About us Our team Our team Our charity is run day-to-day by our executive team, supported by our wonderful volunteers. Executive Team Neil McClements - Chief Executive Neil joined Haemochromatosis UK as Chief Executive in July 2019, having previously been a trustee of the charity. Following a successful career in software engineering entrepreneurship, he previously led a rare disease charity that supports people affected by adrenal insufficiency, achieving a British Medical Association commendation for an Amazon Top 70 book on Addison's Disease. In 2018, he was awarded the National Patient Safety Learning Award, and was a finalist in the AbbVie Better Health Awards, having launched a project as a volunteer to improve nursing best practice for people affected by haemochromatosis, myeloproliferative disorders and rare cancers. Neil is currently a trustee of the Genetic Alliance, which works to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions. He is a former trustee of the British Liver Trust where he advised on volunteer management and fundraising. Vicki Lunn - Office, Membership & Clinical Trials Administrator Vicki joined Huk in 2020. Her career before HUK has been varied. Vicki gained a degree in Travel and Tourism Management after school and worked for a local Tourism company as the Marketing Officer promoting The Fens as a holiday destination. This was an EU funded project and once this funding finished she went to work in Peterborough helping Businesses to become more environmentally friendly. During working here Vicki enjoyed running training courses and found the calling to work in Education. Vicki had then been teaching for the last 13 years in Primary schools around Spalding. Being a teacher had enabled her to help others grow and fulfil their potential. She feels working for HUK will use her skills and knowledge to help with the successful running of the HUK office which is doing such amazing work to help those suffering with the condition and to promote the charity as a whole. Bonney Baggley - Senior Grants & Trusts Fundraiser Bonney joined Huk in 2020. For the last 3 years she was the Chief Operations Officer for a national education organisation that raised awareness of the difficult social issues that young people face including trafficking and radicalisation. For a short time within that 3 year period she also developed awareness courses for WLDAS, these courses were designed for victims of domestic abuse to help reduce the risk of victims returning to the perpetrator. Bonney’s post before this was within the Healthcare Sector where she was responsible for the project management of the Early Presentation Strategy with the outcome of people presenting symptoms of cancer earlier to their General Practitioner. The strategy was adopted by the Public Health Team and continues to be in use today. Throughout her career, Bonney has secured large sums of funding and will be able to utilise those skills within her role here at Huk. Elizabeth Lang -Social Media Community & Volunteer Manager Elizabeth joined HUK in July 2020 for the last 2 years she has worked as a Community Fundraiser for a Disability Charity in East Sussex. During this time, she organised and delivered a wide range of events, managed multiple supporter communication methods, produced marketing plans, made grant and trust applications and managed volunteers. Prior to this, Elizabeth lived in Australia for 4 years where she worked for The Royal Life Saving Society as Project Manager. She applied for and maintained all State Government funding and identified other fundraising avenues. She also organised large-scale events and managed volunteers. Elizabeth holds several education and training qualifications which helped her to develop multiple education programmes for at-risk communities, including refugees. Elizabeth’s background is in Facility Management where she specialised in health and safety, policies and procedures, risk assessment, inductions and training. Sara Last - Financial Controller Sara joined HUK in February 2019 having been working in accountancy, payroll and HR for many years. She lives in Northamptonshire with her husband, daughter and dog, and has two sons who have flown the nest! Sara has an BSc Honours degree in Social Sciences and is studying for a Masters degree in Human Resource Management. She is currently implementing a new financial accounting system to carry HUK forward . Her interests include following football and Rugby Union, and travelling. Gerri Mortimore - Education Programme Manager Gerri Mortimore is a Registered General Nurse with over 37 years’ experience, spanning both acute medical and surgical nursing within the UK and abroad. This has given her unique perspective which can be applied to various settings. For the last 3 years she has worked in an academic role as a Post Graduate lecturer in Advanced Practice, teaching advanced practice skills to allied health professionals and is a qualified practice teacher and a Fellow of the Higher Education Academy. Prior to this, Gerri worked as the Lead Clinical Nurses Specialist in Hepatology and set up nurse led clinics in alcohol/fatty liver/autoimmune liver disease/viral hepatitis and Haemochromatosis. In addition, she organised surveillance for all cirrhotic liver patients, in line with NICE Guidance and set up a nurse led paracentesis service. She was also actively involved in medical, nursing and allied professional health teaching as well as audit and research. This expert knowledge in liver disease, has enabled Gerri to publish widely in many nursing, prescribing and medical journals. In addition, she has a National profile and has been involved in writing Quality Standards and NICE Guidelines and because of her contribution has been awarded the title of NICE nurse expert advisor. Gerri is now undertaking her PhD. Helen Bethell - Registered Genetic Counsellor Helen began her genetics journey when she studied Genetics at The University of Sheffield, graduating in 2001. After time out to do some charity work and travelling, Helen went on to achieve an MSc in Genetic Counselling from The University of Manchester before completing a trainee post at the Northern Genetic Service (NHS). Helen then went on to qualify as a teacher of science in 2007 and worked in secondary schools before returning to the world of Genetics and achieving GCRB registered accreditation in 2018. Helen has a keen interest in combining both her education and genetic specialisms, and recently produced a series of genomics educational packages for nursing and medical undergraduates with HEE and the West Midlands GMC. Helen continues to work part time for the NHS, covering a diverse case load of cancer, general and prenatal work and enjoys opportunities to deliver educational sessions to a range of audiences. Through her NHS work, Helen is aware of the move for common conditions such as haemochromatosis to be passed to primary care for testing and management. This can lead to some patients lacking the genetic counselling support that they and their family members need. By joining HUK in 2020, Helen hopes to work towards bridging that gap. Outside of work Helen loves being mum to her 2 children, short distance running, crocheting, as well as voluntary and fundraising work.