At Haemochromatosis UK we provide advice and support to people with genetic haemochromatosis across the UK. We educate, inform and support people through our website and publications, social media, training for professionals and our public awareness campaigns.

We’re seeking enthusiastic and skilled volunteers with an interest in haemochromatosis to help provide the Hemochromatosis UK Buddy scheme

Buddy Scheme Volunteer

As a Buddy scheme volunteer you will help to support people newly diagnosed or experiencing anxiety due to Haemochromatosis. This role provides vital support and encouragement to people, who are often feeling particularly vulnerable at this stage of their journey.

Time Commitment

1-2 hours a week on average. The role is ongoing. 

Key Tasks

• Review referrals from our helpline coordinator/specialist nurse and select one or more people to “buddy-up” with in response to a referral
• Arrange to contact the referred “buddy” by telephone in line with the Buddy Scheme process to talk and listen to them
• Complete a Buddy scheme report online for each appointment completed
• Respond appropriately to questions, concerns and any distress of your buddy, using your training

• Explore what practical or emotional issues buddies need to talk through and to provide good quality information at the right level.
• Signpost buddies (without giving medical advice) so that they can consider and choose for themselves what they want to do or happen next.
• Maintain strict confidentiality.
• Honour the time commitments you make and to give reasonable notice if this is not possible.

We do not expect you to do

• Give medical advice.
• Interact with the person you are supporting face-to-face (only by telephone).
• Share your personal details.

Relevant Skills, Competencies and Experience

• Have personal lived experience of genetic haemochromatosis
• To be able to communicate effectively, show empathy and patience.
• Have a good understanding of confidentiality
• The ability to work equally well in a team and unsupervised.
• An interest in, knowledge of or willingness to learn about haemochromatosis.
• Be confident meeting and speaking to new people.

Equipment needed

• A computer or smartphone with access to the internet.
• A Voiphone mobile app will be provided to enable you to make and receive calls for the Buddy scheme. This is fully expensed.

What support will you be given?

• Volunteer induction and training with opportunities to attend online volunteer meetings
• On-going support by an allocated person from Haemochromatosis UK
• A Voiphone mobile app
• Opportunities to become involved in other Haemochromatosis UK activities.

What are the benefits of being a Volunteer Helpliner?

• Development of communication skills
• Free training relevant to the role will be provided
• Use your skills and experience to contribute to the success of Haemochromatosis UK
• References to add to your CV
• Be part of a team of volunteers and meet new people
• Increase your confidence and interpersonal skills.

Getting Involved – Next Steps

To get involved or to arrange a no-obligation discussion, register your interest!

Register your interest in volunteering

Before starting to volunteer with us, all volunteers must complete :

• A signed copy of our Volunteering agreement
• Undertake and pass our online Safeguarding eLearning module
• Undertake (and pass) a DBS check (arranged by our charity at our cost)

As a volunteer you will be a valued part of Hemochromatosis UK and your efforts will contribute to improving the lives of people with haemochromatosis.