RCN Congress 2024

Join us in Newport, Wales for the 2024 Royal College of Nursing Congress to discover our range of eLearning and venesection best practice solutions.

Join us to lean more about genetic haemochromatosis treatment and best practice.

Visit us for further details on :

our award-winning venesection best practice guidance, endorsed by the Royal College of Nursing
our RCN-accredited eLearning module (worth 4 CPD hours)
our free patient smartphone/tablet app for iron overload - MyIron+
our free hospital/clinic packs of venesection diaries, patient information, telephone helpline and leaflet

See you there!

Latest

Walk & Talk for HAW 2024

We're excited to announce our Haemochromatosis Awareness Week Walk & Talk (1st-7th July 2024)! Please ask your friends and family to join you during 1st-7th July for your fundraising and awareness walk. Pick a day for your walk or even do a walk every day throughout the week.
Walk & Talk for Haemochromatosis Awareness Week (1st-7th July 2024)

Will you organise a casual Walk & Talk during Haemochromatosis Awareness Week (1st-7th July 2024) with friends & family?
An Introduction to Genetic Haemochromatosis for GPs October 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms, diagnosis, treatment and ongoing care for primary care practitioners.
An Introduction to Genetic Haemochromatosis for GPs July 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms, diagnosis, treatment and ongoing care for primary care practitioners.

Walk & Talk for Haemochromatosis Awareness Week (1st-7th July 2024)

Will you organise a casual Walk & Talk during Haemochromatosis Awareness Week (1st-7th July 2024) with friends & family?
An Introduction to Genetic Haemochromatosis for GPs October 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms, diagnosis, treatment and ongoing care for primary care practitioners.
An Introduction to Genetic Haemochromatosis for GPs July 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms, diagnosis, treatment and ongoing care for primary care practitioners.
An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners December 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms and treatment for nurses and healthcare practitioners.
An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners November 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms and treatment for nurses and healthcare practitioners.
An Introduction to Genetic Haemochromatosis for Nurses and Healthcare Practitioners September 2024

This interactive webinar provides a rapid introduction to genetic haemochromatosis, its symptoms and treatment for nurses and healthcare practitioners.
December 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.
November 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.
October 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.
September 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Breakfast Cereals and their Iron Content

A rough guide to the Iron content in cereals
Treatment & care
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.