Coronavirus updates

We've been keeping everyone updated regularly; here's a summary of the changes in advice for this rapidly changing situation.

You can get the latest updates here : https://www.haemochromatosis.org.uk/coronavirus

Our guidance was :

updated at Noon on 6th January 2021 with details of aspects of the CV19 vaccination programme for people with haemochromatosis
updated at Noon on Thursday 5th November 2020 with details for clinically extremely vulnerable people during Lockdown part 2
2pm on Thursday 11th June with details of the UK government's requirement for public transport users to wear face masks from Monday 15th June.
updated at Noon on Friday 3rd April with additional resources for people with endocrine conditions (eg diabetes, Addison's Disease, pituitary failure), plus further advice from the Childrens' Commissioner on talking to kids about Covid-19
updated at 9am on Monday 30th March with additional resources for maintaining good mental health
updated at 9am on Friday 27th March with reassurance from RCOG about pregnancy and Covid-19
updated at Noon on Wednesday 25th March, with additional guidance for people with advanced liver disease and/or liver transplant
updated at 10am on Tuesday 24th March with revised UK government advice to STAY AT HOME
updated at 5pm on Monday 23rd March, to provide additional links to helpful resources (above)
updated at 8am on Friday 20th March with UK government advice regarding school-aged children - "If it is at all possible for children to be at home, then they should be."
updated at 4pm on Thursday 19th March with UK government advice re self-isolating and resources for families with young children
updated at 11am on Tuesday 17th March with details of revised UK government guidance
updated at 11am on Friday 13th March with details of revised UK government guidance
updated at 10am on Thursday 12th March with additional localised info for people living in Northern Ireland, Scotland & Wales.
originally published at 10am on Tuesday 10th March 2020

Latest

Haematology Patient & Carers Congress

Join #TeamIronOverload at this free event for haematology patients.
December 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.
November 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.
October 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Breakfast Cereals and their Iron Content

A rough guide to the Iron content in cereals
Treatment & care
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.