We ran our annual members' survey over the summer. Almost 500 people responded - thank you! - and the results are now in.

Almost 99% of current members said that they would recommend charity membership to others. Reassuringly, despite cost of living pressures, 96.5% of respondents said that membership was value for money.

Overall, respondents judged charity membership 8.5 out of 10.

A clear set of concerns and priorities emerged. Primary concerns included clinician education and awareness and education for patients.

Other priorities included medical research, support for patients, genetic testing/screening and awareness raising with the general public.

The membership survey results will be discussed in depth at our forthcoming Shaping the Future workshop, where we over 30 of the charity's stakeholders with gather to discuss and draft our strategy for the period 2023-2028.

Thank you again to all members who took the time to share their thoughts in the survey!