Haemochromatosis Genynnol

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Latest

Haematology Patient & Carers Congress

Join #TeamIronOverload at this free event for haematology patients.
December 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.
November 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.
October 2024 Haemochromatosis UK Social Iron Brew

Do you know anyone with GH? We didn't when first diagnosed.... Lets share our story and make some new friends.

Ferroportin Disease (non-HFE, type 4) Genetic Haemochromatosis

This guide explains the rarer form of non-HFE genetic haemochromatosis, called Ferroportin Disease.
TFR2 (non-HFE, type 3) Genetic Haemochromatosis

This guide explains the rarer form of non-HFE genetic haemochromatosis, also known as type 3 or TFR2-related GH.
GH : A Guide for Employers

This guide, produced by the employment law team at Gowling WLG (UK) LLP, provides advice to employers whose staff have genetic haemochromatosis.
Juvenile (type 2) genetic haemochromatosis

This guide for parents and carers explains the rare type 2 variant of genetic haemochromatosis, which typically affects young people under 25 years old.
Diabetes and genetic haemochromatosis

"I’ve got diabetes and haemochromatosis - what does this mean for me?"
The effects of genetic haemochromatosis screening on screening participants

This study, undertaken 2022, demonstrates that screening for genetic haemochromatosis neither attracts the worried well nor causes anxiety.
An analysis of genetic haemochromatosis treatment approaches across the UK

In this report, we discuss the results of a survey on genetic haemochromatosis treatment approaches in the UK.
The effects of genetic haemochromatosis on mental health: a post COVID-19 pandemic study

This study, published in November 2022, reveals that people with genetic haemochromatosis are at greater risk of suffering with poor mental health than the general population.
GH & Your Employment Rights

This essential guide, produced by the employment law team at Gowling WLG (UK) LLP, explains your employment rights if you have genetic haemochromatosis.
Vitamins during treatment

It’s possible to develop vitamin deficiency whilst undergoing venesection treatment for genetic haemochromatosis. Our leaflet explains more.

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Breakfast Cereals and their Iron Content

A rough guide to the Iron content in cereals
Treatment & care
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.