We're developing new resources, specifically for families, to help explain genetic haemochromatosis to children and young people. We’re seeking  :
  • parents whose children have a confirmed diagnosis of genetic haemochromatosis (ages 10-21)
  • parents of children (ages 10-16) who have themselves been diagnosed recently with GH 
This focus group will meet virtually via video conference periodically, to help us develop and refine these new resources.

Apply Now

What are the benefits of being a families focus group member?

  • Be part of a team of volunteers and meet new people
  • Enjoy the satisfaction that comes from helping others as we seek to develop new resources for families with children and young people
  • Increase your confidence, communication and interpersonal skills
  • Develop new skills, useful in other areas of your life

What is the time commitment?

  • Approximately 1 hour per month, to participate in video conference calls to discuss the resources we are developing

What's involved?

  • Help Haemochromatosis UK to develop and refine new resources for parents with children
  • Share your experiences of parenting kids with genetic haemochromatosis
  • Share your experiences of having genetic haemochromatosis and explaining it to your kids

What skills are useful in this role?

  • An openness to share your experiences, whilst respecting those of others

What equipment is needed?

  • A computer or smartphone with access to the internet, for video calls.

What support will you be given?

  • Volunteer induction and training
  • Opportunities to become involved in other Haemochromatosis UK activities.