Minutes of the second meeting of the APPG for Genetic Haemochromatosis

The minutes of the meeting held on 15 May 2019 have been published and can be downloaded here.

APPGGH-Minutes-of-Meeting-002.pdf

The next meeting is planned for 30 October at Portcullis house and more details will be published here nearer the time.

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Its a genetic condition that people and their families need to be aware of, as if untreated or undiagnosed it can sneak up on you. It affects my family. Who wouldn't do everything for family?
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Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Five Nursing Bursaries Available Now!

We are offering FREE places to five nurses or student nurses to attend our sold-out Nursing Study Day. Apply before Tuesday 7th May.
Walk & Talk for HAW 2024

We're excited to announce our Haemochromatosis Awareness Week Walk & Talk (1st-7th July 2024)! Please ask your friends and family to join you during 1st-7th July for your fundraising and awareness walk. Pick a day for your walk or even do a walk every day throughout the week.

APPG on GH : April 2023

The next meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis will be held at Westminster on Wednesday 19th April.
APPG on GH : October 2022

The last meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held at Westminster on Wednesday 26th October 2022.
APPG on GH AGM 2021/22

The last meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held on Tuesday 15th March at 3pm.
APPG on GH : June 2021 Meeting

The latest meeting of the All-Party Parliamentary Group on Genetic Haemochromatosis was held by Zoom video-conference on Wednesday 16th June 2021 at 2.30pm.
APPG on GH : Annual General Meeting 2020/21

The Annual General Meeting of the All-Party Parliamentary Group for Genetic Haemochromatosis meeting was held online via Zoom webinar on Tuesday 16th March 2021.
APPG on GH : February 2021

The Spring All-Party Parliamentary Group on Genetic Haemochromatosis will be held online via Zoom webinar on Wednesday 17th February at 2.30pm.
APPG - Wednesday 2nd December 2020 Minutes

The minutes of the meeting held on 2nd of December 2020 have been published and can be downloaded here.
End of Year APPG : December 2020

The final APPG for Genetic Haemochromatosis of 2020 will be held online via Zoom webinar on Wednesday 2nd December at 2.30pm.
Meeting of the APPG for Genetic Haemochromatosis -2020

Fourth APPG for Genetic Haemochromatosis. The first held in 2020 with new chair Rt Hon Sir John Hayes MP.
APPG Meeting Dates - 2020

The All-Party Parliamentary Group on Genetic Haemochromatosis was re-constituted following the December 2019 elections under the chairmanship of Rt Hon Sir John Hayes CBE MP and the Vice-Chairmanship of Ben Lake MP. The 2020 meeting dates are available here.

What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Genetic testing for haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Breakfast Cereals and their Iron Content

A rough guide to the Iron content in cereals
Treatment & care
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.