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Recently Diagnosed

30 Sept 2026

List of useful resources

Learn about common symptoms


Excess iron is toxic and can affect many parts of the body. Many symptoms do improve with treatment.


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Learn about treatment


Treatment for genetic haemochromatosis is simple and clinically effective. If you have been diagnosed, it's important that you undergo treatment, to reduce the risk of clinical complications (and even death).


Learn more


Learn about the family implications


Genetic haemochromatosis runs in families, as it is inherited. If you are diagnosed with the condition, it's important to tell close family members so they can also be tested. You may find this draft letter helpful - ask your family members to complete it and take to their GP to see if they are also at risk of iron overload.


Ask a question


When newly diagnosed, it may feel like you are the only person going through genetic haemochromatosis. We've collated some of the most commonly asked questions, best advice and information in our readily searchable frequently asked questions archive.



Talk to your friends and family about the condition


Genetic haemochromatosis is inherited. So it's important to talk to your family about the condition, so they can be screened for iron overload.


Learn how


Contact our helplines


Our helplines are available on weekdays with friendly, practical advice and support. You can contact us by phone or email.


Helplines


Follow us on social media


We are active on Youtube, Twitter and Facebook - follow us for regular advice & news.


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Facebook


Youtube


Share experiences with our Facebook Support Group


Our Facebook Support Group provides friendly understanding and support for anyone affected by genetic haemochromatosis. This is a public group and so we advise discretion if you decide to post messages to the group.


Start here

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Be a Member

Becoming a member of the charity is a great was to get help, information and support the bigger cause

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Buy Something!

Buying something from our shop can help the cause, yourself and even others

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Please Give

We rely on the generosity of people like you for our National Helpline, to train doctors and nurses and for awareness raising.

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