Imaging

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Cycle Ride to St Ives

To raise money and awareness for my Haemochromatosis patients
376km! Now that’s a cycle!

Cycling the distance of Alloway, Ayr to Old Trafford in memory of a loved one, to raise awareness of this condition.
Our New Genetic Testing Service for Members' Families

Announcing our new genetic testing service for HUK members and their families. Order a home-testing kit by post, get the results within 2 weeks.
Genetic Testing for Haemochromatosis

Our genetic testing service for haemochromatosis, at a glance.

Related

EPD training
Alternative treatment
Follow up
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Specialties

Most read

Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 18th January 2021.
Ask the doctor

On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
What is Transferrin Saturation ?

Gerri our Advanced Nurse Practitioner explains what Transferrin Saturation is and why it is important to keep it at the correct levels.
Ask the doctor (part 2)

On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
Liver cancer ten times more likely in men with GH

Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 6th January 2021.
UK National Screening Committee Consultation

This month, UK National Screening Committee has commenced a consultation on screening for genetic haemochromatosis in adults.
What's it like becoming a GH blood donor?

Our Social Media Community and Volunteer Manager, Elizabeth reflects on her experiences of the new blood donation scheme and shares some details from behind-the-scenes.
2020 Conference Postponement and AGM Update

Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak.
Frequently Asked Questions About Genetic Haemochromatosis

We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.