At Haemochromatosis UK we provide advice and support to people with genetic haemochromatosis across the UK. We educate, inform and support people through our website and publications, social media, training for professionals and our public awareness campaigns.

We’re seeking enthusiastic and skilled volunteers with an interest in haemochromatosis to help represent Hemochromatosis UK at national conferences and events. The purpose of this role is to maximise our impact at conferences and enable us to reach as many people as possible across the UK with information about GH.

We attend several conferences per year; these roles are fully expensed (travel, accommodation, meals) in line with our expenses policy. We maintain a list of upcoming clinician events on our website.

To get involved or to arrange a no-obligation discussion, register your interest!

Register your interest in volunteering

What are the benefits of being a Volunteer Advocate?

  • Be part of a team of volunteers and meet new people
  • Enjoy the satisfaction that comes from helping others 
  • Increase your confidence, communication and interpersonal skills
  • Develop new skills, useful in other areas of your life
  • Get the chance to attend clinical and medical conferences to learn more about GH

What is the time commitment?

  • Varies from event-to-event, but typically 1-2 days between 9am and 5pm on weekdays

What's involved?

  • Help us to staff our conference stand
  • Interact with conference attendees, engage their interest and answer their questions about GH
  • Honour the time commitments you make and to give reasonable notice if this is not possible.

What's NOT involved?

We do not expect our volunteers advocates to :

  • Give medical advice, unless medically qualified to do so

What skills are useful in this role?

  • To be able to communicate effectively
  • The ability to work equally well in a team and unsupervised.
  • An interest in, knowledge of or willingness to learn about haemochromatosis.
  • Be confident meeting and speaking to new people.

What equipment is needed?

  • None

What support will you be given?

  • Volunteer induction and training
  • On-going support by an allocated person from Haemochromatosis UK
  • Periodic volunteer meetings (quarterly).
  • Opportunities to become involved in other Haemochromatosis UK activities.