Rare Disease Day is on Thursday 29th February.

Join us in celebrating the 1 in 13 people in UK who live with a rare disease.

You can get involved by :

• sharing social media images, inforgraphics and banners with friends online
• attending one of the face-to-face events in England (29th Feb), Scotland (22nd Feb), or Wales (20th Feb), organised by our friends at Genetic Alliance UK (we are members of the GAUK alliance)
• attending the national virtual RDD event on 4th March organised by Genetic Alliance UK

Although the most common form of genetic haemochromatosis (known as type 1, HFE GH) is not rare, there are rare forms of the condition. These include juvenile (type 2), TFR2 (type 3) and SLC40A1/Ferroportin Disease (type 4).

To mark this year's event, we're pleased to announce the publication of new guides to type 3/4, reviewed and approved by our recently expanded Clinical Advisory & Research Panel.

• Guide to TFR2 (type 3) non-HFE Haemochromatosis
• Guide to SLC40A1/Ferroportin Disease (type 4) non-HFE Haemochromatosis
• Guide to Juvenile (type 2) non-HFE Haemochromatosis

We are strong. We are proud. We are many.

Get involved in a Rare Disease Day event