The latest meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held by Zoom video-conference on Wednesday 16th June 2021 at 2.30pm.

The agenda is available for download here. The minutes are available here.

The minutes, presentations and agenda of the previous meeting are available here.

This presentation was delivered to the meeting. It provides an update on the status of genetic screening in the UK, including initial findings of our charity's family screening service and a new, cross-community population screening initiative in Derry-Londonderry throughout Summer 2021. Featuring Haemochromatosis UK Chief Executive, Neil McClements and APPG Chair Sir John Hayes CBE MP with contributions from APPG members.

The presentation slides from this meeting are available here.

Claire Bloomfield, CEO of the National Consortium of Intelligent Medical Imaging (NCIMI), of which Haemochromatosis UK is a collaborator, also discussed practical steps to harness the value arising from health data.