Our clinical advisors As a charity, we are fortunate to enjoy good relationships with clinicians up and down the country. In September 2019, we sought to enrich and deepen our clinical relationships with the foundation of a new Clinical Advisory Panel (CAP), chaired by Dr Jeremy Shearman, Consultant Gastroenterologist. Our Clinical Advisory Panel meets quarterly, to consider areas of common interest and concern between people with genetic haemochromatosis and the NHS. The CAP represent a diverse and expert group of clinicians, covering the full range of clinical specialities involved in haemochromatosis care. This collaborative approach has already yielded a series of new “CAP approved” leaflets and materials, including a “guide to talking about GH with family & friends” and “Venesection Best Practice Guide for Nurses & Healthcare Practitioners”. Look out for our publications marked "CAP Reviewed & Approved", which have been rigorously reviewed to ensure medical accuracy, clinical effectiveness and helpful information for people with genetic haemochromatosis. Our clinical advisors include Dr Jeremy Shearman Consultant Gastroenterologist, South Warwickshire NHS Foundation Trust Chair of CAP Dr Jeremy Shearman is the Chair for the CAP. He is a gastroenterologist and hepatologist and has been a Consultant at Warwick Hospital since 2000. He has long and broad experience in assessing and managing gastrointestinal symptoms and complaints including reflux and other functional gastrointestinal disorders (such as IBS). He has a particular interest in liver disease and is an expert in the clinical management of haemochromatosis. His initial interest in the clinical management of the condition led him to undertaking a period of laboratory research culminating in a DPhil thesis on the molecular genetics of haemochromatosis. His main interests in the condition are patient education and quality of clinical care. Dr Shearman has worked closely with Haemochromatosis UK over the years, and has acted as a speaker at patient conferences. He has also been key in speaking to the media about the condition, raising public awareness of haemochromatosis. Dr Susan Hancock Fellow of the Royal College of General Practitioners Dr Susan Hancock received an MB BS from University College London in 1980 and has gone on to receive qualifications from the Royal College of Paediatrics and Child Health, the Royal College of Obstetrics and Gynaecologists, and the Royal College of General Practitioners. Dr Hancock is a practicing General Practitioner and post graduate medical educator for the North West Deanery Post Graduate Department of General Practice for over 20 years in the role of GP tutor for Blackburn and Course organiser for East Lancs Training scheme. She started at UCLAN Medical School as a Problem based Learner facilitator Sept 2015 at the beginning of the Medical School. Dr Hancock is now responsible for facilitating Professionalism, Ethics, Portfolio Based Learning and Communication skills for year one MB BS. Dr Patrick Kiely PhD, FRCP Consultant Rheumatologist, St George’s University Hospitals NHS Foundation Trust At St George’s, Dr Kiely runs special interest clinics for patients with rheumatoid arthritis, vasculitis, myositis and haemochromatosis arthropathy. He was a member of the NICE guideline development group for rheumatoid arthritis. He has served on several British Society for Rheumatology committees and is currently an Associate editor for Rheumatology. His research interests include the fields of rheumatoid arthritis outcomes, biologic optimisation, myositis, ILD and haemochromatosis arthropathy. Dr Kiely was a co-founder of the Haemochromatosis Arthropathy Research Initiative (HARI), with rheumatologists from France, Germany, Australia and Austria. HARI has produced patient information materials on how to diagnose the condition, management of symptoms (including pain) and bone health. In 2018 HARI was accepted by the European League against Rheumatism (EULAR) as a formal study group and current work of the group is the development of a systematic literature review as the first step to development of classification criteria for haemochromatosis arthropathy. “I am very pleased to work with this fantastic patient society that does so much to support those with Haemochromatosis. The arthritis is a huge challenge for many and together with HUK we hope to improve this situation” – Dr Patrick Kiely Dr Bill Griffiths FRCP Consultant Hepatologist, Cambridge Universities Hospitals NHS Foundation Trust Dr Bill Griffiths is a Consultant Hepatologist at Addenbrooke’s Hospital, a well renowned liver transplant unit. He served for 10 years on the British Association Study of Liver (BASL) education committee, is the lead for the BASL UK Wilson’s disease special interest group and is the National Lead for overseeing hepatology training within the UK. Dr Griffiths’ special interest is adult metabolic liver disease and research area is mainly haemochromatosis for which he is widely renowned as an expert on the condition. He has written several reviews and book chapters on haemochromatosis and lectured extensively. He published a seminal paper in 2010 on ferroportin disease and was on the BSH UK guideline authorship for genetic haemochromatosis and raised serum ferritin. In 2018 he was one of the lead authors on the HUK report: Living with the Impact of Iron Overload. Looking forward to see “what we can do to improve management for haemochromatosis across the UK” – Dr Bill Griffiths Professor David Melzer Epidemiologist, University of Exeter Professor David Melzer is currently a Professor of Epidemiology and Public Health at the University of Exeter Medical School and holds a professorship at the University of Connecticut. He concentrates on research on genetic and conventional factors influencing how people age. Professor Melzer has received a Harkness Fellowship in 1998, spent at the Guralnik laboratory at the US National Institute on Aging. He was formerly Director of the Epidemiology for Policy Group, in the Department of Public Health and Primary Care, University of Cambridge. He leads UK Medical Research Council projects analysing data from the UK Biobank study, a genetics cohort of 500,000 adults aged 40 to 70 from across England, Wales and Scotland. Professor Melzer and colleagues reported on the health problems associated with the haemochromatosis HFE mutations in the Biobank. The results from Professor Melzer’s work have attracted international attention in the media and in health policy circles. Professor Edward (Ted) Fitzsimons Consultant Haematologist and Honorary Clinical Associate Professor, University of Glasgow Medical School Professor Fitzsimons is a well-respected clinician and researcher who has worked closely with Haemochromatosis UK, and has acted as a speaker at several HUK meetings and most recently at the HUK conference 2019 and keynote speaker to deliver the Fernau Lecture at the HUK Venesection Study Day 2019. He was lead author of the new British Society for Haematology (BSH) clinical guidelines for the treatment of iron overload and is a medical adviser to the All Party Parliamentary Group for Genetic Haemochromatosis. In 2015 Professor Fitzsimons designed and worked on a study with a team of doctors and scientists which researched and developed a hospital laboratory pathway to improve the diagnosis of genetic haemochromatosis in primary care. The research, which was originally published in the journal of Clinical Pathology, was also incorporated into the new BSH Guidelines which was published in the British Journal of Haematology in 2018. Over the years Professor Fitzsimons has spoken to the media as a leading expert on haemochromatosis and through this has appeared on such shows as BBC Radio 4 Inside Health and BBC Radio Scotland. Professor Peter Hindmarsh Peter Hindmarsh is Professor of Paediatric Endocrinology at University College London and Consultant in Paediatric Endocrinology and Diabetes at University College London Hospitals and Great Ormond Street Hospital for Children. He is currently Divisional Clinical Director for Paediatrics at University College London Hospitals. Dr Johnny Cash Consultant Hepatologist, Belfast Health & Social Care Trust Dr Johnny Cash is a Consultant Hepatologist at the NI Regional Liver Unit, Royal Victoria Hospital. He graduated from Queens University, Belfast, in 1998 and completed his postgraduate training in Gastroenterology and Hepatology in the Northern Ireland deanery following a liver transplant fellowship in Dublin. He also completed an MD which included studying the effects of iron overload on vascular and endothelial function. He has clinical interests in Haemochromatosis and the complications of liver cirrhosis. In addition to his clinical work he has a major interest in improvement of healthcare services and has held a number of leadership roles, including Assistant Medical Director in Belfast Health & Social Care Trust (BHSCT) for continuous improvement, clinical lead of the Ambulatory Care Centre and clinical lead of the regional liver unit. He was awarded the institute of healthcare management Medical Leader of the year award (NI) in 2013. He was also a board member of the Irish society of Gastroenterology 2011-2017.