Our Charity

Haemochromatosis UK was founded as The Haemochromatosis Society in 1990, by people affected by iron overload. We continue to be a patient-led charity working for people affected by the UK's most common genetic condition.

We work to support anyone affected by the condition, across the key areas of:

Public Awareness
Support for People Affected
Education & Awareness of Health Care Practitioners
Medical Research
Campaigning / Advocacy

Our charitable constitution

Our charity is a UK registered charity regulated by the Charity Commission (1001307) and OSCR, the Office of the Scottish Charity Regulator (SCO41701) . We are a company limited by guarantee, registered with Companies House (No: 2541361).

The charity is run in accordance with our Memorandum and Articles for the benefit of people affected by genetic haemochromatosis, under the auspices of our Board of Trustees.

Our values

In mid 2019, our Board of Trustees met to discuss and agree a set of organisational values for our charity. These complement our organisational policies and are :

People first: We act as the voice for change and improvement in the diagnosis and care of those affected by genetic haemochromatosis
Living well: Our work supports living well with genetic haemochromatosis with a focus on good mental and physical health
Health equality: We champion healthcare that is equal, accessible and non-discriminatory
Clear communication: We make sense of the science and are clear where evidence exists and where it does not
Collaborative & co-operative: We bring people together to solve problems and help those affected by genetic haemochromatosis
Responsible & accountable: We are open and transparent in our work as an independent charitable patient body