father died of liver cancer

Mark Williams knows how lucky he is to have been diagnosed with haemochromatosis – all because he pressed for investigation of a sore shoulder. Read more

“I was convinced my liver cancer was terminal” – second chance after genetic diagnosis

A nagging sore shoulder led businessman Nick Hopkinson MBE down a path which saw him diagnosed with haemochromatosis, and having half his liver removed to save his life from cancer. Read more

Haemochromatosis battle hindered by iron-eating sea creature

Mike Smith, 66, feels he has been “dismantled” by haemochromatosis, having endured battles with blood iron levels since he was diagnosed in 1998, culminating in liver cancer. Read more

What is Transferrin Saturation ?

What is Transferrin Saturation - and why is it important to keep it at the correct levels? Read more

Anna's story

The real-life story of one young woman's experience of genetic haemochromatosis - "It may be rare, but it's real to me". Read more

Gail Pearce Volunteer Designer

Gail Pearce explains why she volunteers for HUK Read more

I think I’d heard of the condition before but I didn’t know anything about it.

was diagnosed with haemochromatosis following a few joint aches and pains that had been dismissed as part of getting older and being busy. I did a blood test and saw that I had really high iron levels, so went to my GP for full blood counts and was diagnosed. Read more

The information I’ve had from the charity has always been really useful, especially when it comes to sharing it with family so they can understand it too.

My haemochromatosis diagnosis was pretty unexpected. I was diagnosed with Type 2 diabetes in the late ‘90s and my endocrinologist just couldn’t understand why. Read more

It was such a relief to have an explanation for how ill and tired I’d been feeling.

I’d felt pretty unwell for a while before I was diagnosed with haemochromatosis. I was feeling weak, tired, breathless and had quite a lot of joint pain. Read more

I really had to push to get a diagnosis and at times it felt like it would be easier to just give up, but I felt so strongly about it.

I had known about haemochromatosis for a long time as my dad had been diagnosed with it. At the time - about 20 years ago - we thought it was unlikely that I’d have it too and going to the doctor when you felt healthy wasn’t really the “done thing”. You didn’t really go to the doctors if you felt well, and no-one requested tests like they do now. Read more

Latest

Haemochromatosis Awareness Week '22
QUB Student Nurses Event

An introduction to genetic haemochromatosis for student nurses training at Queen's University Belfast.
RCN Congress 2023

Join us at this year's Royal College of Nursing Congress to discover our range of eLearning and venesection best practice solutions.
Julie’s Birthday Fundraiser

It is my birthday on 9th July and I would like to raise funds for Haemochromatosis UK, in memory of my husband Nigel, who died in 2021, as a result of this condition.

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
Genetic Testing for Haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Treatment & care
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 28th July 2021.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.