Panel discussion : GH around the world

Join HUK CEO Neil McClements and panelists from GH patient groups around the world to discuss common interests and different approaches to genetic haemochromatosis internationally. Panellists include : Sandra Dalpe (Canada) Dianne Prince (Australia) Gerri Mortimore (UK) Miriam Forde (Ireland)

Read the transcript of this session.

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Doing it for Col 💪🏽

As a family we wanted to raise some awareness of this awful condition that contributed to the loss of someone very special to us.
December 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.
November 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.
October 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.

Genetic Haemochromatosis : Joint pain and arthropathy with Professor Patrick Kiely

Professor Kiely, Consultant Rheumatologist at St George's Medical School in London explains the current state of the art treatment for people with GH-induced joint pain, as well as answering questions from the floor.
Latest innovations in non-invasive MRI scanning for Genetic Haemochromatosis

This webinar was presented in July 2023 by Dr Tim St Pierre of Resonance Health. Tim is Professor in the School of Physics, Maths and Computing at University of Western Australia with a particular research interest in iron overload disorders.
APPG Presentation : An update on our charity's genetic screening initiative

This presentation provides an update on the status of genetic screening in the UK, including new screening initiatives led by our charity.
APPG Presentation : The case for screening for genetic haemochromatosis in adults

This presentation was delivered to the All-Party Parliamentary Group on Genetic Haemochromatosis in February 2021.
Seminar : Joint pain and arthropathy

Dr Patrick Kiely from St George's Hospital, London, discusses haemochromatosis arthropathy.
Seminar : Living with genetic haemochromatosis with Dr Ted Fitzsimmons

In this seminar, Professor Fitzsimons provides an overview of genetic haemochromatosis, how it's diagnosed and the recommend care pathways in the UK.
“I was convinced my liver cancer was terminal” – second chance after genetic diagnosis

A nagging sore shoulder led businessman Nick Hopkinson MBE down a path which saw him diagnosed with haemochromatosis, and having half his liver removed to save his life from cancer.
Helpful breathing techniques

Some people can get nervous about medical procedures, especially before a venesection or blood test. We share a simple breathing technique, which can help.

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Breakfast Cereals and their Iron Content

A rough guide to the Iron content in cereals
Treatment & care
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.