Even the name can be tricky to say – which is why it’s often called GH. Finding the right words to explain GH to family, friends and employers can be difficult. We hope these brief guides will help you to explain GH when you need to.
Are you a #Spoonie?
A discussion about Spoon Theory and how it relates to Haemochromatosis.
Employers' guide to haemochromatosis
People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Explaining genetic haemochromatosis to friends & family
When you have GH it’s important to tell your adult family members as they might be at risk of iron overload. This includes your biological parents, sisters, brothers, their children, and your own children.
Talking with young people about haemochromatosis
Talking with young people about haemochromatosis requires care and a thoughtful approach. We explain some of the considerations before you do.