Report : Evaluating the Cost of Illness of Genetic Haemochromatosis in the UK


A detailed study by York Health Economics Consortium & Haemochromatosis UK on the costs of ill-health attributable to genetic haemochromatosis. Read more

Time for Change


This 22-page report was commissioned in response to the UK National Screening Committee consultation on genetic screening for GH in adults. Published February 2021. Read more

State of Nation Report (August 2020)


This report, published in collaboration with University of Derby is the culmination of over a years’ work exploring NHS care pathways for people affected by genetic haemochromatosis, across the UK. It makes for challenging reading for anyone affected by genetic haemochromatosis, policy makers and clinicians. Read more

Venesection Best Practice Guidance (Second Edition)


Fully revised and updated in March 2022. This guidance represents the culmination of over 4 years' collaboration and consultation with practising nurses and healthcare professionals under the auspices of UK registered charity Haemochromatosis UK. Endorsed by the Royal College of Nursing. Read more

Haemochromatosis Hero Medals


Hero Award Medal - awarded to someone special. Read more



LIVING WITH THE IMPACT OF IRON OVERLOAD: Report from a large survey of people with haemochromatosis Read more