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  • APPG on GH : September 2022

    APPG on GH : September 2022

    The next meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis will be held at Westminster on Wednesday 28th September 2022. Read more

  • APPG on GH AGM 2021/22

    APPG on GH AGM 2021/22

    The last meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held on Tuesday 15th March at 3pm. Read more

  • APPG on GH : June 2021 Meeting

    APPG on GH : June 2021 Meeting

    The latest meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held by Zoom video-conference on Wednesday 16th June 2021 at 2.30pm. Read more

  • APPG on GH : February 2021

    APPG on GH : February 2021

    The Spring All-Party Parliamentary Group on Genetic Haemochromatosis will be held online via Zoom webinar on Wednesday 17th February at 2.30pm. Read more

  • APPG on GH : September 2022
  • APPG on GH AGM 2021/22
  • APPG on GH : June 2021 Meeting
  • APPG on GH : February 2021
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  1. The difference we make
  2. APPG on GH

All-Party Parliamentary Group

What is the APPG?

 All-Party Parliamentary Groups (APPGs) are informal cross-party groups. They have no official status within Parliament but can, however, be very influential in bringing matters to the attention of parliament and ministers, and encouraging action by other bodies. They are run by and for Members of the Commons and Lords, though many choose to involve individuals and organisations from outside Parliament in their administration and activities.

This APPG for Genetic Haemochromatosis (Iron Overload) was created in January 2019 following a report into the impact of iron overload commissioned and published by the charity Haemochromatosis UK. The report was launched at an event at The House of Commons in October 2018 and stimulated the interest of many MPs.

Download the report

Who are the Chair and Vice-Chair?

The APPG on Genetic Haemochromatosis is chaired by the Rt Hon Sir John Hayes CBE MP (Conservative, South Holland & The Deepings). The Vice-Chair is Ben Lake MP (Plaid Cymru, Ceredigion). The officers include Liz Twist (Labour, Blaydon), Dr Rupa Huq (Labour,  Ealing central & Action) and Angus Brendan MacNeil (SNP, Na h-Eileanan an Iar).

What are the APPG's priorities and what is its remit?

The APPG has agreed its remit (terms of reference) and these can be viewed here. Priorities for the group will be agreed from meeting to meeting and minutes of the meetings are available below. The formal APPG register is available here.

Download the APPG Terms of Reference

APPG on GH : September 2022

APPG on GH : September 2022

The next meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis will be held at Westminster on Wednesday 28th September 2022. Read more

Published: 25th July, 2022

Author: Neil McClements

APPG on GH AGM 2021/22

APPG on GH AGM 2021/22

The last meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held on Tuesday 15th March at 3pm. Read more

Published: 22nd February, 2022

Updated: 24th March, 2022

Author: Neil McClements

APPG on GH : June 2021 Meeting

APPG on GH : June 2021 Meeting

The latest meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held by Zoom video-conference on Wednesday 16th June 2021 at 2.30pm. Read more

Published: 17th March, 2021

Updated: 9th July, 2021

Author: Neil McClements

APPG on GH : Annual General Meeting 2020/21

APPG on GH : Annual General Meeting 2020/21

The Annual General Meeting of the All-Party Parliamentary Group for Genetic Haemochromatosis meeting was held online via Zoom webinar on Tuesday 16th March 2021. Read more

Published: 16th March, 2021

Updated: 17th March, 2021

Author: Neil McClements

APPG on GH : February 2021

APPG on GH : February 2021

The Spring All-Party Parliamentary Group on Genetic Haemochromatosis will be held online via Zoom webinar on Wednesday 17th February at 2.30pm. Read more

Published: 22nd January, 2021

Updated: 3rd March, 2021

Author: Neil McClements

APPG - Wednesday 2nd December 2020 Minutes

APPG - Wednesday 2nd December 2020 Minutes

The minutes of the meeting held on 2nd of December 2020 have been published and can be downloaded here. Read more

Published: 21st December, 2020

Updated: 28th January, 2021

Author: Elizabeth Lang

End of Year APPG : December 2020

End of Year APPG : December 2020

The final APPG for Genetic Haemochromatosis of 2020 will be held online via Zoom webinar on Wednesday 2nd December at 2.30pm. Read more

Published: 12th November, 2020

Author: Neil McClements

Meeting of the APPG for Genetic Haemochromatosis  -2020

Meeting of the APPG for Genetic Haemochromatosis -2020

Fourth APPG for Genetic Haemochromatosis. The first held in 2020 with new chair Rt Hon Sir John Hayes MP. Read more

Published: 12th February, 2020

Updated: 21st February, 2020

Author: Vicki Lunn

APPG Meeting Dates - 2020

APPG Meeting Dates - 2020

The All-Party Parliamentary Group on Genetic Haemochromatosis was re-constituted following the December 2019 elections under the chairmanship of Rt Hon Sir John Hayes CBE MP and the Vice-Chairmanship of Ben Lake MP. The 2020 meeting dates are available here. Read more

Published: 29th January, 2020

Updated: 17th February, 2020

Author: Neil McClements

Minutes of the third meeting of the APPG for Genetic Haemochromatosis

Minutes of the third meeting of the APPG for Genetic Haemochromatosis

Minutes of the third meeting of the APPG for Genetic Haemochromatosis on 30th October 2019. Read more

Published: 5th November, 2019

Updated: 11th January, 2021

Author: Vicki Lunn

Minutes of the second meeting of the APPG for Genetic Haemochromatosis

Minutes of the second meeting of the APPG for Genetic Haemochromatosis

Minutes of the second meeting of the APPG for Genetic Haemochromatosis on 15th May 2019. Read more

Published: 10th June, 2019

Author: Vicki Lunn

Topics for discussion and action

Topics for discussion and action

The upcoming meeting of the APPG for Genetic Haemochromatosis on 15 May will consider a paper presented by Haemochromatosis UK on clinical guidelines. Read more

Published: 1st May, 2019

Updated: 29th January, 2020

Author: Vicki Lunn

Haemochromatosis on Radio 4

Haemochromatosis on Radio 4

Genetic haemochromatosis was featured on BBC Radio 4’s “Inside Heath” in February. Read more

Published: 19th February, 2019

Updated: 29th January, 2020

Author: Vicki Lunn

Minutes of the first meeting of the APPG for Genetic Haemochromatosis

Minutes of the first meeting of the APPG for Genetic Haemochromatosis

The first APPG for Genetic Haemochromatosis meeting held at Portcullis House in London on 16th January 2019. Read more

Published: 23rd January, 2019

Author: Vicki Lunn

“Buzzy” inaugural meeting

“Buzzy” inaugural meeting

The inaugural meeting of the new All Party Parliamentary Group (APPG) on Genetic Haemochromatosis (Iron Overload) took place on Wednesday 16 January 2019 at Portcullis House. Read more

Published: 18th January, 2019

Updated: 29th January, 2020

Author: Vicki Lunn

Mark Pawsey MP offers to Chair APPG for GH

Mark Pawsey MP offers to Chair APPG for GH

Mr Mark Pawsey, MP for Rugby where Haemochromatosis UK has its offices, has offered to chair the new All Party Parliamentary Group for Genetic Haemochromatosis. Read more

Published: 7th January, 2019

Updated: 30th January, 2020

Author: Vicki Lunn

Inaugural Meeting Scheduled

Inaugural Meeting Scheduled

The inaugural meeting of the new All Party Parliamentary Group (APPG) on Genetic Haemochromatosis (Iron Overload) will take place on Wednesday 16 January 2019 at Portcullis House, Westminster, at 14:30. Read more

Published: 21st December, 2018

Updated: 30th January, 2020

Author: Vicki Lunn

MPs express support for new APPG

MPs express support for new APPG

A number of MPs have agreed to take part in a proposed new All Party Parliamentary Group (APPG). Read more

Published: 30th November, 2018

Updated: 30th January, 2020

Author: Vicki Lunn

Back to top

Showing 10 of 18

Latest

  • New clinician training webinars

    New clinician training webinars

    Following a hectic few months of clinician events and conferences, our popular clinician training webinars have restarted.

  • Raising Awareness in Wales

    Raising Awareness in Wales

    Elizabeth from HUK, with a group of volunteers were at the Royal Welsh Show from the 18th-21st July. Helping to raise public awareness of GH

  • HUK shortlisted for three voluntary sector awards

    HUK shortlisted for three voluntary sector awards

    We are delighted to have been shortlisted for three Third Sector awards.

  • APPG on GH : September 2022

    APPG on GH : September 2022

    The next meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis will be held at Westminster on Wednesday 28th September 2022.

Most read

  • What is genetic haemochromatosis?

    What is genetic haemochromatosis?

    Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.

  • CV19 Vaccine & Haemochromatosis

    CV19 Vaccine & Haemochromatosis

    Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.

  • Genetic Testing for Haemochromatosis

    Genetic Testing for Haemochromatosis

    Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.

  • Treatment & care

  • Employers' guide to haemochromatosis

    Employers' guide to haemochromatosis

    People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.

  • Clinical Guidelines for Genetic Haemochromatosis

    Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.

  • Advice lines

    Advice lines

    Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.

  • Genetics of haemochromatosis

    Genetics of haemochromatosis

    Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.

  • Coronavirus Update

    Coronavirus Update

    Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 28th July 2021.

  • Join us

    Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.

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