Join us! Join our charity today as a member and receive the many benefits of membership : free specialist nurse appointments to discuss your care over 24 free information booklets in our exclusive membership pack free will-writing service (worth £120) heavily subsidised genetic testing service for family members (worth £280) 10% discount in our online shop ...plus much, much more. UK residents : join now by direct debit Join by direct debit - £30 annually Rest of world residents : join now using credit or debit card. Join by credit or debit card - £46 annually Help us to raise awareness, provide support, deliver education and undertake medical research into the condition. Join today! Manage Cookie Preferences