APPG on GH : Annual General Meeting 2020/21

The Annual General Meeting of the All-Party Parliamentary Group for Genetic Haemochromatosis meeting was held online via Zoom webinar on Tuesday 16th March 2021.

The minutes are available here.

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Introducing Alice, the newest member of #TeamIronOverload

Meet Alice, the AI iron overload companion.
Meet Us at Balmoral Show

We're raising awareness of GH in the farming community in Northern Ireland this week. Visit us in the Eikon Village.
Meet Us at the Royal Highland Show (20-23 June 2024)

We're raising awareness of GH in the farming community in Scotland at the Royal Highland Show. Come and visit us!
Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.

Meet Us at Balmoral Show

We're raising awareness of GH in the farming community in Northern Ireland this week. Visit us in the Eikon Village.
Meet Us at the Royal Highland Show (20-23 June 2024)

We're raising awareness of GH in the farming community in Scotland at the Royal Highland Show. Come and visit us!
Haemochromatosis Nursing Study Day - 24th May

Gain 6 RCN accredited CPD hours. Last few places remaining - book now!
Talk, Tea and Coffee in Belfast

Join us to share your views, needs and experience of haemochromatosis symptoms, diagnosis, treatment and awareness in Northern Ireland. The tea or coffee is on us!
Talk, Tea and Coffee in Armagh City

Join us to share your views, needs and experience of haemochromatosis symptoms, diagnosis, treatment and awareness in Northern Ireland. The tea or coffee is on us!
Talk, Tea and Coffee in Dungannon

Join us to share your views, needs and experience of haemochromatosis symptoms, diagnosis, treatment and awareness in Northern Ireland. The tea or coffee is on us!
Talk, Tea and Coffee in Newcastle, Co. Down

Join us to share your views, needs and experience of haemochromatosis symptoms, diagnosis, treatment and awareness in Northern Ireland. The tea or coffee is on us! (venue change - now at the Burrendale)
Talk, Tea and Coffee in Bangor, Co. Down

Join us to share your views, needs and experience of haemochromatosis symptoms, diagnosis, treatment and awareness in Northern Ireland. The tea or coffee is on us!
Aberdeen Kilkwalk 2024

Challenge yourself on Sunday June 2 and sign up for the scenic Aberdeen Kiltwalk! Have the BEST DAY raising vital funds for Haemochromatosis UK.
Glasgow Kiltwalk 2024

Take on an epic adventure with us on Sunday April 28 and sign up for the legendary Glasgow Kiltwalk! Have the BEST DAY raising vital funds for Haemochromatosis UK WE HAVE PLACES!

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Breakfast Cereals and their Iron Content

A rough guide to the Iron content in cereals
Treatment & care
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.