Meet Alice, the AI iron overload companion. Read more
We've secured support for a major new five-year programme across England, to develop and roll-out family screening for the condition. Read more
Last week, amid tight security, HUK’s CEO Neil McClements was invited to meet with members of the UK Shadow Cabinet to discuss our work. Read more
MyIron+ the iron overload app, in use in over 12 countries globally, gets new features this month. Read more
Every year we depend on people taking part in events and challenges to raise funds in the fight against iron overload. This is a round-up of all the wonderful people currently raising funds for us.. Read more
Join us as a volunteer for a day at the 2024 Balmoral Show to help save lives and prevent ill-health from iron overload in families across Northern Ireland. Read more
Rare Disease Day is on Thursday 29th February. Check out the range of events and happenings & get involved! Read more
Join us across Northern Ireland this Spring to share your views, needs and experiences of haemochromatosis. The tea or coffee is on us! Read more
Journalist David Mackay at the Aberdeen Press & Journal, shared his GH story to readers earlier this month, to coincide with our Aberdeenshire screening initiative. Read more
Last month, we launched a preventative health initiative across rural Aberdeenshire in memory of local resident Miranda McHardy, who died suddenly from genetic haemochromatosis aged 59 last year. Read more
We’re running a community preventative health initiative over the next 3 months across rural Aberdeenshire. Read more
We are pleased to announce our 18 Fundraising Heroes of 2023. People who have raised above and beyond £1,000 for the Haemochromatosis cause! Read more
We have a very limited number of places available to run the Great North Run in September 2024. Want to set yourself a challenge for the New Year and raise vital funds for our charity? Register with us now! Read more
November was a hectic month for clinician events, with conferences in London, Manchester & Liverpool. Read more
This month, we're launching a multi-channel TV, press, billboard and radio campaign to raise awareness of genetic haemochromatosis across Northern Ireland. Read more
Order a home-testing kit by post, get the results within 2 weeks. From just £49. Read more
Our recent membership survey shows the stark contrast between the charity's work and NHS provision. Read more
Imagine if the answer to "Doing anything interesting in 2024?" was, "Yes, I am walking lava fields in Iceland or running the Paris Marathon or trekking Hadrian's Wall". Read more
Karen Richardson describes running the London Landmarks Half Marathon for Haemochromatosis UK in 2023 as "life-changing in so many ways." (Update - all current places for LLHM are allocated) Read more
We've been raising awareness locally with several volunteers & young helpers. Read more
We're working with the Welsh Blood Service (WBS) to better understand how people in Wales feel about donation services when they have genetic haemochromatosis. Read more
Following a rigorous 12 month assessment process, Haemochromatosis UK is proud to be an Investing in Volunteers (IiV) achiever. Read more
We are sad to report that the charity’s founder Janet Fernau MBE has passed away. Read more
How appropriate to get your irons out to fundraise for Haemochromatosis UK! The McLoughlin Group did just that in July this year when their Annual Golf Day raised an impressive £2,595. Read more