Our team Our charity is run day-to-day by our executive team, supported by our wonderful volunteers. Executive Team Neil McClements - Chief Executive Neil joined Haemochromatosis UK as Chief Executive in July 2019, having previously been a trustee of the charity. Following a successful career in software engineering entrepreneurship, he previously led a rare disease charity that supports people affected by adrenal insufficiency, achieving a British Medical Association commendation for an Amazon Top 70 book on Addison's Disease. In 2018, he was awarded the National Patient Safety Learning Award, and was a finalist in the AbbVie Better Health Awards, having launched a project as a volunteer to improve nursing best practice for people affected by haemochromatosis, myeloproliferative disorders and rare cancers. Neil led the charity's team to win the prestigious British Journal of Nursing Nurse of the Year award. He is currently a trustee of the Genetic Alliance, which works to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions. He is a former trustee of the British Liver Trust which works to support people affected by liver disease. Neil Irwin - Philanthropy Manager Neil Irwin joined Haemochromatosis UK in January 2022 with over 25 years professional fundraising experience. Previously Neil has worked as fundraiser for the National Trust, Northern Ireland Hospice and with the Northern Ireland Council for Voluntary Action (NICVA) where he established the charity Will to Give and the website Grant Tracker. Through his fundraising consultancy business Neil has worked with many household name charities across the UK specialising in raising funds from independent grant-making trusts, National Lottery, statutory grants and supporting philanthropic giving. As a volunteer Neil has worked with the Irish Football Foundation, school PTA committees, the Victoria Homes Trust and started with HUK as a volunteer Diogo Gomes - Advanced Nurse Practitioner: Information & Advisory Diogo joined Haemochromatosis UK in September 2021. He qualified as Registered Adult Nurse in Portugal in 2013. He then moved to UK where he gained experience in different settings, ranging from primary and secondary care. His career evolved over the years with professional achievements in different roles within nursing, including Deputy Charge Nurse within an NHS Trust. This lead him to undertake a Postgraduate in Advanced Practice and he has been working as Advanced Nurse Practitioner in acute medicine since 2019, giving him a broader experience and knowledge of different health conditions. Within this role he facilitated the care between community and acute care, contributing actively for the provision of care at home enhancing the patient’s experience and wellbeing. Victoria Pointon - Nurse: Information & Advisory Victoria joined Haemochromatosis UK in October 2022. She qualified as a Registered General Nurse in London in 1996. Her background is in surgical nursing-including Burns, plastic reconstructive surgery and Head & Neck cancer nursing. She left her role as a Plastic surgery Nurse Practitioner to enjoy raising her three children but maintained her Professional registration during this time. More recently she volunteered at her children's Secondary school to help undertake their COVID testing program and went on to deliver the Covid vaccinations in hospital, schools and communities. Her free time is spent at the gym, walking the dog -but mostly ferrying her children to various different sporting and social activities. Abbie Schweikhardt- Volunteer Coordinator & Administrator Abbie joined Haemochromatosis UK in May 2024 as Volunteer Coordinator & Administrator. This follows 2 years working as a Community Connector for Age UK Lincoln and South Lincolnshire. In this role, she supported patients with hospital discharge planning, ensuring that individuals had the social support they needed to allow them to continue to live independently at home. In 2023 she was Highly Commended for a Customer Experience Award following just 1 year of service. In her free time Abbie loves nothing more than to spend time with her family. Liz Tamplin - Charity Administrator Liz Joined Haemochromatosis UK in November 2021 after 4 years of being a self-employed Administrative Assistant and Project Manager. Following an early career in catering, Liz has experience in Palliative care as a coordinator for the Marie Curie Rapid Response nurses, as well as finance, training and management. At home Liz has 2 young Children and a husband that keep her busy when she is not in the office. Manage Cookie Preferences