At Haemochromatosis UK we provide advice and support to people with genetic haemochromatosis across the UK. We educate, inform and support people through our website and publications, social media, training for professionals and our public awareness campaigns.

We are seeking enthusiastic and skilled volunteers with an interest in Haemochromatosis to help organise and deliver awareness events around the UK (Northern Ireland, Scotland, Wales, South England, and Northern England)

We are a passionate, but very small team and need the help of volunteers like you who have the knowledge, enthusiasm, and local connections to reach as many people as possible.

Volunteer Community Ambassador

As a volunteer community ambassador, you will be vital in helping raise awareness of GH in your area.

The awareness events will include expert patient presentations at GP surgeries, running our famous peer-to-peer support events called ‘Iron Brew’ socials where those with the condition get to meet one another (often for the first time) and stands at local events, shopping centres and beyond!

We know the importance of these face-to face events, in ensuring Genetic Haemochromatosis is visible to more people, especially in your local areas and communities.

With the help of our Volunteer Community Ambassadors, we hope to deliver an extra 35 awareness events across the UK for the charity.
Time Commitment

Over the course of a year the Volunteer Community Ambassador will:
  • Hold three stands at local events
  • Host two Iron Brew Socials in their communities
  • Present two expert patient events at their local GP surgeries.

Key Tasks

• Research and organise a stand at three local events in a 12-month period. (This could be supermarkets, local fairs, fetes, community events)
• Find and support local volunteers to help you at events
• Be able with support produce risk assessments for events
• Take pictures of the amazing events and share them locally and with the charity
• Organise and promote (with the help of HUK) two Iron Brew socials over a 12-month period.
• Organise and present two expert patient events at GP surgeries (full training and resources will be given)

Relevant Skills, Competencies and Experience

• To be able to communicate effectively
• Good organisational skills
• Have a good understanding of confidentiality
• The ability to work unsupervised
• An interest in, knowledge of or willingness to learn about haemochromatosis
• Knowledge of HUK website and charity

Equipment needed

• Smartphone with access to the internet
• Computer/laptop/tablet
• Ability to travel to and from events (reasonable expenses will be reimbursed)
• Pull up banner (will be provided)
• Information leaflets (will be provided)
• Expert Patient presentation (will be provided)

What support will you be given?

• Full volunteer induction and training
• On-going support by an allocated person from Haemochromatosis UK
• Regular volunteer meetings (quarterly).
• Opportunities to help on the email and telephone Helpline
• Opportunities to become involved in other Haemochromatosis UK activities

What are the benefits of being a Volunteer?

• Development of skills in communication, presenting, information sharing
• Free training relevant to the role will be provided
• Use your skills and experience to contribute to the success of Haemochromatosis UK
• References to add to your CV
• Be part of a team of volunteers and meet new people

Terms and Conditions

To become a Volunteer, you must also complete

• A signed copy of our Volunteer agreement
• Membership of HUK.
• Interview before commencement
• 1 month trial period.

As a volunteer you will be an incredibly valued part of Haemochromatosis UK and your efforts will directly contribute to improving the lives of people with haemochromatosis and their loved ones.

Email Elizabeth here