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  1. Home
  2. Videos

Videos

We have gathered together a selection of our videos here. For further videos, check out our YouTube channel.

Genetic Haemochromatosis : Joint pain and arthropathy with Professor Patrick Kiely

Genetic Haemochromatosis : Joint pain and arthropathy with Professor Patrick Kiely

Professor Kiely, Consultant Rheumatologist at St George's Medical School in London explains the current state of the art treatment for people with GH-induced joint pain, as well as answering questions from the floor. Read more

Published: 15th August, 2023

Author: Neil McClements

Latest innovations in non-invasive MRI scanning for Genetic Haemochromatosis

Latest innovations in non-invasive MRI scanning for Genetic Haemochromatosis

This webinar was presented in July 2023 by Dr Tim St Pierre of Resonance Health. Tim is Professor in the School of Physics, Maths and Computing at University of Western Australia with a particular research interest in iron overload disorders. Read more

Published: 14th August, 2023

Author: Neil McClements

APPG Presentation : An update on our charity's genetic screening initiative

APPG Presentation : An update on our charity's genetic screening initiative

This presentation provides an update on the status of genetic screening in the UK, including new screening initiatives led by our charity. Read more

Published: 8th July, 2021

Author: Neil McClements

APPG Presentation : The case for screening for genetic haemochromatosis in adults

APPG Presentation : The case for screening for genetic haemochromatosis in adults

This presentation was delivered to the All-Party Parliamentary Group on Genetic Haemochromatosis in February 2021. Read more

Published: 8th July, 2021

Author: Neil McClements

Seminar : Joint pain and arthropathy

Seminar : Joint pain and arthropathy

Dr Patrick Kiely from St George's Hospital, London, discusses haemochromatosis arthropathy. Read more

Published: 8th July, 2021

Author: Neil McClements

Panel discussion : GH around the world

Panel discussion : GH around the world

Join HUK CEO Neil McClements and panelists from GH patient groups around the world to discuss common interests and different approaches to genetic haemochromatosis internationally. Read more

Published: 8th July, 2021

Updated: 26th July, 2021

Author: Neil McClements

Seminar : Living with genetic haemochromatosis with Dr Ted Fitzsimmons

Seminar : Living with genetic haemochromatosis with Dr Ted Fitzsimmons

In this seminar, Professor Fitzsimons provides an overview of genetic haemochromatosis, how it's diagnosed and the recommend care pathways in the UK. Read more

Published: 8th July, 2021

Updated: 26th July, 2021

Author: Neil McClements

Helpful breathing techniques

Helpful breathing techniques

Some people can get nervous about medical procedures, especially before a venesection or blood test. We share a simple breathing technique, which can help. Read more

Published: 16th September, 2020

Updated: 9th March, 2023

Author: Neil McClements

Back to top

Latest

  • Haemochromatosis UK Appoints CEO

    Haemochromatosis UK Appoints CEO

    Join us in congratulating Jonathan Jelley MBE JP on his appointment as Chief Executive Officer of Haemochromatosis UK.

  • Helpline Closure - 17th July

    Helpline Closure - 17th July

    Our Helpline will be closed for the day on Friday 17th July.

  • Member-led Iron Brew in Draperstown

    Member-led Iron Brew in Draperstown

    Join Charity Member and We Are Overloaded participant, Sarah, and Haemochromatosis UK Philanthropy Manager Neil Irwin at this very special, in person Iron Brew social gathering in Draperstown.

  • What are we up to during International Awareness Week?

    What are we up to during International Awareness Week?

    The 1st - 7th June 2026 is Word Haemochromatosis Awareness Week! Find out how we will be raising awareness across the UK!

Most read

  • Order a Test Kit Today!

    Order a Test Kit Today!

    A GH test direct from the charity, a result within two weeks of return and a consultation with our Advanced Nurse Practitioner. Available online now.

  • What is genetic haemochromatosis?

    What is genetic haemochromatosis?

    Genetic haemochromatosis (GH) is a genetic disorder that increases the risk of the body absorbing an excessive amount of iron from the diet.

  • Breakfast Cereals and their Iron Content

    A rough guide to the Iron content in cereals

  • Treatment & Care

    Treatment & Care

    With treatment, many people live full and active lives with genetic haemochromatosis. Here's what to expect.

  • Clinical Guidelines for Genetic Haemochromatosis

    Clinical Guidelines for Genetic Haemochromatosis

    Published in 2025, this patient-centred guideline sets out a framework for high-quality, evidence-based care in primary and secondary care settings for people with genetic haemochromatosis.

  • HFE (Type 1) Genetic Haemochromatosis

    HFE (Type 1) Genetic Haemochromatosis

    Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.

  • Employers' guide to haemochromatosis

    Employers' guide to haemochromatosis

    People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.

  • Haemochromatosis Carriers

    Carrier is the term used when someone has been shown to have inherited a single copy of the HFE gene mutation from one of the parents. This is sometimes called a heterozygous carrier. Carriers might be at risk of iron loading.

  • H63D carrier (also known as “H63D heterozygous”)

    If you are a “H63d carrier” it means that you have inherited a single copy of the H63d variant from one of your parents.

  • Help lines

    Help lines

    Our help lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.

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