Haemochromatosis affects many people around the world. It is essential that those diagnosed with haemochromatosis, no matter where they live in the world, are able to access the help and support needed.

We have put together a comprehensive list of all those organisation, charities and associations situated around the world who can offer this important help and support.

If you run or represent a patient group or charity supporting people with genetic haemochromatosis and would like your details featured here, just contact our office.

Australia

Haemochromatosis Australia

website: www.ha.org.au

email: [email protected]

tel: 1300 019 028

Facebook: https://www.facebook.com/Haemochromatosis

Belgium

Haemochromatose Vereniging Vlaanderen vzw

website: www.haemochromatose.be

email: [email protected]

Twitter: https://twitter.com/Haemochromatose

tel: 016 34 46 49

Brazil

Grupo Brasileiro de Hemocromatose Hereditária - The Brazilian Group of Hereditary Haemochromatosis (GBHH)

website – www.hemocromatosehereditaria.com.br

e-mail: [email protected]

Facebook – www.facebook.com/hemocromatosehereditaria

contact: Paulo Santos 

tel: (0 55 11) 5576 4848

Denmark

Danish Hemochromatosis Association

website: www.haemokromatose.dk

email: [email protected] or  [email protected]

tel : +45 20204942 or +45 61716096

Europe

European Federation of Associations of Patients with Haemochromatosis

website: http://efaph.eu/

email: [email protected]

contact: Francoise Courtois, General Secretary

tell:  00 33 (0)6 08 25 94 04

France

Association Hemochromatose France   

website: www.hemochromatose.fr

email : [email protected]

Facebook: www.facebook.com/hemochromatose.fr

tel: 04 66 64 52 22 ou 09 75 49 14 52

Germany

Hämochromatose-Vereinigung Deutschland e.V.

website: www.haemochromatose.org

email: [email protected]

contact: Barbara Butzeckl

tel:  (0049) 2324- 8672048

Holland

Hemochromatose Vereniging Nederland

website: www.hemochromatose.nl

email: [email protected].

Hungary

Hemokromatózisos Betegek Egyesülete (Hemochromatosis Patient Association)

website: www.hemokromatozis.hu

email: [email protected]

Facebook (and messenger): https://www.facebook.com/hemokromatozis

Iceland

Járnofhleðsla - Hemochromatosis

www.facebook.com/Járnofhleðsla-Hemochromatosis-Iceland

Ireland

Irish Haemochromatosis Association

website: www.haemochromatosis-ir.com

email: [email protected]

tel: +353 (1) 8735911

Italy

Associazione Emocromatosi

website: www.emocromatosi.it

email:[email protected]

Facebook: www.facebook.com/emocromatosi

New Zealand

Leukaemia and Blood Cancers

website: https://www.leukaemia.org.nz

Facebook: https://www.facebook.com/HaemochromatosisNZ

Norway

Norsk Hemokromatoseforbund

website: www.hemokromatose.no

email: [email protected]

contact: Ketil Toska

tel: +47 93 40 53 22

Portugal

Associação Portuguesa de Hemocromatose.

website: www.aphemocromatose.org

Spain

Asociación Española de Hemocromatosis (AEH)

website: www.hemocromatosis.es/

Facebook: www.facebook.com/Asociación-Española-de-Hemocromatosis-390071277706656/

email: [email protected]

South Africa

Haemochromatosis South Africa

website: www.haemochromatosis-international.org/

email: [email protected]

Facebook: https://www.facebook.com/HaemochromatosisSA

USA

Iron Disorders Institute

website : www.irondisorders.org

contact : Cheryl Garrison

email :[email protected]

contact : Cheryl Garrison

tel: 864-915-5285

Other American Sites

American Hemochromatosis Society (AHS): www.americanhs.org