At Haemochromatosis UK we provide advice and support to people with genetic haemochromatosis across the UK. We educate, inform and support people through our website and publications, social media, training for professionals and our public awareness campaigns.

We are seeking enthusiastic and skilled volunteers with an interest in Haemochromatosis to help provide information on our Facebook support group.

Volunteer Moderator

The purpose of this role is to maximise our impact and enable us to offer support services to as many people as possible, whilst directing participants to correct information. As a volunteer Moderator you will help signpost our community to the relevant sections on the website if they have asked a question. Delete any comments not in line with the group rules and acceptable usage policy. Block or mute participants if necessary.  

Time Commitment

The role is ongoing and can be completed at any time 24/7 which is convenient to the volunteer (weekends and evenings tend to be busier). This role is rostered alongside other volunteer moderators for one week at a time on a 1 week in 4 basis and takes 2-3 hours per month.

Key Tasks

• Help Haemochromatosis UK to moderate social media channels.
• Respond appropriately to questions and signpost to HUK website, though with regard this is a public forum.
• Stimulate and guide constructive discussion, without giving medical advice
• Post appropriate links
• Block or mute participants if necessary, in consultation with staff.
• Delete any comments not inline with group rules or acceptable usage policy and of factually incorrect.
• Adopt and adhere to the procedures and standards set out in the acceptable use and social media policies.
• Maintain strict confidentiality.
• Protect the Charity’s brand and reputation.
• Honour the time commitments you make and to give reasonable notice if this is not possible.
• To approve posts.

We do not expect you to

• Give medical advice.
• Share your personal experience or any personal details.

Relevant Skills, Competencies and Experience

• To be able to communicate effectively, show empathy and patience.
• Have a good understanding of confidentiality.
• The ability to work equally well in a team and unsupervised.
• An interest in, knowledge of or willingness to learn about haemochromatosis.
• Knowledge of HUK website and Charity.

Equipment needed

• A computer or smartphone with access to the internet.
• Social media account (Facebook)

What support will you be given?

• Volunteer induction and training with opportunities to attend online volunteer meetings
• On-going support by an allocated person from Haemochromatosis UK
• Opportunities to become involved in other Haemochromatosis UK activities.

What are the benefits of being a Volunteer?

• Development of communication skills
• Free training relevant to the role will be provided
• Use your skills and experience to contribute to the success of Haemochromatosis UK
• References to add to your CV
• Be part of a team of volunteers and meet new people

Getting Involved – Next Steps

To get involved or to arrange a no-obligation discussion, register your interest!

Register your interest in volunteering

Before starting to volunteer with us, all volunteers must complete :

• A signed copy of our Volunteering agreement
• Undertake and pass our online Safeguarding eLearning module and social media moderation training (delivered online by Zoom)
• Undertake (and pass) a DBS check (arranged by our charity at our cost)

As a volunteer you will be a valued part of Hemochromatosis UK and your efforts will contribute to improving the lives of people with haemochromatosis.