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  • APPG - Wednesday 2nd December 2020 Minutes

    APPG - Wednesday 2nd December 2020 Minutes

    The minutes of the meeting held on 2nd of December 2020 have been published and can be downloaded here. Read more

  • End of Year APPG : December 2020

    End of Year APPG : December 2020

    The final APPG for Genetic Haemochromatosis of 2020 will be held online via Zoom webinar on Wednesday 2nd December at 2.30pm. Read more

  • Meeting of the APPG for Genetic Haemochromatosis  -2020

    Meeting of the APPG for Genetic Haemochromatosis -2020

    Fourth APPG for Genetic Haemochromatosis. The first held in 2020 with new chair Rt Hon Sir John Hayes MP. Read more

  • APPG Meeting Dates - 2020

    APPG Meeting Dates - 2020

    The All-Party Parliamentary Group on Genetic Haemochromatosis was re-constituted following the December 2019 elections under the chairmanship of Rt Hon Sir John Hayes CBE MP and the Vice-Chairmanship of Ben Lake MP. The 2020 meeting dates are available here. Read more

  • APPG - Wednesday 2nd December 2020 Minutes
  • End of Year APPG : December 2020
  • Meeting of the APPG for Genetic Haemochromatosis -2020
  • APPG Meeting Dates - 2020
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  1. The difference we make
  2. APPG on GH

All-Party Parliamentary Group

What is the APPG?

 All-Party Parliamentary Groups (APPGs) are informal cross-party groups. They have no official status within Parliament but can, however, be very influential in bringing matters to the attention of parliament and ministers, and encouraging action by other bodies. They are run by and for Members of the Commons and Lords, though many choose to involve individuals and organisations from outside Parliament in their administration and activities.

This APPG for Genetic Haemochromatosis (Iron Overload) was created in January 2019 following a report into the impact of iron overload commissioned and published by the charity Haemochromatosis UK. The report was launched at an event at The House of Commons in October 2018 and stimulated the interest of many MPs.

Download the report

Who are the Chair and Vice-Chair?

The APPG on Genetic Haemochromatosis is chaired by the Rt Hon Sir John Hayes CBE MP (Conservative, South Holland & The Deepings). The Vice-Chair is Ben Lake MP (Plaid Cymru, Ceredigion). The officers include Dr Rupa Huq (Labour,  Ealing central & Action) and Angus Brendan MacNeil (SNP, Na h-Eileanan an Iar).

What are the APPG's priorities and what is its remit?

The APPG has agreed its remit (terms of reference) and these can be viewed here. Priorities for the group will be agreed from meeting to meeting and minutes of the meetings are available below. The formal APPG register is available here.

Download the APPG Terms of Reference

APPG - Wednesday 2nd December 2020 Minutes

APPG - Wednesday 2nd December 2020 Minutes

The minutes of the meeting held on 2nd of December 2020 have been published and can be downloaded here. Read more

Published: 21st December, 2020

Updated: 12th January, 2021

Author: Elizabeth Lang

Related topics:
  • All-Party Parliamentary Group
End of Year APPG : December 2020

End of Year APPG : December 2020

The final APPG for Genetic Haemochromatosis of 2020 will be held online via Zoom webinar on Wednesday 2nd December at 2.30pm. Read more

Published: 12th November, 2020

Author: Neil McClements

Related topics:
  • All-Party Parliamentary Group
Meeting of the APPG for Genetic Haemochromatosis  -2020

Meeting of the APPG for Genetic Haemochromatosis -2020

Fourth APPG for Genetic Haemochromatosis. The first held in 2020 with new chair Rt Hon Sir John Hayes MP. Read more

Published: 12th February, 2020

Updated: 21st February, 2020

Author: Vicki Lunn

Related topics:
  • All-Party Parliamentary Group
APPG Meeting Dates - 2020

APPG Meeting Dates - 2020

The All-Party Parliamentary Group on Genetic Haemochromatosis was re-constituted following the December 2019 elections under the chairmanship of Rt Hon Sir John Hayes CBE MP and the Vice-Chairmanship of Ben Lake MP. The 2020 meeting dates are available here. Read more

Published: 29th January, 2020

Updated: 17th February, 2020

Author: Neil McClements

Related topics:
  • All-Party Parliamentary Group
Minutes of the third meeting of the APPG for Genetic Haemochromatosis

Minutes of the third meeting of the APPG for Genetic Haemochromatosis

Minutes of the third meeting of the APPG for Genetic Haemochromatosis on 30th October 2019. Read more

Published: 5th November, 2019

Updated: 11th January, 2021

Author: Vicki Lunn

Related topics:
  • All-Party Parliamentary Group
Minutes of the second meeting of the APPG for Genetic Haemochromatosis

Minutes of the second meeting of the APPG for Genetic Haemochromatosis

Minutes of the second meeting of the APPG for Genetic Haemochromatosis on 15th May 2019. Read more

Published: 10th June, 2019

Author: Vicki Lunn

Related topics:
  • All-Party Parliamentary Group
Topics for discussion and action

Topics for discussion and action

The upcoming meeting of the APPG for Genetic Haemochromatosis on 15 May will consider a paper presented by Haemochromatosis UK on clinical guidelines. Read more

Published: 1st May, 2019

Updated: 29th January, 2020

Author: Vicki Lunn

Related topics:
  • All-Party Parliamentary Group
Haemochromatosis on Radio 4

Haemochromatosis on Radio 4

Genetic haemochromatosis was featured on BBC Radio 4’s “Inside Heath” in February. Read more

Published: 19th February, 2019

Updated: 29th January, 2020

Author: Vicki Lunn

Related topics:
  • All-Party Parliamentary Group
Minutes of the first meeting of the APPG for Genetic Haemochromatosis

Minutes of the first meeting of the APPG for Genetic Haemochromatosis

The first APPG for Genetic Haemochromatosis meeting held at Portcullis House in London on 16th January 2019. Read more

Published: 23rd January, 2019

Author: Vicki Lunn

Related topics:
  • All-Party Parliamentary Group
“Buzzy” inaugural meeting

“Buzzy” inaugural meeting

The inaugural meeting of the new All Party Parliamentary Group (APPG) on Genetic Haemochromatosis (Iron Overload) took place on Wednesday 16 January 2019 at Portcullis House. Read more

Published: 18th January, 2019

Updated: 29th January, 2020

Author: Vicki Lunn

Related topics:
  • All-Party Parliamentary Group
Mark Pawsey MP offers to Chair APPG for GH

Mark Pawsey MP offers to Chair APPG for GH

Mr Mark Pawsey, MP for Rugby where Haemochromatosis UK has its offices, has offered to chair the new All Party Parliamentary Group for Genetic Haemochromatosis. Read more

Published: 7th January, 2019

Updated: 30th January, 2020

Author: Vicki Lunn

Related topics:
  • All-Party Parliamentary Group
Inaugural Meeting Scheduled

Inaugural Meeting Scheduled

The inaugural meeting of the new All Party Parliamentary Group (APPG) on Genetic Haemochromatosis (Iron Overload) will take place on Wednesday 16 January 2019 at Portcullis House, Westminster, at 14:30. Read more

Published: 21st December, 2018

Updated: 30th January, 2020

Author: Vicki Lunn

Related topics:
  • All-Party Parliamentary Group
MPs express support for new APPG

MPs express support for new APPG

A number of MPs have agreed to take part in a proposed new All Party Parliamentary Group (APPG). Read more

Published: 30th November, 2018

Updated: 30th January, 2020

Author: Vicki Lunn

Related topics:
  • All-Party Parliamentary Group
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Showing 10 of 13

Latest

  • Understanding your blood test results

    Understanding your blood test results

    Blood test results can be baffling - our guide helps to explain what each test is about.

  • Cardiomyopathy & Genetic Haemochromatosis

    Cardiomyopathy & Genetic Haemochromatosis

    Cardiomyopathy is a heart condition where the walls of the heart muscle are thicker than usual. Poeple with GH can develop cardiomyopathy.

  • A Guide to Preparing for Venesection

    A Guide to Preparing for Venesection

    Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards.

  • In memory of Steve

    In memory of Steve

    To raise awareness & raise money for this charity

Most read

  • Coronavirus Update

    Coronavirus Update

    Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 18th January 2021.

  • Ask the doctor

    On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.

  • Ask the doctor (part 2)

    On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.

  • Liver cancer ten times more likely in men with GH

    Liver cancer ten times more likely in men with GH

    Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study.

  • CV19 Vaccine & Haemochromatosis

    CV19 Vaccine & Haemochromatosis

    Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 6th January 2021.

  • UK National Screening Committee Consultation

    UK National Screening Committee Consultation

    This month, UK National Screening Committee has commenced a consultation on screening for genetic haemochromatosis in adults.

  • What's it like becoming a GH blood donor?

    What's it like becoming a GH blood donor?

    Our Social Media Community and Volunteer Manager, Elizabeth reflects on her experiences of the new blood donation scheme and shares some details from behind-the-scenes.

  • 2020 Conference Postponement and AGM Update

    2020 Conference Postponement and AGM Update

    Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak.

  • Frequently Asked Questions About Genetic Haemochromatosis

    Frequently Asked Questions About Genetic Haemochromatosis

    We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.

  • Half Marathon Completed in Honour of Dad!

    Half Marathon Completed in Honour of Dad!

    Michael Baker has completed his half marathon around Loughborough on Sunday. His appeal in memory of his Dad has raised over £1800 so far.

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