My husband Nigel was diagnosed with Genetic Haemochromatosis (GH), in April 2021, was informed by his GP in mid May but was too poorly to undergo treatment; he tragically died June 1st 2021.

GH is the most common undiagnosed hereditary, genetic condition, where iron levels in the body slowly build up over many years. If it is not treated, this can damage parts of the body such as the liver, joints, pancreas and heart, causing organ failure.

Haemochromatosis UK as a charity, actively lobby to improve awareness of the condition, both amongst the general public but most importantly, your GP in primary care, where it can be diagnosed with a simple blood test and is very easily treated.

Had Nigel been tested in 2015, when his liver function had started to decline, he would most certainly still be here with us today; supporting the charity will prevent other families going through what ours have.

Julie Phillips