Community venesection project launched in Littleport, Cambridgeshire

Haemochromatosis UK has partnered with Addenbrooke’s Hospital and St George’s Medical Centre in Cambridgeshire to offer lifesaving venesection treatment in the local community. Read more

Celebrating the first anniversary of our NHS BT/HUK Collaboration

We're celebrating the first anniversary of our collaboration with NHS Blood & Transplant with an awareness-raising campaign. Read more

Our New Genetic Testing Service for Members' Families

Announcing our new genetic testing service for HUK members and their families. Order a home-testing kit by post, get the results within 2 weeks. Read more

New GH eLearning Module for Nurses

Flushed with success after winning the prestigious Nurse of the Year Award in March, our team have been working on a new eLearning module for nurses and healthcare practitioners. Read more

Get involved in our latest research programme

Help us with our latest research programme by taking a 3-minute survey on your experiences of treatment for iron overload. Read more

Join us for WHW 2021

We're marking World Haemochromatosis Week (1st - 7th June) with a range of events. Read more

Raising public awareness in Wales

We've launched a public awareness campaign in Wales, with new Welsh & English language resources. Read more

HUK Win Nurse of Year Award for Venesection Best Practice

HUK's venesection best practice team have won Nurse of the Year in the prestigious British Journal of Nursing Awards. Read more

Kidszone launches this month

Our new Kidszone launches this month with new resources for children and young people affected by genetic haemochromatosis. Read more

Medical Research Award for 2021

We're delighted to announce the winner of the 2021 Fernau Medical Research Award. Read more

We're finalists in the 2021 British Journal of Nursing Awards

We're delighted to have been selected as finalists in the British Journal of Nursing Awards 2021. Read more

Dementia rates higher in men with genetic haemochromatosis

New research has found that men who have the Western world’s most common genetic disorder are more likely to develop dementia, compared to those without the faulty genes. Read more

HUK Calls for Screening of Haemochromatosis in Adults

Our charity has responded to the UK National Screening Committee consultation on screening for haemochromatosis in adults. Read more

CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021. Read more

LGBT community and Blood Donation

NHS Blood Donation Policy changes come into place in the Summer of 2021 read the press release here. Read more

Liver cancer ten times more likely in men with GH

Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study. Read more

Improvements to GH Donor Arrangements

We work closely with NHS blood donation services across the UK, to improve the opportunities for people with genetic haemochromatosis (GH) to become blood donors. Learn about some forthcoming changes to these schemes in England and Scotland. Read more

Charity Running Places Available for 2021!

We have running places available to apply for via ballot. We have places in: Great North Run 2021, Virgin London Marathon 2021 and in the Great South Run 2021. Read more

UK National Screening Committee Consultation

This month, UK National Screening Committee has commenced a consultation on screening for genetic haemochromatosis in adults. Read more

Life in the Time of Covid

The Covid-19 pandemic has profoundly affected our community. A recent HUK research project explored some of the challenges and looked for solutions. Read more


Mum of two, Sarah Vousden is a member of our charity's families forum. The forum's members are helping HUK to develop resources to explain GH to children and young people. Here, Sarah shares her family’s experience of genetic haemochromatosis… Read more

State of the Nation Report reveals inconsistent NHS care

Over the past 12 months, we have been researching NHS care pathways for people with genetic haemochromatsosis. Help us as we press for urgent change to improve NHS care. Read more