HUK National HelpLine
We employ qualified and registered nurses with specialism in genetic haemochromatosis - Our Iron Nurses. Talk to us for friendly, practical, specialist help & understanding.
Monday to Friday - 12:00 noon to 3:00pm
Telephone: 03030 401 102*
Email: helpline@huk.org.uk (We aim to respond to email queries within 1-2 working days, although it is often quicker)
* Calls to 03 numbers cost no more than a national rate call to an 01 or 02 number. If calling from a mobile phone, calls to 03 numbers count towards any inclusive minutes in the same way as 01 and 02 calls.
Please note : these information and advisory services are for UK residents and Haemochromatosis UK international members resident outside USA & Canada. Regrettably, we are unable to provide advice to NHS or other clinicians or residents in USA or Canada.
Meet with our GH Advanced Nurse Practitioner
We provide a specialist support over and above the service on our helpline. The appointment is arranged with our Advanced Nurse Practitioner who specialises in genetic haemochromatosis. The appointments can cover all aspects of your diagnosis, care, treatment and genetics - including providing Genetic Counselling to understand your results.
Appointments are available most weekdays - Book via the National Helpline
Need a Buddy?
Are you newly diagnosed or caring for someone affected by genetic haemochromatosis? Would you like to buddy-up with an experienced volunteer for iron overload advice? Chat with a Buddy every couple of weeks for up to 3 months, by phone at a time that suits you.
Our Buddy service is available for all people affected by genetic haemochromatosis.
Our Buddy Scheme pairs newly diagnosed people with genetic haemochromatosis with our trained volunteer buddies, to provide ongoing 1-2-1 support around :
a new diagnosis
family concerns about genetic haemochromatosis
anxiety about venesections or treatment
questions about diet, vitamins or living well with iron overload
You can chat with a Buddy every couple of weeks for up to 3 months, by phone at a time that suits you.
All our Buddy volunteers are DBS-checked and have completed listening skills, bereavement and suicide awareness training alongside a specialist course in haemochromatosis care. Please note our Buddies are not able to offer medical advice. Our Buddies are based all across the UK and overseen by our specialist nursing team. There's no cost to get involved and you can start and stop whenever you like!
Ask to be considered for a GH Buddy
Share experiences with our Facebook Support Group
Our Facebook Support Group provides friendly and understanding lay-person support for anyone affected by genetic haemochromatosis. This is a public group supported by HUK volunteers (not staff and not HUK nurses) and so we advise discretion if you decide to post messages to the group.
https://www.facebook.com/groups/haemochromatosis/
We are thankful for the support of The National Lottery Community Fund in England which partly covers the cost of a wide range of family support activity in England including helpline, Buddies and information resources.
Legal helpline
We may be able to provide access to a legal helpline, in association with Fletchers solicitors.
If you would like help or to speak in confidence with one of the team at Fletchers Solicitors, simply register online. This service is provided on weekdays 9am-5pm.
Information provided by Haemochromatosis UK is not a substitute for professional care and should not be used for diagnosing or treating a health problem. If you have or suspect you may have a health problem you should consult your doctor. We ourselves cannot provide professional legal advice or legal representation, however we can signpost you to organisations that may be able to help.