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  • Virgin London Marathon - 2021

    Virgin London Marathon - 2021

    We have places at the Virgin London Marathon 2021. If you would like to run in the Virgin Money London Marathon, then apply here! Read more

  • Northern Ireland Iron Brew Social - February

    Northern Ireland Iron Brew Social - February

    This social is a "Norn Iron" special, co-hosted with Neil Irwin and Hilary Dickson from the Northern Ireland HUK members' team. Join us for informal social, via Zoom. Read more

  • Virgin London Marathon - 2021
  • Northern Ireland Iron Brew Social - February
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  1. News and events
  2. What's on?

What's on

New members' Iron Brew Social - January

New members' Iron Brew Social - January

Join us for our new members' Iron Brew social, via Zoom. Do you know anyone with GH? We didn't when first diagnosed.....come along! Read more

Start: 21st January, 2021 at 12:30pm

End: 21st January, 2021 at 1:30pm

Published: 16th October, 2020

Updated: 8th January, 2021

Author: Neil McClements

Location: Online

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Northern Ireland Iron Brew Social - February

Northern Ireland Iron Brew Social - February

This social is a "Norn Iron" special, co-hosted with Neil Irwin and Hilary Dickson from the Northern Ireland HUK members' team. Join us for informal social, via Zoom. Read more

Start: 11th February, 2021 at 12:30pm

End: 11th February, 2021 at 1:30pm

Published: 16th October, 2020

Updated: 22nd December, 2020

Author: Neil McClements

Location: Online

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Link & Learn : Business in the Community Northern Ireland

Link & Learn : Business in the Community Northern Ireland

Small business owner or large employer? Join us for this webinar, in collaboration with Business in the Community Northern Ireland. Read more

Start: 18th February, 2021 at 12:30pm

End: 18th February, 2021 at 1:30pm

Published: 12th November, 2020

Author: Neil McClements

Location: Online

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Rare Disease Day 2021

Rare Disease Day 2021

HUK are exhibiting at this special day, which aims to draw attention to rare diseases and the millions of people who are affected by them. Read more

Start: 26th February, 2021 at 10:00am

End: 26th February, 2021 at 3:15pm

Published: 11th January, 2021

Updated: 12th January, 2021

Author: Neil McClements

Location: Online

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  • Clinician Education
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Discovering Haemochromatosis - Spalding & District U3A

Discovering Haemochromatosis - Spalding & District U3A

In Lincolnshire, there are over 8,000 people affected by genetic haemochromatosis – yet 90% of people don’t realise they have it. Join us for this exploratory webinar. Read more

Start: 4th March, 2021 at 2:00pm

End: 4th March, 2021 at 3:00pm

Published: 9th November, 2020

Author: Neil McClements

Location: Online

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New members' Iron Brew Social - March

New members' Iron Brew Social - March

Join us for our new members' Iron Brew social, via Zoom. Do you know anyone with GH? We didn't when first diagnosed.....come along! Read more

Start: 12th March, 2021 at 12:30pm

End: 12th March, 2021 at 1:30pm

Published: 16th October, 2020

Updated: 8th January, 2021

Author: Neil McClements

Location: Online

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New members' Iron Brew Social - April

New members' Iron Brew Social - April

Join us for our new members' Iron Brew social, via Zoom. Do you know anyone with GH? We didn't when first diagnosed.....come along! Read more

Start: 16th April, 2021 at 12:30pm

End: 16th April, 2021 at 1:30pm

Published: 16th October, 2020

Updated: 8th January, 2021

Author: Neil McClements

Location: Online

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New members' Iron Brew Social - May

New members' Iron Brew Social - May

Join us for our new members' Iron Brew social, via Zoom. Do you know anyone with GH? We didn't when first diagnosed.....come along! Read more

Start: 14th May, 2021 at 12:30pm

End: 16th April, 2021 at 1:30pm

Published: 16th October, 2020

Updated: 8th January, 2021

Author: Neil McClements

Location: Online

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New members' Iron Brew Social - June

New members' Iron Brew Social - June

Join us for our new members' Iron Brew social, via Zoom. Do you know anyone with GH? We didn't when first diagnosed.....come along! Read more

Start: 15th June, 2021 at 12:30pm

End: 15th June, 2021 at 1:30pm

Published: 16th October, 2020

Updated: 8th January, 2021

Author: Neil McClements

Location: Online

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Great North Run 2021

Great North Run 2021

The Great North Run is the World’s biggest Half Marathon! With the best local support, famed for its party atmosphere, this is a truly classic and fantastic challenge to take on! From Newcastle city centre, over the iconic Tyne Bridge, with the swooping Red Arrows overhead and onwards to the sea views at South Shields. Read more

Start: 12th September, 2021 at 7:00am

End: 12th September, 2021 at 6:00pm

Published: 8th October, 2020

Author: Vicki Lunn

Location: Newcastle upon Tyne,, Tyne and Wear, , NE8 2AY

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Virgin London Marathon - 2021

Virgin London Marathon - 2021

We have places at the Virgin London Marathon 2021. If you would like to run in the Virgin Money London Marathon, then apply here! Read more

Start: 3rd October, 2021 at 8:00am

End: 3rd October, 2021 at 6:00pm

Published: 12th November, 2020

Author: Neil McClements

Location: The Mall, Westminster, London , SW1A 1AA

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Great South Run 2021

Great South Run 2021

The 10-mile route takes you through the iconic sights of Southsea and Portsmouth, including the Portsmouth Historic Dockyard, home of HMS Victory, past Spinnaker Tower, and finishes on the seafront with stunning views of the Isle of Wight. Read more

Start: 17th October, 2021 at 7:00am

End: 17th October, 2021 at 6:00pm

Published: 8th October, 2020

Author: Vicki Lunn

Location: Southsea Common, Portsmouth

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Back to top

Showing 12 of 12

Latest

  • Understanding your blood test results

    Understanding your blood test results

    Blood test results can be baffling - our guide helps to explain what each test is about.

  • Cardiomyopathy & Genetic Haemochromatosis

    Cardiomyopathy & Genetic Haemochromatosis

    Cardiomyopathy is a heart condition where the walls of the heart muscle are thicker than usual. Poeple with GH can develop cardiomyopathy.

  • A Guide to Preparing for Venesection

    A Guide to Preparing for Venesection

    Venesection is mainstay treatment for haemochromatosis. Read our advice on how to best prepare yourself before a venesection and what to consider afterwards.

  • In memory of Steve

    In memory of Steve

    To raise awareness & raise money for this charity

Most read

  • Coronavirus Update

    Coronavirus Update

    Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 18th January 2021.

  • Ask the doctor

    On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.

  • Ask the doctor (part 2)

    On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.

  • Liver cancer ten times more likely in men with GH

    Liver cancer ten times more likely in men with GH

    Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study.

  • CV19 Vaccine & Haemochromatosis

    CV19 Vaccine & Haemochromatosis

    Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 6th January 2021.

  • UK National Screening Committee Consultation

    UK National Screening Committee Consultation

    This month, UK National Screening Committee has commenced a consultation on screening for genetic haemochromatosis in adults.

  • What's it like becoming a GH blood donor?

    What's it like becoming a GH blood donor?

    Our Social Media Community and Volunteer Manager, Elizabeth reflects on her experiences of the new blood donation scheme and shares some details from behind-the-scenes.

  • 2020 Conference Postponement and AGM Update

    2020 Conference Postponement and AGM Update

    Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak.

  • Frequently Asked Questions About Genetic Haemochromatosis

    Frequently Asked Questions About Genetic Haemochromatosis

    We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.

  • Half Marathon Completed in Honour of Dad!

    Half Marathon Completed in Honour of Dad!

    Michael Baker has completed his half marathon around Loughborough on Sunday. His appeal in memory of his Dad has raised over £1800 so far.

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