HUK shortlisted for three charity excellence awards

We are delighted to have been shortlisted for 3 Third Sector awards, including :

Breakthrough of the Year - for our genetic screening service
Best service delivery innovation - for our specialist nurse / genetic testing service
Charity of the Year – Small

The winners will be announced at a ceremony in London on Friday 30th September.

Latest

Cycling for your family

Its a genetic condition that people and their families need to be aware of, as if untreated or undiagnosed it can sneak up on you. It affects my family. Who wouldn't do everything for family?
Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Five Nursing Bursaries Available Now!

We are offering FREE places to five nurses or student nurses to attend our sold-out Nursing Study Day. Apply before Tuesday 7th May.
Walk & Talk for HAW 2024

We're excited to announce our Haemochromatosis Awareness Week Walk & Talk (1st-7th July 2024)! Please ask your friends and family to join you during 1st-7th July for your fundraising and awareness walk. Pick a day for your walk or even do a walk every day throughout the week.

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Breakfast Cereals and their Iron Content

A rough guide to the Iron content in cereals
Treatment & care
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.