For Health Workers
Explaining genetic haemochromatosis and iron overload for health care professionals
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Our charity runs an education programme to train and equip clinicians to accurately diagnose genetic haemochromatosis in the community.
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We have training specifically tailored to GPs to get identify and diagnose patients with genetic haemochromatosis as well as offering support and ongoing treatment to patients already diagnosed.
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Following the British Society of Haematology Guidelines each training session provide in-depth coverage of genetic haemochromatosis (GH). With over 380,000 people now affected by GH in the UK, and the condition being greatly undiagnosed (80-90%) the training is a must for clinicians working in any part of the UK.
Visit our Events Page for details of upcoming training events online and in-person.
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We have developed GP & Primary Care eLearning module. Our online eLearning course is available for all UK-based GPs/primary care practitioners through Pulse 365. Simply click below and start learning!
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In our Get Help Resources Section, you can download the Introductory Guide for GPs.
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We have also published patient-centred guidelines for Genetic Haemochromatosis.
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The Royal College of Nursing (RCN) have accredited our free online eLearning module on genetic haemochromatosis from 6th May 2021. Any nurse or healthcare practitioner who completes the module and the post-course assessment successfully gains a certificate of completion worth 4 CPD hours. The RCN accreditation team praised the module :
"this is a valuable opportunity to learn/update on the most common genetic condition for Caucasians in the UK....it's easy to access, stable, well-paced learning with the A&P, genetics and pathophysiology embedded into the learning. Patient care, videos, and time out activities made the learning more real and relevant."
An introduction to Genetic Haemochromatosis for nurses & healthcare practitioners
Our nurses' guide has everything a nurse needs to know to be able to support their patients diagnosed/undiagnosed.
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Venesection Best Practice
The primary treatment for genetic haemochromatosis is venesection, a process of regular, controlled blood-letting similar to blood donation.
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Our venesection best practice guidance represents the culmination of over 7 years' work with over 300 nurses and other healthcare professionals to identify, document and coalesce best practice for venesection procedures. In early 2020, our work was endorsed by the Royal College of Nursing. It was re-endorsed by RCN in 2022 and in September 2024 was accredited* by the Royal College of Nursing having been fully revised & updated for the third edition.
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Buy Print Edition (visit our shop)
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(Hardcopies may be borrowed for free from all Royal College of Nursing libraries, the British Library, the Ashmolean library (Oxford), Cambridge University library, Trinity College Dublin library. The book is also available for free loan from public libraries in the UK and Republic of Ireland, by requesting the ISBN: 978-1-3999-9165-0.)
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* RCN Accredited until 18 August 2025. Accreditation applies only to the educational content and not to any product. RCN cannot confirm competence of any practitioner.
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GH for Pharmacy
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We have produced this guide to help pharmacists understand genetic haemochromatosis and identify its symptoms in a pharmacy setting.
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