Haemochromatosis around the World Haemochromatosis affects many people around the world. It is essential that those diagnosed with haemochromatosis, no matter where they live in the world, are able to access the help and support needed. We have put together a comprehensive list of all those organisation, charities and associations situated around the world who can offer this important help and support. If you run or represent a patient group or charity supporting people with genetic haemochromatosis and would like your details featured here, just contact our office. Australia Haemochromatosis Australia website: www.ha.org.au email: [email protected] tel: 1300 019 028 Facebook: https://www.facebook.com/Haemochromatosis Belgium Haemochromatose Vereniging Vlaanderen vzw website: www.haemochromatose.be email: [email protected] Twitter: https://twitter.com/Haemochromatose tel: 016 34 46 49 Brazil Grupo Brasileiro de Hemocromatose Hereditária - The Brazilian Group of Hereditary Haemochromatosis (GBHH) website – www.hemocromatosehereditaria.com.br e-mail: [email protected] Facebook – www.facebook.com/hemocromatosehereditaria contact: Paulo Santos tel: (0 55 11) 5576 4848 Denmark Danish Hemochromatosis Association website: www.haemokromatose.dk email: [email protected] or [email protected] tel : +45 20204942 or +45 61716096 Europe European Federation of Associations of Patients with Haemochromatosis website: http://efaph.eu/ email: [email protected] contact: Francoise Courtois, General Secretary tell: 00 33 (0)6 08 25 94 04 France Association Hemochromatose France website: www.hemochromatose.fr email : [email protected] Facebook: www.facebook.com/hemochromatose.fr tel: 04 66 64 52 22 ou 09 75 49 14 52 Germany Hämochromatose-Vereinigung Deutschland e.V. website: www.haemochromatose.org email: [email protected] contact: Barbara Butzeckl tel: (0049) 2324- 8672048 Holland Hemochromatose Vereniging Nederland website: www.hemochromatose.nl email: [email protected]. Hungary Hemokromatózisos Betegek Egyesülete (Hemochromatosis Patient Association) website: www.hemokromatozis.hu email: [email protected] Facebook (and messenger): https://www.facebook.com/hemokromatozis Iceland Járnofhleðsla - Hemochromatosis www.facebook.com/Járnofhleðsla-Hemochromatosis-Iceland Ireland Irish Haemochromatosis Association website: www.haemochromatosis-ir.com email: [email protected] tel: +353 (1) 8735911 Italy Associazione Emocromatosi website: www.emocromatosi.it email:[email protected] Facebook: www.facebook.com/emocromatosi New Zealand Leukaemia and Blood Cancers website: https://www.leukaemia.org.nz Facebook: https://www.facebook.com/HaemochromatosisNZ Norway Norsk Hemokromatoseforbund website: www.hemokromatose.no email: [email protected] contact: Ketil Toska tel: +47 93 40 53 22 Portugal Associação Portuguesa de Hemocromatose. website: www.aphemocromatose.org Spain Asociación Española de Hemocromatosis (AEH) website: www.hemocromatosis.es/ Facebook: www.facebook.com/Asociación-Española-de-Hemocromatosis-390071277706656/ email: [email protected] South Africa Haemochromatosis South Africa website: www.haemochromatosis-international.org/ email: [email protected] Facebook: https://www.facebook.com/HaemochromatosisSA USA Iron Disorders Institute website : www.irondisorders.org contact : Cheryl Garrison email :[email protected] contact : Cheryl Garrison tel: 864-915-5285 Other American Sites American Hemochromatosis Society (AHS): www.americanhs.org Manage Cookie Preferences