What's on

Kiltwalk 2020 - Edinburgh

Sunday 13 September 2020 - The Kiltwalk in the Capital! 2019 was the biggest Kiltwalk yet in Edinburgh and the countdown is on for Kiltwalk Edinburgh 2020! Read more

We have places at the Virgin London Marathon 2020. We’re delighted that Mark Handley will be running the Virgin Money London Marathon, in aid of Haemochromatosis UK. Support our runners here! Read more

Great South Run 2020

The 10-mile route takes you through the iconic sights of Southsea and Portsmouth, including the Portsmouth Historic Dockyard, home of HMS Victory, past Spinnaker Tower, and finishes on the seafront with stunning views of the Isle of Wight. Read more

Best practice nursing care for GH

A day-long training workshop for nurses and other healthcare practitioners caring for people with genetic haemochromatosis. Read more

Latest

Going to Hell & Beyond for Haemochromatosis UK

In July 2020, Mike Fletcher (61) is riding his motorbike “To Hell and Beyond” to raise awareness and money for Haemochromatosis UK.

Big Give Christmas Challenge

This year, we're taking part in the Big Give Christmas Challenge, the UK’s biggest online match funding campaign. We’re hoping to raise vital funds for our 2021 awareness-raising campaign.

Virgin London Marathon - 2020

We have places at the Virgin London Marathon 2020. We’re delighted that Mark Handley will be running the Virgin Money London Marathon, in aid of Haemochromatosis UK. Support our runners here!

Awareness Raising at Balmoral Show

We're raising awareness of GH in the farming community in Northern Ireland.

Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here.

Ask the doctor

On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.

Ask the doctor (part 2)

On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.

Frequently Asked Questions About Genetic Haemochromatosis

We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.

2020 Conference Postponement and AGM Update

Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak.

Accessibility

Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.