Join our charity today as a member and receive the many benefits of membership :

  • free specialist nurse appointments to discuss your care
  • over 24 free information booklets in our exclusive membership pack
  • free will-writing service (worth £120)
  • heavily subsidised genetic testing service for family members (worth £280)
  • 10% discount in our online shop much, much more.

UK residents : join now by direct debit 

Join by direct debit - £30 annually

Rest of world residents : join now using credit or debit card.

Join by credit or debit card - £46 annually

Help us to raise awareness, provide support, deliver education and undertake medical research into the condition.

Join today!