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Liver cancer ten times more likely in men with GH

Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study.
The Big Give 2020

The Christmas Challenge. One donation, twice the impact. The Big Give runs the UK’s biggest match funding campaign, The Christmas Challenge. For seven days, it offers supporters of Haemochromatosis UK the opportunity to have their donation doubled.
Improvements to GH Donor Arrangements

We work closely with NHS blood donation services across the UK, to improve the opportunities for people with genetic haemochromatosis (GH) to become blood donors. Learn about some forthcoming changes to these schemes in England and Scotland.
That'll be The Day Christmas Show

That’ll Be The Day’s Rock & Roll Christmas show has been running for over thirty years. Thanks to the Independent Age Foundation, we are very excited to offer you the chance to see the brand new Christmas show in the comfort of your own home!

In memory of Lindsay Forsyth

Lindsay was officially diagnosed with Haemochromatosis about 3 years ago, which for people unfamiliar with the genetic condition, is excessively high blood iron levels. Lindsay would attend hospital every two weeks to have some blood removed and this helped to bring down her iron levels over time (though by the time she passed away they were still really high).

Unfortunately high blood iron levels are a big risk factor for other complications, most notably liver disease.
Great North Run half marathon for Dad

In memory of Dad who sadly passed away aged 58 just before Christmas 2019 with liver cancer caused by Haemochromatosis.
Travelers outreach

Our project, in collaboration with Breaking Down Barriers and the Sylvia Adams Charitable Trust, is working with the Irish travelling community to raise awareness of genetic haemochromatosis.
Helplines

Our helpline is available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
Projects
Raising awareness with Endocrinologists

HUK is represented for the first time at the Annual General Conference for Endocrinologists. It will allow strengthening collaborations with other charity organisations and across a global community of Endocrinologists.
HUK Strengthens Role Within Genetic Alliance UK

The members of Genetic Alliance UK voted to appoint Haemochromatosis UK’s Chief Executive, Neil McClements to its board of trustees, earlier this month.
Your Patient Will See You Now

Haemochromatosis UK announce they have received a grant from the National Lottery Community Fund to further develop our “people-powered” clinical awareness raising.
Cutting Edge MRI Technology Used in New Study to Identify Genetic Causes of High Liver Iron

Perspectum Diagnostics have just released study findings that use MRI technology to identify genetic causes of high liver iron.
Finalists for the Better Health Awards

Haemochromatosis UK finalists for the AbbVie Big Ideas for Better Health Awards.