Skip over main navigation
  • Log in
  • Basket: (0 items)
Haemochromatosis UK
☏ Help LineTest Kit MembershipDonate 
  • Twitter
Menu
  • Get help
    • Newly Disagnosed Essentials
    • Be a Member
    • Our Advice Services
    • Our Genetic Testing
    • Our Vita Vibes
  • Info
    • What is GH
    • All our guides
    • Videos
    • Type 1 GH
    • All Types of GH
    • Treatment & care
    • Talking about GH
    • Blood Donation in the UK
    • Private venesections
    • FAQs
  • Get involved
    • Be a Member
      • Be a Member
      • Members Only
    • Be a Friend
    • Be a Champion
    • Give money
      • Donate to HUK
      • Our appeals
      • A gift in your will
      • Online shopping partners
      • Pay In money you've raised
    • Give time, volunteer
      • Change the world
      • Current opportunities
    • Fundraise for us
      • Fundraising for us
      • Fundraising Events
      • Set up a fundraising page
      • Pay in money you've raised
    • Campaign with us
  • For health workers
    • Intro for Clinicians
    • Clinical guidelines
    • Clinician events
    • Primary care
      • Diagnosis & care
      • GP training
      • Pharmacy
    • Secondary care
      • Nursing
      • Arthropathy
      • Venesection Best Practice
    • Medical research grants
    • Clinic Packs
  • News/Events
    • News
    • All Events
    • Iron Brews / Socials
    • Fundraising Events
    • Our blog
  • Shop
  • About us
    • Our charity
      • Our trustees
      • Our team
      • Our clinical advisors
      • All Party Parliamentary Group
    • Our projects
      • Pass it On England
      • Research
      • Venesection best practice
    • Careers
    • Contact us
  • Admin
    • Log in
  • Basket: (0 items)

Our team

Our charity is run day-to-day by our executive team, supported by our wonderful volunteers.

Executive Team

Jonathan Jelley MBE JP - CEO 

Jonathan enjoyed a distinguished international career in investment banking, holding senior executive positions with leading global financial institutions. As Vice President, he led strategic business development and managed major commercial relationships across international markets, delivering significant growth and long-term partnerships.
Alongside his professional career, Jonathan has devoted more than 30 years to public service and voluntary leadership. He served SSAFA, the Armed Forces charity, rising from local branch leadership to National Trustee and National Vice Chairman, and led the charity’s first strategic review in its 130-year history. In recognition of his service, he was appointed MBE in Her Late Majesty Queen Elizabeth II’s Birthday Honours in 2012 and awarded SSAFA Honorary Life Membership in 2019.
Appointed by the Minister of State for Veterans as Chairman of the East of England Veterans Advisory and Pensions Committee, Jonathan advised government on veterans’ welfare, equality of access and delivery of the Armed Forces Covenant across the region.
A Presiding Justice since 2006 and a Freeman of the City of London, Jonathan is a prominent civic and community leader. He chairs Peterborough Council for Voluntary Service, Healthwatch Cambridgeshire & Peterborough and the Peterborough Cathedral Preservation Trust. He serves on the Board of the Cambridgeshire Community Foundation and Peterborough City Council’s Towns Fund Board, and mentors entrepreneurs and social enterprises through the Allia Future Business Centre.
In 2026, he was appointed inaugural Chair of one of Peterborough’s Pride in Place Neighbourhood Boards, bringing together residents, businesses and public services to drive community-led improvements and strengthen neighbourhood pride.

Neil Irwin - Philanthropy Manager  

Neil Irwin joined Haemochromatosis UK in January 2022 with over 25 years professional fundraising experience. Previously Neil has worked as fundraiser for the National Trust, Northern Ireland Hospice and with the Northern Ireland Council for Voluntary Action (NICVA) where he established the charity Will to Give and the website Grant Tracker. Through his fundraising consultancy business Neil has worked with many household name charities across the UK specialising in raising funds from independent grant-making trusts, National Lottery, statutory grants and supporting philanthropic giving.

As a volunteer Neil has worked with the Irish Football Foundation, school PTA committees, the Victoria Homes Trust and started with HUK as a volunteer

Diogo Gomes - Advanced Nurse Practitioner: Information & Advisory

Diogo joined Haemochromatosis UK in September 2021. He qualified as Registered Adult Nurse in Portugal in 2013. He then moved to UK where he gained experience in different settings, ranging from primary and secondary care. His career evolved over the years with professional achievements in different roles within nursing, including Deputy Charge Nurse within an NHS Trust. This lead him to undertake a Postgraduate in Advanced Practice and he has been working as Advanced Nurse Practitioner in acute medicine since 2019,  giving him a broader experience and knowledge of different health conditions. Within this role he facilitated the care between community and acute care, contributing actively for the provision of care at home enhancing the patient’s experience and wellbeing.

Victoria Pointon - Nurse: Information & Advisory

Victoria joined Haemochromatosis UK in October 2022. She qualified as a Registered General Nurse in London in 1996. Her background is in surgical nursing-including Burns, plastic reconstructive surgery and Head & Neck cancer nursing.

She left her role as a Plastic surgery Nurse Practitioner to enjoy raising her three children but maintained her Professional registration during this time. 

More recently she volunteered at her children's Secondary school to help undertake their COVID testing program and went on to deliver the Covid vaccinations in hospital, schools and communities.

Her free time is spent at the gym, walking the dog -but mostly ferrying her children to various different sporting and social activities.

Alex Macdonald - Bookeeper

Alex joined Haemochromatosis UK in January 2024 and has previously worked in a similar position across several non-for-profits after completing her AAT qualification back in 2017.

Her career in finance followed on from a semi-professional Cricket career, and she still enjoys playing an array of sports, staying fit by going to the gym, hiking and walking her beloved rescue dog Raggs.

Abbie Forman - Volunteer Coordinator & Administrator 

Abbie joined Haemochromatosis UK in May 2024 as Volunteer Coordinator & Administrator. This follows 2 years working as a Community Connector for Age UK Lincoln and South Lincolnshire. In this role, she supported patients with hospital discharge planning, ensuring that individuals had the social support they needed to allow them to continue to live independently at home. In 2023 she was Highly Commended for a Customer Experience Award following just 1 year of service. 

In her free time Abbie loves nothing more than to spend time with her family.

Liz Tamplin - Charity Administrator 

Liz Joined Haemochromatosis UK in November 2021 after 4 years of being a self-employed Administrative Assistant and Project Manager.

Following an early career in catering, Liz has experience in Palliative care as a coordinator for the Marie Curie Rapid Response nurses, as well as finance, training and management.
At home Liz has 2 young Children and a husband that keep her busy when she is not in the office.

Published: 18th December, 2019

Updated: 10th July, 2026

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Latest

  • Haemochromatosis UK Appoints CEO

    Haemochromatosis UK Appoints CEO

    Join us in congratulating Jonathan Jelley MBE JP on his appointment as Chief Executive Officer of Haemochromatosis UK.

  • Helpline Closure - 17th July

    Helpline Closure - 17th July

    Our Helpline will be closed for the day on Friday 17th July.

  • Member-led Iron Brew in Draperstown

    Member-led Iron Brew in Draperstown

    Join Charity Member and We Are Overloaded participant, Sarah, and Haemochromatosis UK Philanthropy Manager Neil Irwin at this very special, in person Iron Brew social gathering in Draperstown.

  • What are we up to during International Awareness Week?

    What are we up to during International Awareness Week?

    The 1st - 7th June 2026 is Word Haemochromatosis Awareness Week! Find out how we will be raising awareness across the UK!

Related

  • Our New National Headquarters

    Our New National Headquarters

    HUK moves offices from Rugby to Spalding in Lincolnshire.

  • Genetic Haemochromatosis Education Programme Launches

    Genetic Haemochromatosis Education Programme Launches

    The Genetic Haemochromatosis Education Programme (GHEP) is a three year programme that aims to educate healthcare professionals about genetic haemochromatosis.

Most read

  • Order a Test Kit Today!

    Order a Test Kit Today!

    A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now.

  • What is genetic haemochromatosis?

    What is genetic haemochromatosis?

    Genetic haemochromatosis (GH) is a genetic disorder that increases the risk of the body absorbing an excessive amount of iron from the diet.

  • Breakfast Cereals and their Iron Content

    A rough guide to the Iron content in cereals

  • Treatment & Care

    Treatment & Care

    With treatment, many people live full and active lives with genetic haemochromatosis. Here's what to expect.

  • Clinical Guidelines for Genetic Haemochromatosis

    Clinical Guidelines for Genetic Haemochromatosis

    Published in 2025, this patient-centred guideline sets out a framework for high-quality, evidence-based care in primary and secondary care settings for people with genetic haemochromatosis.

  • HFE (Type 1) Genetic Haemochromatosis

    HFE (Type 1) Genetic Haemochromatosis

    Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.

  • Employers' guide to haemochromatosis

    Employers' guide to haemochromatosis

    People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.

  • Haemochromatosis Carriers

    Carrier is the term used when someone has been shown to have inherited a single copy of the HFE gene mutation from one of the parents. This is sometimes called a heterozygous carrier. Carriers might be at risk of iron loading.

  • H63D carrier (also known as “H63D heterozygous”)

    If you are a “H63d carrier” it means that you have inherited a single copy of the H63d variant from one of your parents.

  • Help lines

    Help lines

    Our help lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.

Tag cloud

In Memory

Sign up for our monthly newsletter

Please enter your first name
Please enter your last name
Please enter your email address Please enter a valid email address (e.g. [email protected])
  • Contact us
  • Our Policies
  • Privacy Policy
  • Accessibility
  • Sitemap
  • Twitter
  • Facebook
  • YouTube
  • Linkedin

Registered office: The Flaxmill, Flaxmill Lane, Pinchbeck, Spalding PE11 3YP.
Phone: 03030 401 101 / Email: [email protected] / Open: Mon–Fri 9am–3pm

Registered as Charity number 1001307 and SCO41701. Company Limited by Guarantee No. 2541361.
Copyright © 2026 Haemochromatosis UK. All Rights Reserved.

© 2026 Haemochromatosis UK

Manage Cookie Preferences