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  • talking-to
  1. Get help
  2. Talking about GH

Talking about...

"Genetic Haemochromatosis"

Even the name can be tricky to say – which is why it’s often called GH. Finding the right words to explain GH to family, friends and employers can be difficult. We hope these brief guides will help you to explain GH when you need to.

Overcoming blood and needle phobias

Overcoming blood and needle phobias

A phobia is a type of anxiety disorder in which a person develops an overwhelming and devastating fear about a situation, place, object, animal, or insect. This guide provides helpful techniques to reduce anxiety. Read more

Published: 17th September, 2020

Author: Neil McClements

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Explaining genetic haemochromatosis to friends & family

Explaining genetic haemochromatosis to friends & family

When you have GH it’s important to tell your adult family members as they might be at risk of iron overload. This includes your biological parents, sisters, brothers, their children, and your own children. Read more

Published: 18th December, 2019

Updated: 27th January, 2020

Author:

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Employers' guide to haemochromatosis

Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace. Read more

Published: 18th December, 2019

Updated: 24th April, 2020

Author:

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Talking with young people about haemochromatosis

Talking with young people about haemochromatosis

Talking with young people about haemochromatosis requires care and a thoughtful approach. We explain some of the considerations before you do. Read more

Published: 18th December, 2019

Updated: 6th February, 2020

Author:

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Showing 10 of 4

Latest

  • Understanding your blood test results

    Understanding your blood test results

    Blood test results can be baffling - our guide helps to explain what each test is about.

  • Cardiomyopathy & Genetic Haemochromatosis

    Cardiomyopathy & Genetic Haemochromatosis

    Cardiomyopathy is a heart condition where the walls of the heart muscle are thicker than usual. Poeple with GH can develop cardiomyopathy.

  • A Guide to Preparing for Venesection

    A Guide to Preparing for Venesection

    Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards.

  • In memory of Steve

    In memory of Steve

    To raise awareness & raise money for this charity

Most read

  • Coronavirus Update

    Coronavirus Update

    Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 18th January 2021.

  • Ask the doctor

    On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.

  • Ask the doctor (part 2)

    On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.

  • Liver cancer ten times more likely in men with GH

    Liver cancer ten times more likely in men with GH

    Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study.

  • CV19 Vaccine & Haemochromatosis

    CV19 Vaccine & Haemochromatosis

    Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 6th January 2021.

  • UK National Screening Committee Consultation

    UK National Screening Committee Consultation

    This month, UK National Screening Committee has commenced a consultation on screening for genetic haemochromatosis in adults.

  • What's it like becoming a GH blood donor?

    What's it like becoming a GH blood donor?

    Our Social Media Community and Volunteer Manager, Elizabeth reflects on her experiences of the new blood donation scheme and shares some details from behind-the-scenes.

  • 2020 Conference Postponement and AGM Update

    2020 Conference Postponement and AGM Update

    Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak.

  • Frequently Asked Questions About Genetic Haemochromatosis

    Frequently Asked Questions About Genetic Haemochromatosis

    We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.

  • Half Marathon Completed in Honour of Dad!

    Half Marathon Completed in Honour of Dad!

    Michael Baker has completed his half marathon around Loughborough on Sunday. His appeal in memory of his Dad has raised over £1800 so far.

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