The minutes of the meeting held on 2nd of December 2020 have been published and can be downloaded here. Read more
The final APPG for Genetic Haemochromatosis of 2020 will be held online via Zoom webinar on Wednesday 2nd December at 2.30pm. Read more
Fourth APPG for Genetic Haemochromatosis. The first held in 2020 with new chair Rt Hon Sir John Hayes MP. Read more
The All-Party Parliamentary Group on Genetic Haemochromatosis was re-constituted following the December 2019 elections under the chairmanship of Rt Hon Sir John Hayes CBE MP and the Vice-Chairmanship of Ben Lake MP. The 2020 meeting dates are available here. Read more
All-Party Parliamentary Groups (APPGs) are informal cross-party groups. They have no official status within Parliament but can, however, be very influential in bringing matters to the attention of parliament and ministers, and encouraging action by other bodies. They are run by and for Members of the Commons and Lords, though many choose to involve individuals and organisations from outside Parliament in their administration and activities.
This APPG for Genetic Haemochromatosis (Iron Overload) was created in January 2019 following a report into the impact of iron overload commissioned and published by the charity Haemochromatosis UK. The report was launched at an event at The House of Commons in October 2018 and stimulated the interest of many MPs.
Download the report
The APPG on Genetic Haemochromatosis is chaired by the Rt Hon Sir John Hayes CBE MP (Conservative, South Holland & The Deepings). The Vice-Chair is Ben Lake MP (Plaid Cymru, Ceredigion). The officers include Dr Rupa Huq (Labour, Ealing central & Action) and Angus Brendan MacNeil (SNP, Na h-Eileanan an Iar).
The APPG has agreed its remit (terms of reference) and these can be viewed here. Priorities for the group will be agreed from meeting to meeting and minutes of the meetings are available below. The formal APPG register is available here.
Download the APPG Terms of Reference
Minutes of the third meeting of the APPG for Genetic Haemochromatosis on 30th October 2019. Read more
Minutes of the second meeting of the APPG for Genetic Haemochromatosis on 15th May 2019. Read more
The upcoming meeting of the APPG for Genetic Haemochromatosis on 15 May will consider a paper presented by Haemochromatosis UK on clinical guidelines. Read more
Genetic haemochromatosis was featured on BBC Radio 4’s “Inside Heath” in February. Read more
The first APPG for Genetic Haemochromatosis meeting held at Portcullis House in London on 16th January 2019. Read more
The inaugural meeting of the new All Party Parliamentary Group (APPG) on Genetic Haemochromatosis (Iron Overload) took place on Wednesday 16 January 2019 at Portcullis House. Read more
Mr Mark Pawsey, MP for Rugby where Haemochromatosis UK has its offices, has offered to chair the new All Party Parliamentary Group for Genetic Haemochromatosis. Read more
The inaugural meeting of the new All Party Parliamentary Group (APPG) on Genetic Haemochromatosis (Iron Overload) will take place on Wednesday 16 January 2019 at Portcullis House, Westminster, at 14:30. Read more
A number of MPs have agreed to take part in a proposed new All Party Parliamentary Group (APPG). Read more